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Cincinnati Children's Special Connections

CCHMC special connections support group and discussion community

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Cincinnati Children's Special Connections

Inspire's New Search Engine

ErikInspire's journal

ErikInspire

inspires-new-search-engine

200213

  • 44 Replies
  • Processing ...

I’m very happy to share with you Inspire’s new search engine. We believe the recent improvements that we have made will make it much easier for you to find what you are looking for. The search box at the top of the page (the magnifying glass if you are on mobile) will allow you to search across All Communities by default, or narrow it down to a single community that you belong to ... Read More

Cincinnati Children's Special Connections

Q and A: Genetic counseling for cancer patients

Cancer-Inspire's journal

Cancer-Inspire

q-and-a-genetic-counseling-for-cancer-patients

200213

  • 27 Replies
  • Processing ...

By Radha_Inspire Digital Editor, Inspire Nisha Isaac, M.S., is a certified genetic counselor at the University of Maryland’s St. Joseph Medical Center who focuses on cancer patients. I spoke with her about the role of genetic counselors in understanding cancer risks and the counseling process. Briefly, what is genetic counseling? The goal of cancer genetic counseling is to educate ... Read More

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Cincinnati Children's Special Connections

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200213

  • 733 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Cincinnati Children's Special Connections

What’s in a number? The million member milestone

Brian's journal

Brian

whats-in-a-number-the-million-member-milestone

200213

Dear members, Last night, Inspire hit a milestone -- one million members. One thing that is clearer than ever is that the value of this community is created by you, every minute of every day. I often think that our job is to provide you a safe, supportive space, and then get out of your way. The words you write and the friendships you forge are things we could never create on our own ... Read More

Cincinnati Children's Special Connections

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-95

200213

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

Cincinnati Children's Special Connections

Needing more insight on Gut Health?

In: Support and resources for caregivers

ChristanQ

needing-more-insight-on-gut-health

200213

Dear Friends & Inspire Family, Hi there! So who votes for HAPPY? I DO! I mean who likes to see their kids have a tummy ache? or who has fun parenting a child with behavior issues? Challenging to be sure. Well, this came in my inbox recently and I personally decided to sign up. It's a Webinar on Healthy Gut, Happy Children. Go to https://healthyguthappychild.com It's been WONDERFUL ... Read More

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Cincinnati Children's Special Connections

Patients are experts by experience

Radha_Inspire's journal

Radha_Inspire

patients-are-experts-by-experience

200213

Dear members, Inspire has just released a new online report, Experts by Experience 2017, a compilation of a year's worth of monthly columns written by patients and caregivers for the Stanford Medicine "Scope" blog. Inspire and Stanford Medicine have partnered on the patient-written columns for more than five years, and this is the fifth edition of "Experts." The phrase "experts by ... Read More

Cincinnati Children's Special Connections

First Cancer Moonshot recommendation is more patient data

Cancer-Inspire's journal

Cancer-Inspire

first-cancer-moonshot-recommendation-is-more-patient-data

200213

By Radha_Inspire Digital Editor, Inspire The latest Cancer Moonshot report from a panel of top-tier cancer experts lays out 10 recommendations to speed progress in fighting cancer. The first recommendation is to ask patient to help create a large database of tumor profiles. This information will also pre-register these patients for relevant clinical trials down the line. “Many patients ... Read More

Cincinnati Children's Special Connections

Art and illness

Cancer-Inspire's journal

Cancer-Inspire

art-and-illness

200213

By Radha_Inspire Digital Editor, Inspire After being approached last year to contribute a drawing to a how-to art book, Inspire member Shoshi (Shoshiplatypus) was thrilled and, despite being mid-chemotherapy for colorectal cancer, decided she couldn’t say no. But the commissioned piece was meant to describe her still-ongoing cancer journey. Although Shoshi, who also has myalgic encephalomyelitis ... Read More

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