Living with a brain or nervous system disease

Birth Injured and 60

SpecialDad
  • By SpecialDad · Posted December 31, 2013
  • 0 replies
  • I was over 10 pounds at birth and they used a suction device and forceps to crush my head to get me out. I have had fibro type pain all my life and electric shocks which as a child of the 1950's I was ...

TMJ/Headache/Dizzy HELP

dareyou2move
  • By dareyou2move · New reply December 3, 2013
  • 1 reply
  • Hi everyone - I was diagnosed with Lupus March 2013. Anyway I am not sure if I have it or not - my doctor sure thinks so though I have no antibodies - but after my lupus labs came back today from f/u ...

Anyone In Canada that has Dysautonomia, autonomic failure???

kim5204
  • By kim5204 · Posted March 26, 2013
  • 0 replies
  • Would like to get in touch with anyone who has this in canada I have pure autonomic failure and would like infotmation on doctors treatments in canada. Thanks alot ...

Something new found in my brain.

Melfairy
  • By Melfairy · New reply January 22, 2013
  • 3 replies
  • Hi there! I have been dealing with going through getting brain MRI's every 6 months for the last 2.5 years. I just had my last brain MRI in December 2012. They found something new in the pons within my ...

Reflex Sympathetic Dystrophy

Driday
  • By Driday · Posted November 29, 2012
  • 0 replies
  • Hello, everyone. Do you happen to have any experience with this condition. My friend hurt i a car accident and now RSD comes and is growing each week. Also called Complex Regional Pain Syndrome I am told ...

traumatic brain contusion and later seizure

pluto9
  • By pluto9 · New reply November 9, 2012
  • 2 replies
  • hello, had a traujmatic brian injury contusion in 1987 with no seizure. went back ton work in a month and they said you may, may not or could have a seizure down the road. got on e in 2007 from drinking ...

seizures only when woken up.

Gypsyrose85
  • By Gypsyrose85 · New reply August 21, 2012
  • 2 replies
  • I was wondering...Does anyone only have seizures when woken up? My son so far has only had seizures when he is woken up ...

Disability due to Chemo-induced Peripheral Neuropathy and Chempbrain

SHORTFATFANNY
  • By SHORTFATFANNY · New reply August 10, 2012
  • 6 replies
  • I have had CIPN and Chemobrain for ten years. I don't even think they officially diagnose this since it mimics so many other conditions. My general practitioner has outruled conditions since the beginning ...

Sweet Syndrome

Pox1
  • By Pox1 · Posted June 30, 2012
  • 0 replies
  • I was diagnosed with Late phase Sweet Syndrome, along with Behcet's Disease and Ehlers-Danlos. It all stemmed from being born with Chicken Pox in 1972. There is no real genetic test for Sweet Syndrome ...

Searching for a private consultant

thebendyone
  • By thebendyone · Posted June 27, 2012
  • 0 replies
  • I would really appreciate it if anyone who knows of any neuro surgeon consultants who; 1.) do private consultations and /or 2.) are knowledgeable/specialists in Chiari Malformations AND Ehlers Danlos ...

Klinefelters memory lapses

Qlander
  • By Qlander · New reply April 30, 2012
  • 1 reply
  • This is something that really bothers me. Since birth I was born with Klinefelters Syndrome, learnt this aged 32. My mother always told me I that I was slow to read, could not do basic maths ie; 1+2 etc ...

PVL, An Insiders Story

PVLSUPPORT95 (Inactive)
  • By PVLSUPPORT95 (Inactive) · New reply January 20, 2012
  • 1 reply
  • -To Whom This May Concern PVL. Three little letters that changed my life forever. This stands for Periventricular Leukomalacia, which means the individual has poor blood flow to the brain. This inhibits ...

Looking for some insight from you.

Andrew_Rossi
  • By Andrew_Rossi · Posted December 4, 2011
  • 0 replies
  • Hi, new to this group so a big nice to meet you all! My problem is an autonomic nerve disorder that has yet to be diagnosed. I am seeing specialized neurologists who are perplexed with my symptoms which ...

woundering

deboralee
  • By deboralee · Posted March 4, 2011
  • 0 replies
  • i am looking to see if i could find others that have been damaged in the brain from taking medication, i mean permanently. if so, i hope to speak. the medication that damaged me was pegasys and co-pegasys ...

Life

blb1954
  • By blb1954 · New reply December 27, 2010
  • 4 replies
  • I understand that I have an anoxic brain injury from cardiac arrest, but I resent insinuations that I am "stupid". I openly acknowledge to family, friends and everyone I meet that I am not 100% of what ...

What is happening to my mind?

Tinman
  • By Tinman · New reply November 9, 2010
  • 8 replies
  • Hi, I used to express here all the time but the world spun out of control for me in many ways and my life was on hold for months. I have SPS, CND, CES as well as several other medical problems. Anyway ...

Leadership Training for Survivors and Family Members in Pennsylvania

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · New reply April 23, 2010
  • 1 reply
  • Sorry this post is late, but I haven't been visiting this site much lately. The Acquired Brain Injury Network Of Pennsylvania is a wonderful organization with many resources for all to utilize. ABIN-PA ...

anoxic brain damage

bean4865
  • By bean4865 · New reply April 18, 2010
  • 7 replies
  • My mom was in the hospital recovering from strangulated hernia surgery. She made it through emergency surgery only to go into septic shock. Her kidneys shut down and she was very sick, but made it through ...

Support for Survivors

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · New reply December 19, 2009
  • 15 replies
  • This site is such a great resource for survivors of ABI and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from others who have been ...

ARNOLD CHIARI MALFORMATION

pie830s
  • By pie830s · New reply October 14, 2009
  • 1 reply
  • I HAVE ARNOLD CHIARI MAFORMATION WITH A SYRINGOMYELIA. SYRINGOMYELIA IS A SYRINX (CYST) THAT RUN DOWN THE SPINAL CORD.I HAVE NO FEELING IN THE RIGHT SIDE OF MY BODY, DO TO NERVE DAMAGE. ONLY JUST GREAT ...

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