National CMT Resource Center

Information and updates from the National CMT Resource Center about the Resource Center and its initiatives.

Discussions

find others and share awareness

camccune
  • By camccune · New reply September 17, 2013
  • 4 replies
  • I would love to meet others with Charcot Marie Tooth Disease ...

Need help

Jen1982
  • By Jen1982 · Posted January 14, 2013
  • 0 replies
  • I've been recently diagnosis end with cmt couple months ago by emg test I can not afford the genetic test my doctors want to find out what type of cmt I have I am a mother of two and survive off of my ...

CMT national registry

Myslajek
  • By Myslajek · New reply December 18, 2012
  • 6 replies
  • I was wondering if anyone out there has registered with the CMT National Registry ...

Sick & Tired of Being Sick & Tired

tereh719
  • By tereh719 · Posted September 10, 2012
  • 0 replies
  • I have CMT 2 (& other subtypes ?? ) I live in Alabama & I am looking for others in my area..I've been to the best neurologist at UAB or so I'm told..but it seems as if they really aren't interested in ...

Stem Cell Therapy for CMT

rizktaker
  • By rizktaker · New reply May 1, 2012
  • 7 replies
  • Has anyone looked into this??? http://worldstemcells.com/stem-cell-ther apy-cmt.html I am very interested and would like some opinions ...

CMT Awareness Month--September 2011!

carol128
  • By carol128 · Posted July 20, 2011
  • 0 replies
  • Awareness Month efforts are building steadily! Read about the latest efforts by CMT Support Group Leader, Melinda Lang, to get the state of New York to officially declare September CMT Awareness Month ...

Wanted: Your Input for the New National CMT Resource Center!

Allison
  • By Allison · Posted December 1, 2010
  • 0 replies
  • As part of setting up the new CDC funded National CMT Resource Center, we want the community’s input! In the next two weeks, we will be conducting various focus groups, mostly over the telephone, with ...

Updates About The National CMT Resource Center

Allison
  • By Allison · Posted December 1, 2010
  • 0 replies
  • The Hereditary Neuropathy Foundation (www.hnf-cure.org) was awarded a cooperative agreement with the CDC to set up a new National CMT Resource Center. As of October 1st, 2010, the task force to set up ...

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