Active posts

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

"A rare cancer survivor’s journey to thriving and advocating"

John2
  • By John2 · Posted February 12, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 2/12/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog, "A rare ...

Interstim has moved

Janiejanie
  • By Janiejanie · New reply February 11, 2014
  • Discussion in Symptoms · 6 replies
  • I had an interstim implant about 6 months ago. I had to have a second surgery because one of the leads came undone. I recently noticed that the site of the implant was bigger and had changed shape. Was ...

Little things we do for each other matter. Pay it forward.

Katuha
  • By Katuha · New reply February 10, 2014
  • Journal · 12 replies
  • http://biggeekdad.com/2012/01/pay-it-for ward ...

Bladder Cancer?!?!

DHGIRLWKU
  • By DHGIRLWKU · Posted February 8, 2014
  • Discussion in Symptoms · 0 replies
  • I have Lupus. I was diagnosed about a year ago. A lot has happened since and before that diagnoses. Anyway, recently I was put on Metheltrexate. One week later I developed a UTI (I went to Urgent Care ...

No more IC using remedys

GoodByeNf (Inactive)
  • By GoodByeNf (Inactive) · Posted February 8, 2014
  • Discussion in Living with a bladder disease · 0 replies
  • So I originally was on this being we have NF and I started remedy's and I no longer have IC. So what I wanted to post was our body's have disease due to toxins. Sugar milk and meat create this. What I ...

What is the definition of success?

Katuha
  • By Katuha · New reply February 6, 2014
  • Journal · 7 replies
  • Saving another. Giving of oneself. Positively affecting the lives of others. A life well-lived. Success. http://www.upworthy.com/watch-a-man-who- saved-669-children-from-death-camps-get- a-tearful-surprise-on-tv ...

A Sandpiper To Bring You Joy

Katuha
  • By Katuha · New reply February 5, 2014
  • Journal · 18 replies
  • The Sandpiper by Robert Peterson (A true story) She was six years old when I first met her on the beach near where I live. I drive to this beach, a distance of three or four miles, whenever the world ...

bladder leaking

crazybird12
  • By crazybird12 · New reply January 31, 2014
  • Discussion in Living with a bladder disease · 2 replies
  • Hi had anybody have this problem and what is the treatment I have an appointment in march pleas help what happens at the appointment ...

1 yr old boy w/hydrocef/spina bifida/neurogenic bladder-where do i begin?

momofoz
  • By momofoz · New reply January 28, 2014
  • Journal · 2 replies
  • Hi it's my first time to join the group. My heart is really broken to my grandson. I am the only one who's taking care of him. At the moment he's totally dependent to me, he's abandoned .Dec 1 2013 ,he ...

A cure for the common headache that always works.

Katuha
  • By Katuha · New reply January 26, 2014
  • Journal · 5 replies
  • One treatment and you'll never want the treatment again. https://www.facebook.com/photo.php?v=645 972798762208&set=vb.639258229433665&type =2&theater ...

Ode to forgetfulness

Katuha
  • By Katuha · New reply January 20, 2014
  • Journal · 12 replies
  • http://biggeekdad.com/2012/01/the-rememb er-song ...

ADVICE FOR BAG GUYS (and Gals) WHEN USING A MEN’S ROOM URINAL

Katuha
  • By Katuha · New reply January 20, 2014
  • Journal · 20 replies
  • I offer some advice. Do not talk to other people while they're peeing. Standing over a urinal is like being in church only with no one talking or leading the procedure. It's customarily a quiet, reverent ...

It's got a hold of my Soul..no where to go.

LVA69
  • By LVA69 · New reply January 17, 2014
  • Journal · 19 replies
  • I have been suffering from Bowel incontinence for 2+ years. Have tried Biofeedback PT, have the Interstim and it is not working as well as I had hoped. I just want to know from others how do you deal ...

First time on here

dont4getme
  • By dont4getme · Posted January 17, 2014
  • Journal · 0 replies
  • Hi I am 47 years old, female and I was diagnosed with bladder cancer on March 13th, 2013. I had two TURBT in April and then again in May. They were trying to stage my cancer and found they didn't have ...

When to return to work after a RC?

dont4getme
  • By dont4getme · Posted January 17, 2014
  • Discussion in Living with a bladder disease · 0 replies
  • I am 47 yrs old female, I had my bladder removed on Sept 4th, 2013. Due to complications I remained in hospital until near the end of Oct. At what point do you consider going back to work? I am still ...

Interstim Procedure: Opinions Please!

Poised
  • By Poised · New reply January 17, 2014
  • Discussion in Treatment · 24 replies
  • I am scheduled for an Interstim this week -- the permanent one -- but after reading all of the problems reported including nerve damage, restless leg syndrome, pain, scarring, ineffective, etc... I am ...

Caffeine: "A bladder's worse enemy?"

synthia
  • By synthia · New reply January 16, 2014
  • Discussion in Living with a bladder disease · 11 replies
  • I have had several doctors tell me I HAVE to give up caffeine 100% or my bladder pain, probably due to IC will not go away. It's at the top of the IC diet list of what NOT to eat, I'm having such a hard ...

Lost sensation in my bladder! Help

swollest
  • By swollest · Posted January 15, 2014
  • Discussion in Symptoms · 0 replies
  • About one month ago I woke up I felt no sensation in my bladder, I have to sit on the toilet for 5 minutes trying to make myself go. I went to the urologist he checked my prostrate which was normal then ...

Interstim that didn't work for your bladder

BAMG
  • By BAMG · New reply January 13, 2014
  • Discussion in Living with a bladder disease · 7 replies
  • I would like to know if anyone around Green Bay, WI had a interstim removed because it didn't work, and you are having pain from having it removed or pain when you had it ...

Things you can do

Discussion topics

Community leaders