Living with invasive bladder cancer

Guidance and support for those with muscle-invasive bladder cancer.


RC with neo 4/11

  • By Rose256 · New reply 7:39 am
  • 8 replies
  • My husband Bill had RC with neobladder here at Sloan last Friday. Dr. Donat is his surgeon and she is an angel. He was in the OR 11 hours, with 10 of those hours being surgery. I am in awe of the dedication ...

Blessed Easter,

  • By AUSI · New reply yesterday at 4:16 pm
  • 8 replies
  • I would like to wish everyone a Blessed Easter. Love Ann ...

"Long" wait for surgery?

  • By salnap7 · New reply April 15, 2014
  • 21 replies
  • I am starting to worry, and don't know if it is valid or not. I started chemo on 12/19/13 - last actual treatment was 2/20/14 - missed my last treatment cycle day, as my counts were too low. Tried a second ...

opting for bladder removal

  • By MzMc · New reply April 15, 2014
  • 40 replies
  • Not really sure how to define "invasive" but my aggressive tumor, T1-capillary, is in the lamina propria. I also have T1 insitu covering so much of the bladder that a resection will not leave enough healthy ...

urinary infection

  • By Bobby58 · New reply April 11, 2014
  • 5 replies
  • I had a rc with a ic on Jan. 21st last night i went to the er with chills fever and wiped out. They did blood work and said i had a urinary infection i thought it was a cold but they gave me a iv and ...

As any one been for years with out B C G

  • By Baz6123 · New reply April 6, 2014
  • 6 replies
  • After treatment with BCG that was causing me problems according to the doctor the BCG had got into my prostrate and caused prostritatis which is a crippling disease so after 3 years of no top ups and ...


  • By ConLee · New reply April 5, 2014
  • 2 replies
  • Has anyone heard anything from Mateo's Mom on how he and his brother are doing. If I missed something, I am sorry. Connie ...


  • By cvf · New reply March 30, 2014
  • 1 reply
  • Bad luck getting first bcg treatment. Still had pain after 6 weeks. They tried a cystogram but could not get past prostrate. Came back at week seven and same problem. Doctor thought it may be a stricture ...

Three Month Follow Up Scare?

  • By yogagal41 · New reply March 28, 2014
  • 1 reply
  • Hi friends! My father in law just came back from his follow up. They found some pleural plaques in the right lobe of the lung. The doctor says that this is probably due to asbestos? No need to biopsy ...

Getting a 2nd opinion

  • By chemobay · New reply March 27, 2014
  • 8 replies
  • Can anyone tell me if a 2nd opinion @ John Hopkins is covered by insurance. I have download some forms. At this time I just want the pathology slides reviewed. Do I need to have Urologist send all surgical ...

Doctor Finds Inflammation in the lung

  • By yogagal41 · New reply March 25, 2014
  • 4 replies
  • Good Evening Friends, I have a very important question for everyone. My father In Law was diagnosed with invasive bladder cancer in Nov 2013. Since the diagnosis he had the surgery to remove the bladder ...

BC and Actos

  • By clarkmom · New reply March 25, 2014
  • 4 replies
  • I know smoking is the leading cause of bladder cancer. However, I have never smoked or even been in a smoking household or workplace. Any one else out there who took Actos and feel that might be the cause ...


  • By Judydatm · New reply March 23, 2014
  • 10 replies
  • My husband had his bladder and prostate removed on Feb 17. The tumor was 8½ mm in diameter. It was discovered that the cancer had spread to the lymph nodes, so he will have to undergo chemotherapy for ...

Helping family face the music...

  • By Musicmom58 · New reply March 23, 2014
  • 25 replies
  • Ok, I have been on this road for a little bit. I was diagnosed in early September 2013 with high grade T1 bladder cancer. When I had the beginnings of a recurrence at the second TURBT, I was referred ...

1st CT Scan After RC...Happy Dance!

  • By Portorchardpat · New reply March 22, 2014
  • 9 replies
  • Today was my three month CT scan after my RC/IC in December. My recovery from surgery has been great with just the usual lack of stamina and some lingering nausea. I still need a nap some days but less ...

No chemo for BC due to Ulcerative Colitis

  • By AOVet · New reply March 20, 2014
  • 5 replies
  • After having a Turbt on March 4 and being diagnosed with muscle invasive bladder cancer I have done nothing but researched and found that chemo first than RC is the way to go. Met with the oncologist ...

Questions regarding age and MIBC, chemo, etc.

  • By hulsey28 · New reply March 16, 2014
  • 4 replies
  • First let me say, this is a great forum and I'm learning a lot from reading your posts! My 72-year old father is recently diagnosed with grade 3 Muscle Invasive Bladder Cancer. He has not been staged ...

horrible pain after bcg

  • By zippy3 · New reply March 7, 2014
  • 13 replies
  • Ok am i a wuss or has anyone had terrible pain after bcg txs? Just curious I have taken pyridium also tylenol and ibuprofen to no avail.Im miserable any advice ...


  • By ander12 · New reply March 4, 2014
  • 12 replies
  • Doc just emailed me with the following quote: "Your CT scan did not show any evidence of cancer outside of the bladder area." Could not be HAPPIER!! My fear is now at ease as the thing that scared me ...

Suggestions for Minimizing Effects of MVAC

  • By cotcjim · New reply March 3, 2014
  • 2 replies
  • Have had non-invasive BC since 1996. Multiple TURBTs and BCGs. Recent TURBT revealed invasion into muscle. Scheduled for 3 rounds of standard MVAC followed by RC at Cleveland Clinic. I know the side effects ...

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