Special Connections is a safe place where families and caregivers of patients at Cincinnati Children's Hospital Medical Center connect with others facing similar challenges for support and information sharing. More about this group

Finding out what is wrong!

nicoledorman
  • By nicoledorman · Posted March 25, 2014
  • Discussion in Diagnosis-specific information · 0 replies
  • Hello, My daughter is three years old and we have been trying to figure out what is wrong with her for the last few months and I was just wondering if anyone has any ideas or suggestions. Brooklyn was ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

New to the area

Bemisfam
  • By Bemisfam · Posted March 5, 2014
  • Discussion in Schools and education · 0 replies
  • We are moving to Cincinnati in early summer and I am interested in schools that have good reputations-or those that have been helpful to other parents-of working with special needs children. I have an ...

Autism and Potty Training

Ally72
  • By Ally72 · New reply February 24, 2014
  • Discussion in Daily home care tips · 1 reply
  • Hi Everyone, For those of you with little ones who are on the autism spectrum-I need some advice on potty training. My son who is six still wears pull ups. He tells me 'go potty', but he has already gone ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Schools Great at Mainstreaming Children with Autism?

daniel3
  • By daniel3 · New reply February 9, 2014
  • Discussion in Schools and education · 2 replies
  • Has anyone had a great experience with a school in the Cincinnati area for their child with "high-functioning" Autism? Thanks ...

my 5 year old son linear sebaceous syndrome

chanelle6
  • By chanelle6 · New reply February 7, 2014
  • Journal · 2 replies
  • Hello all, i have a 5 year old son who has been displaying signs of a developmental delay since age 3, he would hideif guess came over to visit,he hid his entire birthday party, in school he displayed ...

A new resource for preschoolers!!!

jesika_ccls
  • By jesika_ccls · New reply December 9, 2013
  • Discussion in Therapy · 2 replies
  • Greetings everyone! I am a Child Life Specialist that works at Cincinnati Children's and I want to share a new and exciting resource. I have created a medical play/processing class for children ages 3-5 ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

A new resource for preschoolers!!!

jesika_ccls
  • By jesika_ccls · Posted December 3, 2013
  • Discussion in Family issues / support · 0 replies
  • Greetings everyone! I am a Child Life Specialist that works at Cincinnati Children's and I want to share a new and exciting resource. I have created a medical play/processing class for children ages 3-5 ...

A new resource for preschoolers!!!

jesika_ccls
  • By jesika_ccls · Posted December 3, 2013
  • Discussion in Support and resources for caregivers · 0 replies
  • Greetings everyone! I am a Child Life Specialist that works at Cincinnati Children's and I want to share a new and exciting resource. I have created a medical play/processing class for children ages 3-5 ...

Wishing you could " make it all better"

MomtoC
  • By MomtoC · New reply December 3, 2013
  • Journal · 3 replies
  • Ever have those days when you watch your child struggle or try to do something and they can't? Those are the moments that break my heart, the moments I wish I could make it all better! The harsh reality ...

Parents of toddlers with special needs

mommy2abiel
  • By mommy2abiel · New reply November 26, 2013
  • Discussion in Family issues / support · 8 replies
  • Hi everyone, Have an (almost) 3 year old son with AD/HD and sensory processing disorder and live in Cincinnati. It's hard enough to meet mom friends while holding down a full time job, super hard to meet ...

LOveland Parent Community

GotBunnies
  • By GotBunnies · New reply November 25, 2013
  • Discussion in Family issues / support · 1 reply
  • If you are on the eastside (Loveland-ish area), a friend of mine and I have started a group for parents of people with challenges (cognitive, emotional, or physical). We both have adult children with ...

IN HOME Physical Therapy

mother2three
  • By mother2three · Posted November 21, 2013
  • Journal · 0 replies
  • Hello All, Wanted to share a new provider in the Greater Cincinnati area. They do IN HOME physical therapy. It's so nice that I don't have to pack up all 3 kids to head to therapy. It's called Heart to ...

Jason's Connection

mother2three
  • By mother2three · Posted November 21, 2013
  • Journal · 0 replies
  • Hi I am new to the group. I have 3 sons, 2 of them have a rare genetic syndrome and I wanted to share this new website. Just wanted to let everyone know that there is a website like "Angie's List" which ...

Having A Hard Time Finding a Homehealthcare agency

flueckmelissa
  • By flueckmelissa · New reply October 31, 2013
  • Discussion in Support and resources for caregivers · 1 reply
  • I am Melissa Flueck, I am a single mother who is raising my child Elizabeth, whom I love very much, I am her strongest advocate, My child Elizabeth has a Truamatic Brain Injury from a fall from a third ...

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About this community

The Cincinnati Children's Special Connections Community connects families and caregivers of children with special health care needs for support and information sharing. This community is sponsored by Cincinnati Children's Hospital Medical Center, an Inspire trusted partner.

A note for members

This community is not to be used for registering complaints about physicians or other health care professionals. If you have a problem with a member of your child's health care team, please talk to your health care provider first.

If you have a concern related to your Cincinnati Children's experience, please contact our Patient/Family Advocates in the Division of Family Relations. They are available to help with any concern or complaint you may have. Simply call (513) 636-4700 or send an e-mail to advocates@cchmc.org and someone will assist you.

Please be respectful of the privacy of community members and their right to remain anonymous. If you know or recognize a fellow community member from their posts, please do not reveal any personal information about that member, such as their name, or their child's name or diagnosis.

Please review Inspire's Community Guidelines for additional information.