Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.


Alternative Diagnostic tools

  • By hotsauce2013 · Posted January 11, 2014
  • 0 replies
  • Hi, Has anyone had a CXbladder test done so far? Thoughts on the accuracy of it and etc. Many thanks ...

BC in St. Louis

  • By Maizy · New reply January 10, 2014
  • 5 replies
  • This is my first time "speaking", but I'm hoping to hear from anyone in the St. Louis area that has seen Dr. Grubb from Washington University. I have an apt with him on the 13th as a second opinion. I've ...

1st Recurrence Ta G1 Cancer Protocol

  • By RhymingChas · New reply January 9, 2014
  • 1 reply
  • Hi. I just completed by first cystoscopy after having a TURBT for a small Ta G1 tumor on September 2nd and a new lesion (<.5 cm) appeared. After my first TURBT, I was treated with intra-bladder chemo ...

Sore and bitchy...

  • By blackbarn2 · New reply January 8, 2014
  • 19 replies
  • That just about sums it up..sore and bitchy!! Finished the BCG's finally, so now it's time for the after burn to start. I hurt...I hurt when I walk or when I'm just sitting and I'm having a bit of bloody ...

Go tommorrow recheck

  • By zippy3 · New reply January 8, 2014
  • 6 replies
  • Ok its starting,lump in throat nerves ugh im a nurse and the day before scope im crazy nervous.I have had two clear and praying number three is tommorrow. No real bad problems still burn and some discomfort.please ...

Cysto January 20

  • By pcbcamping2012 · New reply January 7, 2014
  • 5 replies
  • I've been missing ALL of you. Been busy getting new job and trying to stay warm. Just wanted to drop in and show some love. I have my next cysto January 20. I kept cancelling my October cysto until NOW ...

Another all clear!!!!

  • By Escout · New reply January 7, 2014
  • 20 replies
  • Hi Everyone As an encouragement to you all, let me tell you that after 2 1/2 years I just got another all clear!!! My Uro said if he didn't know I had bladder cancer he would never be able to tell. Praise ...

Doc Prescribed Pyridium

  • By DFWlarry · New reply January 7, 2014
  • 3 replies
  • I called my Uro-Oncologist today to give me something for these bladder spasms I'm still having, 4 weeks out from my TURBT, and prior to my upcoming BCG treatments on 1/14. He prescribed Pyridium. But ...

OK, saw a Uro's BILLBOARD leaving Dallas, TX area on Hwy 75

  • By ReadyToBeSoAlive · New reply January 6, 2014
  • 6 replies
  • I think it was 'cutting it a little close' when the billboard showcases a Uro's "expertise in DaVinci" robotic surgery. They could have emphasized expert cystoscopies and prostate exams.. but maybe robotic ...

Uh Oh!

  • By blackbarn2 · New reply January 6, 2014
  • 4 replies
  • I've got to quit carrying my g grandson around..trying to heal from the BCG and after he goes home I start having spasms and blood in my urine. I know, I know...quit lifting ...

Blood in urine

  • By hypnotist · New reply January 4, 2014
  • 2 replies
  • My husband had a turbt Dec 11 and now has 1 drop of blood at end of voiding. Is this something to be concerned with? Will it interfere with his bcg treatment scheduled for Jan. 30 ...

Can't Do This Anymore!

  • By Kat234 · New reply January 4, 2014
  • 42 replies
  • Had my 6th BCG treatment today! Thought this was hopefully the end of this miserable stuff! I say "miserable" because that is exactly what it has been! Painful burning, bleeding, spasms, fatique, chills ...

Almost two months post RC

  • By Shibbie70 · New reply January 2, 2014
  • 6 replies
  • Hi all. I haven't posted since long before my surgery, but reading the post from KAT234 made me want to give an update. I was diagnosed with TaG3 in February of 2012. I used a local urologist here in ...

2nd Cysto Post BCG/Curcumin/Celebrex

  • By Dnwlkr · New reply December 31, 2013
  • 7 replies
  • Had my 2nd Cysto since the 6 BCG and starting Curcumin and Celebrex yesterday. Uro found a 4 mm lesion he says could be a Polyp. With the holidays I won't find out till a week from Monday what the pathologist ...

portland, oregon urology advice

  • By littlebutfierce · New reply December 31, 2013
  • 7 replies
  • My husband was diagnosed with low grade non invasive bc in may 2013. He had a TURBT in may removing one tumor and biopsy bladder wall- all biopsies clear. Upon his first quarterly follow up cysto they ...


  • By blackbarn2 · New reply December 23, 2013
  • 14 replies
  • Well I went for my 1st installment of BCG, (round 2) which is about a 40 minute ride back home. Had a spasm on the front porch before I could get in the house and lost it. Now what? I called the center ...

Should I be worried

  • By Pkh1960 · New reply December 23, 2013
  • 26 replies
  • My husband was diagnosed in May 2012 with LO grade, non-invasive bladder cancer. He has had two TUR since then, but the biopsies taken on those visits were negative for cancer. A few weeks ago he had ...

BCG Back to Full Strength?

  • By callen25 · New reply December 23, 2013
  • 3 replies
  • My husband is getting ready to start is fifth round of BCG maintenance. For the last 2 the doctor reduced him to 1/3 dose due to bleeding, spasms, and burning. He gets BCG every 6 months now, but the ...

Not Getting Daily Digest

  • By NC_Karen · New reply December 22, 2013
  • 6 replies
  • All of a sudden not getting the daily update. Checked my settings. I should be. Does anyone know how to fix this? Merry Christmas to all. Karen ...


  • By blackbarn2 · New reply December 22, 2013
  • 19 replies

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