Living with metastatic bladder cancer

Guidance and support for those with metastatic bladder cancer.


Mom sent to nursing facility, given weeks to live

  • By helenann2k · New reply July 8, 2012
  • 4 replies
  • Hi All. Hospital said Mom had to leave, nothing left for them to do. I was forced to pick a nursing home within a day. Hospice did not work out. The person who came to talk to us was nasty, didn't want ...

Loking for any and all input

  • By Riegle · New reply June 29, 2012
  • 16 replies
  • I am a 62 year old male( as of June 30). I was dianosed as having Stage 4 Bladder Cancer, i have been through 4 chemo treatments so far. I lost 30 lbs the 1st 2 weeks while in hospital, went from 160lbs ...

Expectations of Chemotharapy

  • By 29192919 · New reply June 19, 2012
  • 6 replies
  • My Father 77 had RC in sept 2011 T3 no node involvement. He initially got better but began hurting in the pelvic region in January. Doc ran CT scan and said everything was clear. He went back to doc a ...

Palliative radiation therapy?

  • By Rhienne · New reply June 19, 2012
  • 5 replies
  • Hi everyone, I posted on here a while ago when my step-father was diagnosed with bladder cancer which had metastised to his lymph system, bones and liver, in October. He underwent palliative chemotherapy ...

It's Back!!!!

  • By FurMom · New reply June 17, 2012
  • 15 replies
  • Hi...pretty new to this site. Had RC with Indiana Pouch 5/09 and all had been well. Had an MRI recently and found out I have 7 lymph nodes throughout pelvis with small lesions. Start chemo Monday. 16 ...

Chemo treatments. How many are necessary?

  • By 29192919 · New reply June 13, 2012
  • 6 replies
  • My Father has been on a combination Chemo treatment every two weeks. He was due for his 6th one today but couldn’t due to low platelets and high white blood counts. This was to be the last one and then ...


  • By cyclingfit · New reply June 11, 2012
  • 14 replies
  • My MDA news wasn't as wonderful as other's as my CT showed some of the lung mets gone, some disintegrating and some doing nothing at all. My bladder is stable though, which is not the usual reaction to ...


  • By WOLFLADY · New reply June 8, 2012
  • 3 replies
  • David starts on his clinical trial of Taxol and Everolimos on Monday.We pray it works..if so he will be on the regime for the rest of his life. Any one out there on a chemo program "forever" I think the ...

Metastatic or New Cancer?

  • By Fitz · New reply June 6, 2012
  • 5 replies
  • An Update: On 5/15, the Lung surgeon did a "wedge resection" and I was told that the nodule in my lung was the same cancer I had in the bladder - Urothelial (Transistional) Cell. No other "C" appears ...

Which oncologist at Sloan Kettering?

  • By newsie · New reply June 6, 2012
  • 6 replies
  • Plenty of recommendations on surgeons, but what about oncologists at Sloan to treat bladder cancer? Thanks ...

And So We Chemo, Yet Again

  • By cejayem · New reply June 4, 2012
  • 20 replies
  • Back to the chemo regime after a bout with intestinal blockage and a week or so in hospital. Apparently the tumour is creating a partial block in the small intestine and I am now on a low residue diet ...


  • By gemini66 · New reply May 30, 2012
  • 20 replies
  • My dad, Robert Wayne Parker passed away Friday, May 18th at Sacred Heart Hospital in Pensacola, Florida. He was diagnosed with Bladder Cancer in December 2011. He was unable to tolerate continued chemotherapy ...

Carboplatin vs Cisplatin?

  • By newsie · New reply May 29, 2012
  • 16 replies
  • After first Cis/Gem dose, DH's creatinine level went from 1.2 to 2.6. Consequently he missed second Gem dose. Level has come down to 2.4. But now doc is saying she wants to switch to to Carboplatin. Is ...

RC if lymph nodes are involved?

  • By newsie · New reply May 29, 2012
  • 20 replies
  • I've been reading past posts which say doctors will not do an RC if the cancer has spread to the lymph nodes. Is that generally the case-- meaning that chemo is the only option? That would mean the treatment ...

Tremors in hands?

  • By Shine0n · New reply May 22, 2012
  • 5 replies
  • Mark's health has been declining rapidly after his last intestinal bypass surgery. While he recovered, and is home now, he is getting weaker and weaker as this disease progresses. His recent symptom is ...

Gone aggressive/invasive

  • By spoon61 · New reply May 16, 2012
  • 9 replies
  • I got the BCG's 12 total. Was doing well. Between my 2nd and third cyctoscopes a 3/4 in tumer developed that penetrated my bladder and the surrounding muscle tissue. There is also indications that it ...

Golf with Power Port??

  • By turbo2452 · New reply May 13, 2012
  • 8 replies
  • I recently had a power port installed for chemo, works great. I would also like to start playing a little golf now that my chemo is over and I start feeling better. Question, am I OK to play golf with ...

Good/Bad/Good Day for Calypsois

  • By calypsois · New reply May 12, 2012
  • 22 replies
  • The Good: Yesterday I had my CT Scans and met with my Ocologist after and . . . all good! Big sigh of relief. Why do docs do this to us . . . doc came in . . . starts talking, talking . . . excuse me ...

Chemotharapy stage IV

  • By 29192919 · New reply May 9, 2012
  • 4 replies
  • My father age 77 was diagnosed with Bladder cancer in July 2011. Doctors kept underestimating the diagnosis and performed 3 cystos. Finally had RC in Sept 2011 with T3 no node involvement. Was doing fairly ...

no treatment...

  • By ange916 · New reply May 5, 2012
  • 18 replies
  • Hi, My neighbour is 44 and was diagnosed with agresive bladdder cance just under 12 months ago. he had his bladder, prostate, urethra and some of his colon removed. has been having tests every 3 month ...

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