New posts

Hi

Bawyada
  • By Bawyada · Posted April 16, 2014
  • Discussion in Raising a child with a developmental disability · 0 replies
  • I'm new here, hoping I can maybe get help and help others. My son is 15 has mild CP and severe mental retardation. He is more like a three year old only can only say "go go bye bye and hi". He wears diapers ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Anat Baniel Method?

cpenning
  • By cpenning · Posted April 7, 2014
  • Discussion in Raising a child with a developmental disability · 1 reply
  • We have an 8 month old baby boy that was born at 28 weeks. He has been diagnosed with cerebral palsy and microcephaly along with other things. We go in two weeks for another hearing test and possibly ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Why did A&E say Urology & Cardiology would investigate.This hasn't happened

julieshrive
  • By julieshrive · Posted February 18, 2014
  • Journal · 0 replies
  • Told I didn't have asthma before my MI- heart attack when died x3 with poor pumping of oxygen when haematura not investigated fairly .The same for borderline fibrillation & apnea since. Finally just been ...

Low Muscle Tone Toddler - Need Help

Skdev101
  • By Skdev101 · Posted February 14, 2014
  • Discussion in Medications and therapies · 1 reply
  • My son is 2 1/2 years old and he has low muscle tone and due to that he cannot sit upright, crawl and stand. My son is currently getting PT, OT and speech. He is making small improvements but not really ...

Introducing Photos for Inspire

Walter
  • By Walter · Posted February 11, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Alcohol blocker

averysmom
  • By averysmom · Posted January 30, 2014
  • Journal · 4 replies
  • We just came from Shriners hospital in Greenville SC. We were introduced to the idea of alcohol blockers to treat her spastic cp. I would like to hear from any other parents that have chosen this option ...

Child care???

Ajohnson6918
  • By Ajohnson6918 · Posted January 26, 2014
  • Journal · 6 replies
  • I need to get a job because social security doesn't cover half of the expenses. All the daycares I have talked to say they don't take special needs children. I can't afford a special needs daycare and ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · Posted December 6, 2013
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Thank You, From Inspire

Walter
  • By Walter · Posted November 26, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Spina Bifida Occulta Myth - from experienced patient

julieshrive
  • By julieshrive · Posted August 25, 2013
  • Journal · 1 reply
  • Check out my blog to find the actual truth. We are being left to drown from these capitalistic system & direction that ignores unbiased research . Otherwise why have the Specialists & Researchers requested ...

Spina Bifida Occulta Myth - from experienced patient

julieshrive
  • By julieshrive · Posted August 25, 2013
  • Journal · 0 replies
  • Too many times have I seen it written in texts & forums that adults with spina bifida occulta have nothing wrong? This really annoys me as has resulted in Low Priority Policy here in UK where the heart ...

new book

debsta
  • By debsta · Posted August 22, 2013
  • Journal · 1 reply
  • I have been an adoptive mom to four children with special needs. Now nearly 20 years after the passing of my second child, a beautiful little girl, I have written a book celebrating her short life. My ...

my youngest, and now also my oldest

jessibear
  • By jessibear · Posted August 9, 2013
  • Journal · 11 replies
  • Story of youngest: my youngest boy has been having problems with constipation since he was about a month old. At 2 months old he had been constipated for about a week, so I took him to the ER, they gave ...

What to say

averysmom
  • By averysmom · Posted August 1, 2013
  • Journal · 7 replies
  • My daughter with CP will be 4 one month from today. She is our only child. We have talked about having another child but we fear that same results as our last pregnancy which resulted in my daughter being ...

Bee Mighty

candacetoo
  • By candacetoo · Posted July 19, 2013
  • Journal · 2 replies
  • Moms, I have a 27wker. Hydro, narrow airway disorder, shunt, 2x brain surgeries, endless airway surgeries, 22 spinal taps, chemo on his airway, intubation every time he gets sick, 122 days in the NICU ...

Ten Things Not to Say to Special Needs Parents (Part One)

healthinmotion
  • By healthinmotion · Posted July 17, 2013
  • Journal · 1 reply
  • By Janice Yeung for Enabled Kids The latest statistics estimate that 155,000 Canadian children between the ages of 5 and 14, or 4% of all children in this age group, had some form of activity limitation ...

Things you can do

Discussion topics

Community leaders