Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.


4th BCG Treatment

  • By BamaJudi · New reply February 23, 2013
  • 2 replies
  • Had my 4th BCG treatment on Thursday. It went well, other than the fact that the BCG wasn't ready when the RN went down to pick it up at the pharmacy. The way it works at UAB is that after the urinalysis ...

DSMO Cocktail

  • By bmathews9744 · New reply February 21, 2013
  • 1 reply
  • Has anyone heard of using DSMO cocktails for bladder burning ...

Negative biopsy - Time for the Happy Dance

  • By mchar · New reply February 19, 2013
  • 5 replies
  • Got good news yesterday. Had red spot after cysto and 6 weeks of BCG treatment, and biopsy was negative for cancer. After much celebrating last nigth and now that I am cancer free I have to continue living ...

BCG Maintenance Schedule

  • By callen25 · New reply February 19, 2013
  • 10 replies
  • My husband just completed the 6 week induction round of BCG and should start maintenance in about 7 weeks. Before he was diagnosed with BC 3 months ago, we had booked a family cruise that will leave later ...

concerned about right side kidney pain

  • By zippy3 · New reply February 19, 2013
  • 5 replies
  • Just had Ct scan for kidney mass.had biopsy no cancer.Problem is I'm having pain on opposite side.biopsy on left kidney pain on right .I have had. A Ct scan it showed nothing.I read so much about areas ...

How long have you gone without a recurrence?

  • By Angela5 · New reply February 19, 2013
  • 46 replies
  • I have never gone longer then 3 years. Just curious how long the people in the community here went without a recurrence ...

Post BCG Granuloma or Tumor?

  • By lvwillis · New reply February 18, 2013
  • 5 replies
  • My husband just had his Post BCG Cysto and there was one spot that the Doc identified as a possible small tumor or a granuloma; 50/50 as to which it is. Has anyone had experience with this? What was the ...

BCG Treatments

  • By BamaJudi · New reply February 15, 2013
  • 3 replies
  • I had my 3rd BCG treatment today and it went well. I did have some burning, a low back ache and a headache which I didn't have with the other two, but nothing severe. A couple of ibuprofin fixed it up ...

BCG side effects

  • By BamaJudi · New reply February 12, 2013
  • 4 replies
  • When I had my first BCG, I had no side effects the same day as the treatment. However, I got the body aches and dizziness (vertigo) the day after. With my second, which was Thursday, I didn't have those ...

Bladder Cancer

  • By Newmanbac · New reply February 9, 2013
  • 22 replies
  • Newmanbac Hello all sufferers of this worrying disease ... I was diagnosed with this condition 'Superficial Bladder Cancer' High Grade T1 on December 20th. 2010. following Gross Hematuria (Visible red ...

2nd BCG

  • By BamaJudi · New reply February 9, 2013
  • 4 replies
  • Well, I had my 2nd BCG treatment yesterday. It went very well. I actually have less body aches than I did with the first one. I did my turns then fell asleep so actually held it in for about 3 hours ...

Kidney Stones / Bladder Cancer

  • By bmathews9744 · New reply February 8, 2013
  • 3 replies
  • I have been cancer free for two years now and recently developed kidney stones. I have had two attacks now and at first thought I had a horrible UTI. I found out that I have a very high amount of uric ...

3rd Cysto and all clear

  • By eilujg · New reply February 8, 2013
  • 2 replies
  • Hello Everyone, Just to share information with anyone who is interested. I had my 3rd cysto after having the cancer removed and had another all clear. It will be a year since the tumor was removed in ...

2nd BCG tomorrow

  • By BamaJudi · New reply February 8, 2013
  • 4 replies
  • Well, my uro said it's going to be okay to have my second BCG tomorrow. So I'm at my son's house now and will be going to UAB tomorrow for my treatment ...

Home from RC/P at last! (and other good news)

  • By PSC · New reply February 7, 2013
  • 8 replies
  • My RC/P was on 1/23 and the recovey took a lot longer than anybody expected. Fifteen days is a long time to spend in the hospital. The doctors told me I had a prolonged ileus (latin for "Boy are your ...

Don't know if I'll get my 2nd BCG tomorrow

  • By BamaJudi · Posted February 6, 2013
  • 0 replies
  • Well, I don't know if I'll be getting my 2nd BCG treatment tomorrow or not. I've come down with bronchitis. I went to my doctor today and got 2 shots and got on some strong antibiotics. I did call my ...

Treatment designed for your personality?

  • By Blair6410 · New reply February 4, 2013
  • 5 replies
  • My fiancee were discussing my current and past treatment plan that my URO had developed. After reading all of the various treatment options thgat folks deal with here, it became apparent that some treatment ...

Question for those who underwent Mitomycin C

  • By Angela5 · New reply February 4, 2013
  • 20 replies
  • Hi all, hope you are doing well. My question, just started Mitomycin C via bladder installation and was wondering if anyone got bad nausea from it. Would appreciate hearing from you, I already had 3 years ...

Thanks and First "All Clear" of hopefully many

  • By HiThere1234 · New reply February 3, 2013
  • 5 replies
  • I wanted to thank everyone who has taken the time to post their comments, thoughts and information on this Board. Had symptons of bleeding in the urine, ultrasond showed nothing, but when symptons repeated ...

New tumors found today. No happy dance

  • By vgau · New reply February 3, 2013
  • 29 replies
  • They found new tumors today. For the first time, rather than removing in his office, he will do a turbt. The surgery is set for Wednesday. Although I am not doing the happy dance for an all clear, I sure ...

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