Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.


After affects BCG+interferon

  • By UncleJake · New reply March 6, 2014
  • 9 replies
  • I had a tumor removed a little over year ago with 6 weeks BCG. All went well until almost a year and noticed small blood clot in urine 30 days before yearly (4th) scope last December. Doc found a small ...

TAG3 1st biopsy results!

  • By k21eyes · New reply March 3, 2014
  • 7 replies
  • DX'd in November with TAG3 non-invasive papillary cancer. Had turbt. followed w/ miytomycin. 2 days later had a 6.5 pound ovarian cyst removed and a total hysterectomy. Did 6 weeks BCG ( skipped one week ...

Good news is relative to your situation

  • By vgau · New reply March 2, 2014
  • 12 replies
  • Had my 3 month check up this week and we found a new tumor. Tumor was removed and biopsy has been sent in. My first reaction was to start my 3 month pity party. Why does it keep coming back? What could ...

Flushing mucus from neo bladder

  • By Takeshi · New reply March 1, 2014
  • 5 replies
  • First of all I want thanks you all sharing and caring my question. I would like to ask, actually how often I have to flush out my mucus from my neo bladder? If I am doing more..does it help ...

Medicare MAGI charge

  • By Whinny2 · New reply February 27, 2014
  • 27 replies
  • My husband and I each got a letter recently from Social Security. Last year we each paid a little over $100 per month for our Part B premiums so it was about $200 per month for both of us. This year there ...


  • By sochi2014 · New reply February 27, 2014
  • 1 reply
  • Thanks to everyone that gave me info on Azo. We will go out and take a look at it. Anything that will help. Hope all is well with all of you, and taking one day at a time ...

Re: bladder reconstruction

  • By Takeshi · New reply February 26, 2014
  • 6 replies
  • I'm having a neo bladder around 3 weeks. Actually how it takes to remove my catheter ...

Newly diagnosed

  • By jillian_ortega · New reply February 26, 2014
  • 7 replies
  • My name is Jillian Ortega. I just turned 20 on January 31, on October 4, 2013 I was diagnosed with noninvasive bladder cancer. I have honestly lost count on how many people and doctors have told me how ...

Celebrex & Curcumin Not Working For Me

  • By Dnwlkr · New reply February 24, 2014
  • 9 replies
  • I had a Cysto in January 3rd to get a deeper biopsy and check everything out. I just had another cysto on Monday as part of a second opinion. I was awake for this one and watched it on the TV. I counted ...


  • By Slicer40 · New reply February 24, 2014
  • 5 replies
  • My pathlogy report said ...bladder tumor transurethral resection:low grade papillary urothelial carcinoma,noninvasive..,z I have my first recheck coming on March 14thmy question is should I have had chemotherapy ...

Looking for a physician

  • By Scbythesea · New reply February 22, 2014
  • 9 replies
  • My husband has high grade Ta and TIS. He had a TURBC last may, 2013. He has had continuing treatments with BCG and so far, doing well. I'm not happy with his physician and the office. They do not seem ...

BCG w/ Interferon

  • By buzz88 · New reply February 22, 2014
  • 8 replies
  • Hi everyone, This type of forum is totally new to me so forgive me if I become a bore or don't express myself quite right. I am starting BCG with Interferon soon and wanted to get the "cons" to this treatment ...

Urologist In Mexico

  • By Landslide_Larry · Posted February 20, 2014
  • 0 replies
  • Going to be in Mexico for 6 months and will need to find a urologist for my 3 month cysto. Any recommendations in Patzcuaro and?or Morelia ...

Slight Bladder Pain after BCG

  • By DFWlarry · New reply February 19, 2014
  • 6 replies
  • I had my 5th BCG treatment today. Had a large area of CIS removed in Dec. (DX G3T1 w/CIS) so my bladder was pretty torn up from all the scrapping. I have had none of the usual side effects of BCG to date ...

And you wondered about smoking and bladder cancer?

  • By HLamb88937 · New reply February 19, 2014
  • 25 replies
  • There have recently been posts about doubting the effects of smoking and bladder cancer. This article is a real eye opener. I had smoked for 40 years, sometime light, sometimes not so light... And I sure ...

Introducing myself

  • By Ellie48 · New reply February 19, 2014
  • 8 replies
  • Hi, I'm Ellie, I'm 65 and have been living with BC for ten years. I have had many Turbts, and am a BCG and Mitomycin failure. I will now be joining the "bag" lady club. I've been to Sloan and saw Dr ...

Encouragement and blessings

  • By blackbarn2 · New reply February 18, 2014
  • 10 replies
  • Okay, here's one for those who are fellow horseback riders....which diversion did you choose? Just wondering which would work the best for this sport that I'm not likely to give up...ever!! Oh, and thank ...

best BC urologist in NZ?

  • By fish4ever · New reply February 15, 2014
  • 7 replies
  • Hi. Just on teh off-chance there is someone here from New Zealand who has or has had BC. & how you found your treatment, who you went to etc. We want to see, & are prepared to mortgage the house if need ...

Reduction of damage by smoke: Curcumin + Celebrex

  • By HLamb88937 · Posted February 15, 2014
  • 0 replies
  • Another article on the effects of smoking but the the combination of cucumin and Celebrex have a chemo-protective effect. 891 ...

Coming out party??

  • By blackbarn2 · New reply February 15, 2014
  • 20 replies
  • Dr. Lee ( U of M) and I have decided that the time has come to remove the bladder..I am a BCG failure, just can't tolerate the treatments. So we're on the way..had iodine contrast yesterday and hopefully ...

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