Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.


3 years out

  • By leslem · New reply February 27, 2013
  • 8 replies
  • April is 3 years with no recurrance of T1/HG....still worried..a lot..anyone else in same arena ...

Alternatives to BCG as I am intoleraent to BCG

  • By HLamb88937 · New reply February 25, 2013
  • 9 replies
  • I think that uro's should test people for the gene HLA B 27. It is not uncommon. The BCG cleared my CIS but because I have that gene it gave me Reiters Syndome which resulted in Uveitis of my left eye ...

Morning Prayer

  • By gk105 · New reply February 24, 2013
  • 8 replies
  • Father ..…. “Make my roots deep And my knowledge Of your trustworthiness Unshakable. I travel well In the warm sunshine. Dear God, make me A better rough weather traveler. “ ……..Everyday Strength, Randy ...

Low grade Ta clear at 15 months

  • By HeidiWA · New reply February 24, 2013
  • 11 replies
  • Hi, everyone...I want to share my good news and perhaps help encourage others with low grade Ta. I was diagnosed last September, had a clear 3-month cystoscopy, and then went to 6 months. Going to 6 months ...

No Happy Dance Yet

  • By Maggrits · New reply February 24, 2013
  • 8 replies
  • Went for Cysto today, the one I've been stressing out about for sometime. I was having the feeling that the results this time would be different and they were. My Uro found an irritated area at the top ...

Cysto Anxiety ????

  • By Maggrits · New reply February 24, 2013
  • 17 replies
  • I am wondering if there is anyone out there...that lives cysto to cysto? I, myself have been looking forward to the "Cysto Day." It seems that the closer I get to it, the more I long for it. Just wanting ...

4th BCG Treatment

  • By BamaJudi · New reply February 23, 2013
  • 2 replies
  • Had my 4th BCG treatment on Thursday. It went well, other than the fact that the BCG wasn't ready when the RN went down to pick it up at the pharmacy. The way it works at UAB is that after the urinalysis ...

DSMO Cocktail

  • By bmathews9744 · New reply February 21, 2013
  • 1 reply
  • Has anyone heard of using DSMO cocktails for bladder burning ...

Negative biopsy - Time for the Happy Dance

  • By mchar · New reply February 19, 2013
  • 5 replies
  • Got good news yesterday. Had red spot after cysto and 6 weeks of BCG treatment, and biopsy was negative for cancer. After much celebrating last nigth and now that I am cancer free I have to continue living ...

BCG Maintenance Schedule

  • By callen25 · New reply February 19, 2013
  • 10 replies
  • My husband just completed the 6 week induction round of BCG and should start maintenance in about 7 weeks. Before he was diagnosed with BC 3 months ago, we had booked a family cruise that will leave later ...

concerned about right side kidney pain

  • By zippy3 · New reply February 19, 2013
  • 5 replies
  • Just had Ct scan for kidney mass.had biopsy no cancer.Problem is I'm having pain on opposite side.biopsy on left kidney pain on right .I have had. A Ct scan it showed nothing.I read so much about areas ...

How long have you gone without a recurrence?

  • By Angela5 · New reply February 19, 2013
  • 46 replies
  • I have never gone longer then 3 years. Just curious how long the people in the community here went without a recurrence ...

Post BCG Granuloma or Tumor?

  • By lvwillis · New reply February 18, 2013
  • 5 replies
  • My husband just had his Post BCG Cysto and there was one spot that the Doc identified as a possible small tumor or a granuloma; 50/50 as to which it is. Has anyone had experience with this? What was the ...

BCG Treatments

  • By BamaJudi · New reply February 15, 2013
  • 3 replies
  • I had my 3rd BCG treatment today and it went well. I did have some burning, a low back ache and a headache which I didn't have with the other two, but nothing severe. A couple of ibuprofin fixed it up ...

BCG side effects

  • By BamaJudi · New reply February 12, 2013
  • 4 replies
  • When I had my first BCG, I had no side effects the same day as the treatment. However, I got the body aches and dizziness (vertigo) the day after. With my second, which was Thursday, I didn't have those ...

Bladder Cancer

  • By Newmanbac · New reply February 9, 2013
  • 22 replies
  • Newmanbac Hello all sufferers of this worrying disease ... I was diagnosed with this condition 'Superficial Bladder Cancer' High Grade T1 on December 20th. 2010. following Gross Hematuria (Visible red ...

2nd BCG

  • By BamaJudi · New reply February 9, 2013
  • 4 replies
  • Well, I had my 2nd BCG treatment yesterday. It went very well. I actually have less body aches than I did with the first one. I did my turns then fell asleep so actually held it in for about 3 hours ...

Kidney Stones / Bladder Cancer

  • By bmathews9744 · New reply February 8, 2013
  • 3 replies
  • I have been cancer free for two years now and recently developed kidney stones. I have had two attacks now and at first thought I had a horrible UTI. I found out that I have a very high amount of uric ...

3rd Cysto and all clear

  • By eilujg · New reply February 8, 2013
  • 2 replies
  • Hello Everyone, Just to share information with anyone who is interested. I had my 3rd cysto after having the cancer removed and had another all clear. It will be a year since the tumor was removed in ...

2nd BCG tomorrow

  • By BamaJudi · New reply February 8, 2013
  • 4 replies
  • Well, my uro said it's going to be okay to have my second BCG tomorrow. So I'm at my son's house now and will be going to UAB tomorrow for my treatment ...

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