Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.


Last BCG maintenance cancelled

  • By leroystanks · New reply May 2, 2013
  • 2 replies
  • I'm coming up on a week since my last instillation and I'm still feeling pretty run down and uncomfortable. I called the doctor's office today and the nurse said that I'm probably having an expected reaction ...

BCG Maintenance Treatment ...

  • By Newmanbac · New reply May 1, 2013
  • 22 replies
  • Hello all, I have been living with T1 High Grade non invasive bladder cancer for 3 years - diagnosed 2 years ago ... 2 TURB'S and regular camera checks ... I was given the all clear in January 2013 currently ...

First BCG Yesterday

  • By glinalbq · New reply May 1, 2013
  • 63 replies
  • Diagnosed via TURBT with high grade non-invasive papillary at two sites on 12-21-12 and started BCG yesterday. I guess I am one of the lucky ones as I really had no discomfort and no pain whatsoever with ...

10 days later

  • By jcsnewbie2010 · New reply April 30, 2013
  • 1 reply
  • They did my turbt on April 17th, had cath removed on the 26th. The doctor still recommends doing BCG, I got copies of the pathology report and it doesn't list any grade or stage, just the size and location ...

Shoulder repair during Mitomycin maintenance?

  • By atlc1961 · New reply April 29, 2013
  • 3 replies
  • After numerous recurrences since Jan 2012 and reactions to 5 BCG treatments this past December/ January, I recently completed 6 wks of Mitomycin C t and am scheduled for monthly treatment for one yr ...

2nd BCG ... I Feel Nothing...

  • By mrshumphrey2009 · New reply April 29, 2013
  • 22 replies
  • far so I good and I am happy and blessed, truly. But wondering after all I've read why I don't feel it not working on me? LOL I do know better than that, BUT ...just a little shocked ...

Light is always costly

  • By gk105 · New reply April 28, 2013
  • 12 replies
  • Living with BC has given me the opportunity to change my lifestyle and not to take one day for granted. I have learned that living is not just about changing my diet but includes managing everday stress ...

Trying not to worry...

  • By leroystanks · New reply April 27, 2013
  • 3 replies
  • Even though I've been clear of bladder cancer since November 2011, every once in a while I fear what the future holds. My initial diagnosis was in December 2010, then the recurrence was November 2011 ...

Good news

  • By Chipmanmike · New reply April 26, 2013
  • 25 replies
  • OK my BCAN friends, we are always inundated with bad news so much in our forum, it's time for a little good news. I had my 6month cystoscope today and for 4 years I am tumor free. I had my first bladder ...

Side effects of ThioTEPA?

  • By MikoMarie · New reply April 25, 2013
  • 2 replies
  • I was wondering about side effects of ThioTEPA for bladder cancer. Also, has it helped to stop recurrence of bladder tumors. I've had 12 treatments of BCG and it has not stopped the tumors from coming ...

Life after TURBT 1

  • By Krstynn · New reply April 24, 2013
  • 11 replies
  • Hello.. So I had a TURBT 2 weeks ago, the results say non invasive grade 2 tumour, had Mytomycin at the same time. Consultant wants me back on 2nd July for Cysto and biopsies and advised to just carry ...

Looking for a second opinion within St Louis, Mo.

  • By MBraceNow · New reply April 24, 2013
  • 2 replies
  • Hi I have been fighting bladder cancer since July of 2011. I have had two surgeries and 9 BCG treatments. I want to get a 2nd opinion about future care. I am looking for referrals from those who live ...

constant peeing after 2nd turbt

  • By bfred · New reply April 22, 2013
  • 5 replies
  • Is it common to have to pee every hour?..hubby had turbt on April 2nd. No residual cancer was found. This surgery was a turbt to make sure the doc got all the tumors out from a surgery back in March ...

recurrence odds after 3rd clear cysto ??

  • By duneman · New reply April 21, 2013
  • 5 replies
  • had low grade ta non invasive tumor, passed first two 3 month cysto's then they had me wait 5 months which was yesterday and passed that one too !!.. now i go in, in six months...i will of course maintain ...

My "adventure" with bladder cancer

  • By leroystanks · New reply April 21, 2013
  • 13 replies
  • Hello everyone. I've read this forum many times since I was diagnosed with bladder cancer, but today I decided to join and share my story. I tend to babble a bit, but I'll try and keep it brief. Around ...

Bcg after effects

  • By Barrythemarine · Posted April 19, 2013
  • 0 replies
  • I received bcg for bladder cancer approximately 25 years ago. Clearly the vaccine was successful, I have been clear ever since. Approximately 3 years ago, I started to experience symptoms of interstitial ...


  • By Akkerdaas · New reply April 17, 2013
  • 7 replies
  • Ok, I'm a little mixed up. Was talking to hubby about BCG and then he says why do we call it BCG because he is taking Mitomycin in Holland it has a e at the. Is this the same ...


  • By happytobehere1 · New reply April 16, 2013
  • 14 replies
  • Hi Does anyone know how many CT scans are needed/required? (for BC) Is there a danger in having too many? Sloan has just scheduled a CT urogram for me >I was curious and I asked them about it and told ...


  • By Akkerdaas · New reply April 15, 2013
  • 6 replies
  • Hubby is doing BCG and this will be his 4th and last this go around. I think its going to be a hard one. Each time its seems to be more pain. But right now he has a big rash all over. They are not red ...

T1G3 To RC stage IV

  • By joyus · New reply April 14, 2013
  • 14 replies
  • T1G3 to RC Stage 4 How does this happen, that a diagnosis of T1 G3 becomes lymph node involvement when the RC is performed? How did the doctor miss this? How does it get to lymph nodes without getting ...

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