Active discussions


  • By ChrisNes · New reply December 3, 2012
  • In In the news · 1 reply
  • Hi, I have had several operations I had POP in 2002. My urethra had to be put in a sling. In 2004 the doctor who put in my sling said it had failed. I have had 2 law firms look at my case. I have been ...

Interstitial cystitis?

  • By nanabanana · New reply November 28, 2012
  • In Symptoms · 1 reply
  • Hi, I'm new to this group. My doctor thinks I most likely have IC. I've been having chronic pelvic pain for two years now. Along with this, I've had some hormone problems. At first the doctor thought ...

I need Help

  • By Tstepp · New reply November 20, 2012
  • In Treatment · 2 replies
  • Hi. I am not sure if you all kn ow my situation or not so I am going to fill you in first. I am 27, with two small children (3 &9) and I have chronic kidney infections, kidney stones, and a neurogenic ...

New Interstim Implant

  • By JagLbotts · New reply November 16, 2012
  • In Living with a bladder disease · 9 replies
  • Had my device implanted wk ago today. Last night I noticed my legs felt kind of weak and shaky. Then my legs started feeling achy and couldn't hardly touch them against each other like nerves felt irritated ...


  • By HarleyWife46 · New reply November 12, 2012
  • In Living with a bladder disease · 42 replies
  • I guess my topic says it all. I love it! I have had it in a week now, and have had to make a few adjustments to my device. a few reprogramming adjustment. I have had to up it at night. that is one thing ...

IC and Pain


Inteerstim Therapy

  • By rpam · New reply October 27, 2012
  • In Treatment · 25 replies
  • Has anyone out there had a procedure called Interstim Therapy for urinary retention. If so, what has been your experience with this implant ...

Overactive Bladder and Interstim

  • By weallneedhugs · New reply October 23, 2012
  • In Living with a bladder disease · 15 replies
  • Have neurogenic bladder from polio and considering Interstim. See many with retention but not in continence. Anyone have this ? So many bad reports with pain I am afraid. Comments welcome by all!! Linda ...

Just saying hello

  • By monroefayte · Posted October 23, 2012
  • In Family and friends · 0 replies
  • Just saying hello. I'm new here hoping I can get some advice and learn some more. Also my 6 year old son suffers from the same hyper calcium disease I have and constant urination and will gladly accept ...

Multiple Sclerosis Bladder retention

  • By 1936siol · New reply October 20, 2012
  • In Living with a bladder disease · 3 replies
  • Many years ago I developed Multiple Sclerosis. Almost immediately I started having to use them bathroom every hour which has continued for years. Several months ago I was unable to urinate at all. I was ...

Interstim Research Study

  • By Lori-Cee · New reply October 20, 2012
  • In Living with a bladder disease · 37 replies
  • I got a letter in the mail from University of Alabama Birmingham Women's Pelvic medicine. They are doing a quality of life with Interstim study. Some of the questions are very similar to the problems ...

New and looking for support

  • By msm8358 · New reply October 4, 2012
  • In Living with a bladder disease · 6 replies
  • Hi all, I have neurogenic bladder caused by a botched tot 5 years ago. After several surgeries and numerous hospitalizations, I still have to cath every 45 minutes to an hour. No one seems to be able ...

Blood in urine

  • By 4slowgirl · New reply October 3, 2012
  • In Symptoms · 2 replies
  • I have been on Plavix and asprin for 3 years now, following a heart attack. I have, on occasion, had microscopic blood in my urine and had all the tests--can't find anything wrong. This last year I now ...

Carol W.

  • By carolnamak · New reply September 18, 2012
  • In Living with a bladder disease · 13 replies
  • My heart goes out to anyone who's experienced problems because of either bladder retention OR the Interstim device that was supposed to help them. A dear friend of mine had the Medtronic Interstim device ...

Neurogenic bladder and Inter-Stim

  • By orient8195 · New reply September 3, 2012
  • In Living with a bladder disease · 2 replies
  • Hi- I have hip surgery on 6/20/12 and post operatively, my bladder seemed to quit and I've been self-catherizing 4X daily since and I must tell you, it hurts every time even though I'm down to a 10F using ...

InterStim Can Work

RockabyeBailey (Inactive)
  • By RockabyeBailey (Inactive) · New reply August 30, 2012
  • In Treatment · 15 replies
  • Recently there have been several posts from people who have stated they were scared out of trying InterStim after reading all the horror stories some people have had. I do not dispute that there are many ...

Allergic reaction to interstim leads?

  • By HopeR · New reply August 27, 2012
  • In Symptoms · 3 replies
  • Hi everyone, Has anyone else had an allergic reaction to the metal in the leads? If so, how did you treat it? I've tried cortisone cream, but it didn't really help. Yesterday, I noticed I had a rash all ...

Pain after interstim insertion?

  • By sabrina21 · New reply August 27, 2012
  • In Symptoms · 4 replies
  • I am writing to ask if there are anybody who has/is suffering pain after the insertion of the interstim device? I know it really has helped many on this site. I have been in pain since insertion which ...

Male urinary retention and interstim

  • By Mouky · New reply August 27, 2012
  • In Living with a bladder disease · 2 replies
  • Hello, i am a 42 year old healthy and active male with a history of severe urinary retention. I have used atheters for seven years on average 3 to 6 times a day. Ii have also had interstim implanted a ...


  • By Sherry36 · New reply August 26, 2012
  • In Treatment · 6 replies
  • I had the permanent pacemaker put in yesterday. I've got two incisions & I'm very sore! Still going to the restroom a lot,not as much as I did. Dr wants me back in this week 2 reprogram it. Was just curious ...

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