Living with invasive bladder cancer

Guidance and support for those with muscle-invasive bladder cancer.


opting for bladder removal

  • By MzMc · New reply yesterday at 8:24 am
  • 42 replies
  • Not really sure how to define "invasive" but my aggressive tumor, T1-capillary, is in the lamina propria. I also have T1 insitu covering so much of the bladder that a resection will not leave enough healthy ...

Diagnosed 11/18, cancer free 4/18

  • By Rose256 · New reply April 22, 2014
  • 8 replies
  • On Friday, our youngest daughter's 19th birthday, we learned Bill's RC on 4/11 was a success! He was diagnosed 11/18, TURBT on 11/27 and was told on 11/29 stage 3 muscle invasive cancer. We consulted ...

I must be doing something wrong.

  • By IndyRacer57 · New reply April 21, 2014
  • 4 replies
  • It has been eight months since my surgery to remove my bladder. After setting in after the surgery and getting everything together, I have only had one leak from my skin barrier. That was because of mucus ...

RC with neo 4/11

  • By Rose256 · New reply April 18, 2014
  • 10 replies
  • My husband Bill had RC with neobladder here at Sloan last Friday. Dr. Donat is his surgeon and she is an angel. He was in the OR 11 hours, with 10 of those hours being surgery. I am in awe of the dedication ...

Helping family face the music...

  • By Musicmom58 · New reply April 17, 2014
  • 27 replies
  • Ok, I have been on this road for a little bit. I was diagnosed in early September 2013 with high grade T1 bladder cancer. When I had the beginnings of a recurrence at the second TURBT, I was referred ...

Blessed Easter,

  • By AUSI · New reply April 16, 2014
  • 8 replies
  • I would like to wish everyone a Blessed Easter. Love Ann ...

"Long" wait for surgery?

  • By salnap7 · New reply April 15, 2014
  • 21 replies
  • I am starting to worry, and don't know if it is valid or not. I started chemo on 12/19/13 - last actual treatment was 2/20/14 - missed my last treatment cycle day, as my counts were too low. Tried a second ...

urinary infection

  • By Bobby58 · New reply April 11, 2014
  • 5 replies
  • I had a rc with a ic on Jan. 21st last night i went to the er with chills fever and wiped out. They did blood work and said i had a urinary infection i thought it was a cold but they gave me a iv and ...

As any one been for years with out B C G

  • By Baz6123 · New reply April 6, 2014
  • 6 replies
  • After treatment with BCG that was causing me problems according to the doctor the BCG had got into my prostrate and caused prostritatis which is a crippling disease so after 3 years of no top ups and ...


  • By ConLee · New reply April 5, 2014
  • 2 replies
  • Has anyone heard anything from Mateo's Mom on how he and his brother are doing. If I missed something, I am sorry. Connie ...


  • By cvf · New reply March 30, 2014
  • 1 reply
  • Bad luck getting first bcg treatment. Still had pain after 6 weeks. They tried a cystogram but could not get past prostrate. Came back at week seven and same problem. Doctor thought it may be a stricture ...

Three Month Follow Up Scare?

  • By yogagal41 · New reply March 28, 2014
  • 1 reply
  • Hi friends! My father in law just came back from his follow up. They found some pleural plaques in the right lobe of the lung. The doctor says that this is probably due to asbestos? No need to biopsy ...

Getting a 2nd opinion

  • By chemobay · New reply March 27, 2014
  • 8 replies
  • Can anyone tell me if a 2nd opinion @ John Hopkins is covered by insurance. I have download some forms. At this time I just want the pathology slides reviewed. Do I need to have Urologist send all surgical ...

Doctor Finds Inflammation in the lung

  • By yogagal41 · New reply March 25, 2014
  • 4 replies
  • Good Evening Friends, I have a very important question for everyone. My father In Law was diagnosed with invasive bladder cancer in Nov 2013. Since the diagnosis he had the surgery to remove the bladder ...

BC and Actos

  • By clarkmom · New reply March 25, 2014
  • 4 replies
  • I know smoking is the leading cause of bladder cancer. However, I have never smoked or even been in a smoking household or workplace. Any one else out there who took Actos and feel that might be the cause ...


  • By Judydatm · New reply March 23, 2014
  • 10 replies
  • My husband had his bladder and prostate removed on Feb 17. The tumor was 8½ mm in diameter. It was discovered that the cancer had spread to the lymph nodes, so he will have to undergo chemotherapy for ...

1st CT Scan After RC...Happy Dance!

  • By Portorchardpat · New reply March 22, 2014
  • 9 replies
  • Today was my three month CT scan after my RC/IC in December. My recovery from surgery has been great with just the usual lack of stamina and some lingering nausea. I still need a nap some days but less ...

No chemo for BC due to Ulcerative Colitis

  • By AOVet · New reply March 20, 2014
  • 5 replies
  • After having a Turbt on March 4 and being diagnosed with muscle invasive bladder cancer I have done nothing but researched and found that chemo first than RC is the way to go. Met with the oncologist ...

Questions regarding age and MIBC, chemo, etc.

  • By hulsey28 · New reply March 16, 2014
  • 4 replies
  • First let me say, this is a great forum and I'm learning a lot from reading your posts! My 72-year old father is recently diagnosed with grade 3 Muscle Invasive Bladder Cancer. He has not been staged ...

horrible pain after bcg

  • By zippy3 · New reply March 7, 2014
  • 13 replies
  • Ok am i a wuss or has anyone had terrible pain after bcg txs? Just curious I have taken pyridium also tylenol and ibuprofen to no avail.Im miserable any advice ...

Things you can do

Support BCAN

Help the Bladder Cancer Advocacy Network reach its goals and support people like yourself by making a donation today.

Donate to the Bladder Cancer Advocacy Network

Discussion topics

Walk for Bladder Cancer May 3rd

Walk for Bladder Cancer

Resources from BCAN

BCAN on Facebook

Like the Bladder Cancer Advocacy Network on Facebook

Community leaders