Journals

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

39 days since anoxic brain injury

kjeffer31
  • By kjeffer31 · Posted April 10, 2014
  • 1 reply
  • My mom has been in a drug induced coma for the almost 2 weeks to stop her from biting her tongue and to allow the swelling in her tongue to go down so we can put a bite block in. She had two 30 min EEGs ...

March 31 update 28 days post hypoxic brain injury

kjeffer31
  • By kjeffer31 · Posted March 31, 2014
  • 4 replies
  • They did a 20 minute eeg to prove she is still having myoclonus. But she is still having the visible jerks bc they have now dc'd all her seziure meds but keppra and locosamide. Can anyone tell me what ...

My Mother's hypoxic brain injury

kjeffer31
  • By kjeffer31 · Posted March 27, 2014
  • 3 replies
  • On March 2nd (Sunday night) 2014 my mother suffered a cardiac arrest due to constricted airway. One of her vocal cords is paralyzed and the other one was not functioning properly and was swelling she ...

personal record at the moment

jaredellis
  • By jaredellis · Posted March 27, 2014
  • 4 replies
  • ONE HOUR SO FAR AS PUTTING A LONG SLEEVE SHIRT ON I AM NOW TACKING A BREAKFAST BRACK RIGHT NOW . I WILL KEEP EVERYBODY POSTED OF MY PROGRESS ...

Open letter to Representative Pascrell of PA

pamhopefulheart
  • By pamhopefulheart · Posted March 26, 2014
  • 1 reply
  • Congressman Pascrell: As the mother and caregiver to my daughter who suffered an anoxic brain injury after a surgery at the age of 27, I am greatly disturbed that increasingly patients like her are being ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

....My Beautiful Boy.....

FletchersMommo
  • By FletchersMommo · Posted March 17, 2014
  • 22 replies
  • I am grateful to have found this online site / support group. We are 7 months tomorrow with my 26 year old beautiful boy, Fletcher's, anoxic brain injury. He has been at a Long Term Acute Care facility ...

Searching for a thread of hope

gildita
  • By gildita · Posted March 15, 2014
  • 9 replies
  • On October 24th 2013, my 43 year old husband suffered a SCA that lead to anoxic encephalopathy. He has been in a "PVS" for the past few months with very slow and minimal recovery. Pretty soon we are going ...

Apparently I'm an idiot

Daydreamer570
  • By Daydreamer570 · Posted March 14, 2014
  • 3 replies
  • Since my Hypoxic injury. I know have a general intelligence quotient of 86. Yep, my abi has made me an idiot ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Sources sought for article about co-insurance to pay for specialty drugs

John2
  • By John2 · Posted March 13, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 3/13/14 Dear members A healthcare journalist with the Associated Press (AP) is seeking more people to interview for an article she is researching on ...

Totally Ready

Daydreamer570
  • By Daydreamer570 · Posted March 8, 2014
  • 3 replies
  • So I'm totally ready to live like all the rest of the 22 year olds in the world. When is it gonna happen? I'll trade you one of my limbs for your short term memory ...

inspired

camel87
  • By camel87 · Posted March 6, 2014
  • 0 replies
  • Inspire health and wellness support groups ...

March-Brain Injury Awareness Month

pamhopefulheart
  • By pamhopefulheart · Posted March 6, 2014
  • 1 reply
  • March is National Brain Injury Awareness month. As most of you know, hypoxic-anoxic injuries to the brain are not being included in counts for brain injuries by the CDC or the NIH. Make this month count ...

Groundhog Day

Daydreamer570
  • By Daydreamer570 · Posted March 6, 2014
  • 1 reply
  • Lately I feel like every day is groundhog day. Because I don't work or go to school literally every day consists of waking up eating, taking a walk, eating, cleaning, internet surfing stories on "success ...

Idaho Brain Injury Conference

pamhopefulheart
  • By pamhopefulheart · Posted February 27, 2014
  • 0 replies
  • Please share this announcement with your friends, family, and colleagues. Brenna's Hope Foundation invites you to attend Idaho's Concussion Conference, sponsored by St. Alphonsus Regional Medical Center ...

Bradycardia with POTS?! Digoxin, I dont think so.

kalexi
  • By kalexi · Posted February 26, 2014
  • 11 replies
  • I'm confused! For years my heart has been beating way too fast, so my treatment and lifestyle is designed around that fact. Now all of the sudden my heart is beating between 35-45bpm, regardless of what ...

Farewell Abby

pamhopefulheart
  • By pamhopefulheart · Posted February 22, 2014
  • 2 replies
  • After 15,000 miles in the last three years, to take Brenna to TX, hoping for a rehab miracle and back home again, and including my trip across country in 2012, it is time for Abby (Brenna's Brain Mobile ...

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