Discussion topics

Newly diagnosed

Guidance and support for those who have recently learned they have bladder cancer.

Stage 4 bladder cancer

  • By cutie21410 · New reply 7:30 am
  • 34 replies
  • Hi, My husband was diagnosed with bladder cancer about a month ago. Within the last 1-2 weeks, we have found out it is stage 4 TCC. He has a 5.3cm bladder tumor with groin lymph nodes affected and suspected ...

All 1,495 discussions...

Caregivers corner

Share thoughts, experience and support with others whose loved ones are living with bladder cancer.

Chemo before and after

  • By Nancylhm · New reply yesterday at 8:05 pm
  • 5 replies
  • My husband had chemo before surgery and now his surgery is done and I have heard that a lot of people have had both. I want an opinion as to weather chemo after is necessary. All his tests have come back ...

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Taking charge: How to be a proactive patient

Tips and suggestions for dealing with medical professionals and managing your illness and overall health.

Body image program for cancer survivors

  • By robin5 · Posted 6:05 am
  • 0 replies
  • I saw this and thought it might be interesting for Bcanners- On Wednesday, April 30, an educational program called “Embodied: Coping with Cancer and Body Image Changes” will discuss common concerns about ...

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Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.


  • By silla123 · New reply 8:50 am
  • 8 replies
  • Today I had revision Md Anderson Madrid. All clear after 4 years ... I wanted to share my happiness with everyone ...

All 1,458 discussions...

Living with invasive bladder cancer

Guidance and support for those with muscle-invasive bladder cancer.

opting for bladder removal

  • By MzMc · New reply 8:24 am
  • 42 replies
  • Not really sure how to define "invasive" but my aggressive tumor, T1-capillary, is in the lamina propria. I also have T1 insitu covering so much of the bladder that a resection will not leave enough healthy ...

All 869 discussions...

Upper urinary tract tumors

Guidance and support for those with upper urinary tract tumors.

Will lose remaining kidney in 2 weeks. anyone else left with IC on dialysi

  • By jack72747 · New reply April 15, 2014
  • 9 replies
  • It's been a long 2.5 year since diagnosis. Lost bladder and prostate. Then left kidney, ureter and urethra. After discovery of tumors in right ureter I've lived with nephrostomy in right. Underwent chemo ...

All 53 discussions...

Living with metastatic bladder cancer

Guidance and support for those with metastatic bladder cancer.

Chemo and itching

  • By Lovebunny · New reply April 14, 2014
  • 6 replies
  • My husband has Stage 4 BC and recently started being treated with Alimta. This is the fourth different type of chemo he has tried over the last three years. One of the side effects is severe itching ...

All 577 discussions...

Life after radical cystectomy

Adjusting to the "new normal" after bladder removal and reconstruction.

Hernia repair

  • By MrsMindiJean · New reply 9:11 am
  • 1 reply
  • I currently have a hernia the size of a soccer ball, to the left of my belly button stoma (result of bladder cancer and Indiana Pouch). I will be having surgery on May 6 and would like to know what to ...

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Treatment choices

Navigating the available treatment options.

ostomy bag vs. Indiana pouch?

  • By cswpink · New reply yesterday at 9:57 pm
  • 32 replies
  • I will be having RC on 4/22 and am having difficulty deciding on the 2 options available to me. I would like to hear how some of you made this decision, what questions did you consider? Are you happy ...

All 1,121 discussions...

Raising awareness

Sharing ideas for raising public awareness of bladder cancer.

Time to Sign Up for the Charlotte Bladder Cancer Walk!

  • By NL · New reply yesterday at 8:25 pm
  • 8 replies
  • Bladder Cancer Friends, If you live anywhere near Charlotte, NC, now is the time to sign up for the Bladder Cancer Walk on May 3rd! We want a large group to walk and raise money for research as well as ...

All 847 discussions...

Sharing loss and connecting

Share your memories and remember those who are missed.

I'm here due to doctor error

  • By glendot · New reply yesterday at 3:41 pm
  • 17 replies
  • Three years ago I had a green light laser surgery on my prostate. The heat from the laser got up into my bladder and destroyed it and the sphincters. So I am here with an IC/stoma/ostomy not due to cancer ...

All 70 discussions...

Off-topic / Humor

Share your stories and jokes with others who need a break from bladder cancer and feel laughter is the best medicine.

A consultant urologist

  • By Oakcarver · New reply yesterday at 7:55 am
  • 7 replies
  • A consultant urologist had become fed up with trumped-up malpractice insurance claims, bureaucratic paperwork and was generally burned out. He decided to try another career where skilful hands would be ...

All 169 discussions...

Help desk

Have a question about using the site? An idea for making it better? Post here and let us know how we can help.

Night drainage bags

  • By Guidojoe · New reply 9:06 am
  • 10 replies
  • So, here's a dumb question: I have read on this site that the night drainage bag should last 2-4weeks before replacing with a new one. I have been using the same reliamed bag for probably 2 months. It ...

All 322 discussions...

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