I've been posting about my concerns about my daughter. Here's the new thing. She has been diagnosed with ulcerative colitis. She has been on meds for 5 months and they are not working. She is having constant blood in her stool. She just had a positive fecal occult blood stool test. But she has 0 inflammatory markers. Sed rate low normal. C-reactive protein also low normal. Here's my question. If she's not bleeding from ulcerative colitis (which would show inflammation) could EDS make her have blood in her stool? We don't have an appointment to see a rheumatologist till September some time. She is supposed to have a capsule endoscopy to see what's going on. I feel so helpless. Even the gi nurse was puzzled as to why she had active bleeding and no inflammation. I am dreading the answer. Also, does this warrant an ER visit? Please respond...thank you.