Living with a blood disorder

Factor V Leiden

  • By slcs · New reply December 26, 2013
  • 1 reply
  • I had my first blood clot when I was 21. I had just gotten on birth control for other health reasons. I had only been on them less than 2 weeks when I ended up in the ER with a DVT ➡PE. - No diagnosis ...

Low Platelets

  • By scootergirl44301 · Posted September 11, 2013
  • 0 replies
  • I was to see my hematologist after being released from the hospital on 9/1. He informed me in a follow up appointment that my platelets are at 32000 and my WBC count was 2.3. With all of the knowledge ...

Hereditary Spherocytosis

  • By Mum-2-5 · Posted August 4, 2013
  • 0 replies
  • I am a mum with HS and four of my five kids also have HS.... Are there any other families dealing with this blood disorder ..... It is rather interesting when you really research it ...

Diagnosis-Based Assistance

  • By Reruho · Posted February 13, 2013
  • 0 replies
  • I receive the NeedyMeds newsletter. NeedyMeds is a 501(c)(3) non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and costs ...

upcoming surgery

  • By anyalock · New reply October 23, 2012
  • 1 reply
  • I am going to have to have surgery soon. I have a prolapsed uterus with cystocele and rectocele that needs to be repaired. I had a pulmonary embolism a year ago, after a pain block, so the fact that I ...

Clotting Disorder Undiagnosed Looking for Others

  • By 2livenlearn · Posted October 21, 2012
  • 0 replies
  • Hello, I am looking for others who similar symptoms and/or lab work to mine. I am looking for ideas and resources to deal with what I have. My medical history includes 2 pulomanary embolisms, miscarriage ...

hereditary spherocytosis

  • By chrissyblofeld · Posted August 1, 2012
  • 0 replies
  • my 5 month old son has inherited hs from his daddy, his has a serve case and has had to have 5 transfusions so far. was wondering how people cope :( x ...

nwas support

  • By nwas · New reply November 19, 2011
  • 2 replies
  • I have suffered from a rare auto immune condition and now set up a support group. Sufferers for henochschonleinpurpura. I am also, trying to set up a non for profit social enterprise in the community ...

What's wrong with my baby boy......

Amoma4 (Inactive)
  • By Amoma4 (Inactive) · New reply October 2, 2011
  • 2 replies
  • I am a mother of four beautiful children. My last baby boy, 2.5 yrs old has endured more than his fair share of medical problems. This includes surgeries, several hospitalizations and over a year of many ...

cryoglobulinemia vasculitis

  • By laughingnana · Posted July 31, 2011
  • 0 replies
  • Hi. Looking for anyone that has Cryoglobulinemia vasculitis. I would love to share, support and connect with you. blessings, laughingnana ...


  • By KPollard08 · New reply March 15, 2011
  • 1 reply
  • I have HES and have not been diagnosed with a cause. Looking for other HES patients...this seems to be a very rare condition because every DR I have dealt with so far seem to be ignorant ...

Myelodysplastic Syndrome

Sergeanthoney (Inactive)
  • By Sergeanthoney (Inactive) · Posted December 2, 2010
  • 0 replies
  • I was diagnosed with Myelodysplastic Syndrome (MDS) and Ideopathic Pulmonary Fibrosis in 2008. I'm interested in finding out if there's anybody else with same diagnosis and how they are handling situation ...


toomanyeos (Inactive)
  • By toomanyeos (Inactive) · Posted October 26, 2009
  • 0 replies
  • I was wondering if anyone here has been diagnosed with Eosinophilia or any of the related syndromes/diseases? I've had this abnormal finding in my lab work for years and have yet to find a doctor who ...


  • By cazza1961 · Posted July 18, 2009
  • 0 replies
  • Hi I am new to this site and my husband has ITP. I live in australia and as I said in a previous post we get all our health free. We dont have to be in a insurance fund, we can join a private one if we ...


  • By cazza1961 · New reply July 17, 2009
  • 2 replies
  • Hi I am new and I live in australia. I am looking for a site cause my husband has low platelets and needs his spleen taken out. I need to talk to people in the same boat as myself so we dont feel so alone ...

Anyone suffering with stoke aftermath due to clotting disorder??

  • By lorri64 · Posted January 2, 2009
  • 0 replies
  • Hi! I am new to the body challenge and this group and am interested in knowing if anyone has anti-phospholipid (anti-cardiolipin antibody) syndrome. I have suffered two stroke and have permanent paralysis ...

Things you can do

Discussion topics

Community leaders