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highest dose of iron supplements

  • By jane_doe · Posted January 27, 2014
  • In Treatment · 0 replies
  • I suffer from severe anemia. What is the highest dose of iron supplements one can take each day without overdosing. I have iron pills that are 325 Mg ferrous sulfate ...

Factor V Leiden

  • By slcs · New reply December 26, 2013
  • In Living with a blood disorder · 1 reply
  • I had my first blood clot when I was 21. I had just gotten on birth control for other health reasons. I had only been on them less than 2 weeks when I ended up in the ER with a DVT ➡PE. - No diagnosis ...

Blood Clot Bombshell

  • By cmankin · New reply October 21, 2013
  • In Newly diagnosed with a blood disorder · 7 replies
  • My son is 21 years old and was recently found to have a blood clot on his brain. We have also found out he has 2 blood clotting disorders. 1 being hereditary. I know nothing on blood clotting disorder ...

Low Platelets

  • By scootergirl44301 · Posted September 11, 2013
  • In Living with a blood disorder · 0 replies
  • I was to see my hematologist after being released from the hospital on 9/1. He informed me in a follow up appointment that my platelets are at 32000 and my WBC count was 2.3. With all of the knowledge ...



Hereditary Spherocytosis

  • By Mum-2-5 · Posted August 4, 2013
  • In Living with a blood disorder · 0 replies
  • I am a mum with HS and four of my five kids also have HS.... Are there any other families dealing with this blood disorder ..... It is rather interesting when you really research it ...

henoch schonlein purpura support

  • By henochschonleins · Posted May 18, 2013
  • In In the news · 0 replies
  • I am very interested in finding out what is going on in other countries. Anything to do with the above condition. Articles that I can put onto my website. Publicity, research, stories, please feel free ...

Diagnosis-Based Assistance

  • By Reruho · Posted February 13, 2013
  • In Living with a blood disorder · 0 replies
  • I receive the NeedyMeds newsletter. NeedyMeds is a 501(c)(3) non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and costs ...

upcoming surgery

  • By anyalock · New reply October 23, 2012
  • In Living with a blood disorder · 1 reply
  • I am going to have to have surgery soon. I have a prolapsed uterus with cystocele and rectocele that needs to be repaired. I had a pulmonary embolism a year ago, after a pain block, so the fact that I ...

Clotting Disorder Undiagnosed Looking for Others

  • By 2livenlearn · Posted October 21, 2012
  • In Living with a blood disorder · 0 replies
  • Hello, I am looking for others who similar symptoms and/or lab work to mine. I am looking for ideas and resources to deal with what I have. My medical history includes 2 pulomanary embolisms, miscarriage ...

hereditary spherocytosis

  • By chrissyblofeld · Posted August 1, 2012
  • In Living with a blood disorder · 0 replies
  • my 5 month old son has inherited hs from his daddy, his has a serve case and has had to have 5 transfusions so far. was wondering how people cope :( x ...

High haemoglobin count

  • By nornd · Posted March 22, 2012
  • In Newly diagnosed with a blood disorder · 0 replies
  • Hi everyone. I am 67 years old, slim, do plenty of excercise, eat minimal dairy and no red meat. I have just been diagnosed with a high haemoglobin count, called polycythaemia, I think. I still have to ...

February newsletter Cryoglobulinemia Vasculitis Org.

  • By laughingnana · Posted January 27, 2012
  • In In the news · 0 replies
  • Take a look at our February 2012 CVO Newsletter! f2e/ARCHIVE If you are not receiving these to your email address, it means I do not have you on our list. If you ...

sudden, excessive (gum) bleeding--what could that be?

  • By xbw · New reply December 30, 2011
  • In Symptoms · 2 replies
  • Hi, I'm a 36 yr-old female, generally healthy in the past. Recently, I had two episodes of excessive bleeding in mouth which did not stop easily. (They started the 2nd night during my menstruation period ...

Pernicious Anemia

  • By suerosa · Posted December 24, 2011
  • In Newly diagnosed with a blood disorder · 0 replies
  • Is this the group where I would go to hear from others with Pernicious Anemia. I have been told it's an Autoimmune disorder, as well as blood disorder. I'm not finding many who have this. Help? Thanks ...

Hypo Gamma immunglobinimea

  • By smeraz43 · New reply December 21, 2011
  • In Newly diagnosed with a blood disorder · 1 reply
  • My 14 year old daughter was just diagnosed with this in November of this year,we just had her first IVIG this past Friday december 16th....Has anybodY else have or heard of this???all info welcomed....smeraz43 ...

Velcade 3rd round of Chemo Drugs.

  • By laughingnana · Posted November 21, 2011
  • In Treatment · 0 replies
  • Hi Friends, I have Cryoglobulinemia Vasculitis and my doctor is suggesting a new chemo drug Valcade. Does anyone know anything about this drug? I do know that it is used for Multiple Myeloma. I've looked ...

nwas support

  • By nwas · New reply November 19, 2011
  • In Living with a blood disorder · 2 replies
  • I have suffered from a rare auto immune condition and now set up a support group. Sufferers for henochschonleinpurpura. I am also, trying to set up a non for profit social enterprise in the community ...


Rainpebble (Inactive)
  • By Rainpebble (Inactive) · Posted November 3, 2011
  • In Living with a lymphatic disorder · 0 replies
  • Please follow the link below and sign my petition for sarc research and awareness. ...

What's wrong with my baby boy......

Amoma4 (Inactive)
  • By Amoma4 (Inactive) · New reply October 2, 2011
  • In Living with a blood disorder · 2 replies
  • I am a mother of four beautiful children. My last baby boy, 2.5 yrs old has endured more than his fair share of medical problems. This includes surgeries, several hospitalizations and over a year of many ...

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