HNF news

News and updates from the Hereditary Neuropathy Foundation about CMT research, advocacy and more.

Discussions

Participate in CMT Research!

KayEnd
  • By KayEnd · New reply March 12, 2014
  • 2 replies
  • Sign up with the Global Registry for inherited neuropathies to participate in therapy development and medical research for inherited neuropathies. Take 30 minutes of your time to make a difference for ...

Bike New York 2014

runnergirl1
  • By runnergirl1 · Posted March 7, 2014
  • 0 replies
  • The Hereditary Neuropathy Foundation (HNF) is thrilled to have been chosen for the fourth year as a Charity Partner for theTD Bank Five Boro Bike Tour. This means more participants riding to increase ...

Watch this video on HNF's Therapeutic Research In Accelerated Discovery

runnergirl1
  • By runnergirl1 · New reply February 23, 2014
  • 3 replies
  • HNF's Therapeutic Research In Accelerated Discovery (TRIAD) program....please spread the word on our strategy to cure CMT. http://link.brightcove.com/services/play er/bcpid2278634872001?bckey=AQ~~,AAACEm3 ...

Spread Awareness about CMT

runnergirl1
  • By runnergirl1 · Posted February 19, 2014
  • 0 replies
  • Join Team CMT and help spread awareness about CMT! http://www.hnf-cure.org/team-cmt/ Our youngest Team CMT member ...

Get your Free CMT Update: Winter 2014

runnergirl1
  • By runnergirl1 · Posted February 14, 2014
  • 0 replies
  • http://www.hnf-cure.org/wp-content/uploa ds/2014/02/CMTUpdateWinter2014.pdf ...

Earn HNF money with just 1 click!!

runnergirl1
  • By runnergirl1 · Posted January 15, 2014
  • 0 replies
  • For everyone that shares the HNF Giving Library page HNF will receive $5 through Jan. 31st. You can only share and tweet once throughout this period for us to be eligible for the donation. http://www.givinglibrary.org/organizatio ...

Happy Holidays from HNF!

runnergirl1
  • By runnergirl1 · Posted December 23, 2013
  • 0 replies
  • Click to see what HNF has been up to this year! http://archive.constantcontact.com/fs119 /1102613013340/archive/1116040776671.htm l ...

Bernadette Coming to New York!

runnergirl1
  • By runnergirl1 · Posted December 19, 2013
  • 0 replies
  • Join Us for a Private Screening of Bernadette: January 29th in New York City! Bernadette captures the life of Bernadette Scarduzio and her challenges and triumphs living with CMT. CMT is the number one ...

Essential Guide available online!

runnergirl1
  • By runnergirl1 · Posted November 15, 2013
  • 0 replies
  • Click link below to download a copy of the Essential Guide. What It's Like to Live with Charcot-Marie-Tooth! http://hnf-cure.org/essential-guide ...

Private Screening of Bernadette

runnergirl1
  • By runnergirl1 · Posted October 31, 2013
  • 0 replies
  • Arent Fox, in association with Hereditary Neuropathy Foundation, Run Amuck Productions and Cinema Libre Studio, proudly invites you to attend a private screening of the documentary film, Bernadette, followed ...

Multifaceted roles of ultra-rare and rare disease patients/parents

runnergirl1
  • By runnergirl1 · Posted October 17, 2013
  • 0 replies
  • Individual parents and patients are increasingly doing more to fund, discover and develop treatments for rare and ultra-rare diseases that afflict their children, themselves or their friends. They are ...

Calling ALL New Yorkers

runnergirl1
  • By runnergirl1 · Posted October 8, 2013
  • 0 replies
  • HOLIDAY SHOPPING BENEFIT We are excited for the third year we have been accepted to Champions For Charity and would love to share this special event with our friends. The kick off party is a special night ...

Founder of HNF, Allison Moore is going to be published!

runnergirl1
  • By runnergirl1 · Posted September 6, 2013
  • 0 replies
  • A blog within a blog. HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare ...

Text CMT to 91011 to get updates about CMT!

runnergirl1
  • By runnergirl1 · Posted September 4, 2013
  • 0 replies
  • Did you know Hereditary Neuropathy Foundation sends out informative text messages on updates about Charcot-Marie-Tooth Just text CMT to 91011 to subscribe today ...

Information about CMT!

runnergirl1
  • By runnergirl1 · Posted August 16, 2013
  • 0 replies
  • HNF News Archive With frequent new discoveries that have the potential to advance our mission to find a cure for Charcot-Marie-Tooth, it is critical to stay informed and involved. In addition, staying ...

Join the Registry: Accelerate Hereditary Neuropathy Research

runnergirl1
  • By runnergirl1 · New reply July 13, 2013
  • 4 replies
  • By completing your profile, your information will be utilized to move forward research and clinical trials that could lead to future treatments and cures for various forms of Charcot-Marie-Tooth (CMT ...

“Hereditary Neuropathies” Facebook Chat on July 24th!

runnergirl1
  • By runnergirl1 · Posted June 26, 2013
  • 0 replies
  • The Neuropathy Association and the Hereditary Neuropathy Foundation are pleased to announce that we will be co-hosting a Facebook Chat on July 24th that focuses on better understanding the diagnosis ...

HNF News Archive: No membership fee

runnergirl1
  • By runnergirl1 · Posted June 13, 2013
  • 0 replies
  • With frequent new discoveries that have the potential to advance our mission to find a cure for Charcot-Marie-Tooth, it is critical to stay informed and involved. In addition, staying connected to our ...

Carol Liu, Author of Arlene on the Scene Visits Dallas schools!

runnergirl1
  • By runnergirl1 · Posted May 21, 2013
  • 0 replies
  • Carol Liu, author of Arlene on the Scene and Arlene, the Rebel Queen visited schools in Dallas to talk about her books...read the teachers blog about the wonderful day and how much her students learned ...

Bracing for Helios

runnergirl1
  • By runnergirl1 · New reply May 19, 2013
  • 18 replies
  • Lori, who describes herself as “the kind of person who researches everything,” almost couldn’t believe she was on her way to Ortho Rehab Designs...read more http://www.help4cmt.com/articles/?id=181 &pn=bracing-for-helios ...

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