Discussion topics

Newly diagnosed

Guidance and support for those who have recently learned they have bladder cancer.

Holy hand grenade, batman- it's in my kidney!

  • By BetsyLou42 · New reply 1:54 pm
  • 16 replies
  • Welp, here we are almost two years after originally receiving my bladder cancer diagnosis and going though hell and back, and something's afoot in left kidney land. I'm not screwing around- they're yanking ...

All 1,489 discussions...

Caregivers corner

Share thoughts, experience and support with others whose loved ones are living with bladder cancer.

Recurrance after BCG. What's next?

  • By tangled_knot · New reply yesterday at 10:35 pm
  • 3 replies
  • Hi everyone, This is my first post to this forum, and am so thankful for finding it. My dad (83) was diagnosed with T1Hg cancer just under a year ago. At the time, it hadn't penetrated the muscle, so ...

All 896 discussions...

Taking charge: How to be a proactive patient

Tips and suggestions for dealing with medical professionals and managing your illness and overall health.


  • By KPDD · New reply 12:44 pm
  • 12 replies
  • Hi freveryends. I am on my south pacific tour right now. Didnot have any problems with security ,went through four so far. I have an IC and did not carry any card. All Going good so far. My questions ...

All 1,090 discussions...

Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.

papillary bladder cancer

  • By RosieQ22 · New reply 1:11 pm
  • 29 replies
  • I am still learning more since my original bladder cancer diagnosis in 2000 - 14 years ago and 6 TURBT to date. My most recent surgery was New Years Eve 2013. PUNLMP is a new term I now understand as ...

All 1,453 discussions...

Living with invasive bladder cancer

Guidance and support for those with muscle-invasive bladder cancer.

RC with neo 4/11

  • By Rose256 · New reply 7:39 am
  • 8 replies
  • My husband Bill had RC with neobladder here at Sloan last Friday. Dr. Donat is his surgeon and she is an angel. He was in the OR 11 hours, with 10 of those hours being surgery. I am in awe of the dedication ...

All 867 discussions...

Upper urinary tract tumors

Guidance and support for those with upper urinary tract tumors.

Will lose remaining kidney in 2 weeks. anyone else left with IC on dialysi

  • By jack72747 · New reply April 15, 2014
  • 9 replies
  • It's been a long 2.5 year since diagnosis. Lost bladder and prostate. Then left kidney, ureter and urethra. After discovery of tumors in right ureter I've lived with nephrostomy in right. Underwent chemo ...

All 53 discussions...

Living with metastatic bladder cancer

Guidance and support for those with metastatic bladder cancer.

Chemo and itching

  • By Lovebunny · New reply April 14, 2014
  • 6 replies
  • My husband has Stage 4 BC and recently started being treated with Alimta. This is the fourth different type of chemo he has tried over the last three years. One of the side effects is severe itching ...

All 577 discussions...

Life after radical cystectomy

Adjusting to the "new normal" after bladder removal and reconstruction.

A man's point of view on a neo bladder.

  • By Aud53 · New reply 1:27 pm
  • 9 replies
  • A friend of mine has T3 and will be having surgery next week. The plan is for a neo. He asked me about leaking and I can only tell him from a woman's experience. Easy enough for me to wear a very light ...

All 2,782 discussions...

Treatment choices

Navigating the available treatment options.

Informative flow chart

  • By fmsincolumbus · New reply 1:33 pm
  • 5 replies
  • I am 49 year old male with T2 bc - progressed from T1 after 2 years of Turbts and BCG treatments. I am under the care of a great group of physicians at the OSU James Cancer center in Columbus Ohio. I ...

All 1,118 discussions...

Raising awareness

Sharing ideas for raising public awareness of bladder cancer.

Blue Light

  • By mustacoyna · New reply 1:12 pm
  • 5 replies
  • Does anyone know the cost of blue-light cystoscopy ..... out-of-pocket cost when insurance won't cover the cost. I would like to do it if I don't have to sell my house to pay for it. ???? estimate/roughly ...

All 842 discussions...

Sharing loss and connecting

Share your memories and remember those who are missed.

Blind with Urostomy

  • By freeport2014 · New reply April 3, 2014
  • 11 replies
  • I had my bladder removed last November. I am blind and I am having issues with changing my urostomy bag. Is there anyone else who is blind with a urostomy ...

All 68 discussions...

Off-topic / Humor

Share your stories and jokes with others who need a break from bladder cancer and feel laughter is the best medicine.

Norwegian Icebreaker

  • By Oakcarver · New reply 2:00 am
  • 4 replies
  • I've just been looking at some old news items. Now I knew that last Winter had been very cold in the Midwest, but I did not realise it was so cold. I read that, for the first time ever, Iowa had to bring ...

All 169 discussions...

Help desk

Have a question about using the site? An idea for making it better? Post here and let us know how we can help.

Please help

  • By SASW · New reply yesterday at 11:56 pm
  • 9 replies
  • I had a partial cystectomy on Wednesday and was sent home on Friday. I have a Foley catheter. Is it normal for there to be urine in the toilet after a bowel movement? I also was feeling very uncomfortable ...

All 320 discussions...

Things you can do

Support BCAN

Help the Bladder Cancer Advocacy Network reach its goals and support people like yourself by making a donation today.

Donate to the Bladder Cancer Advocacy Network

Discussion topics

Walk for Bladder Cancer May 3rd

Walk for Bladder Cancer

Resources from BCAN

BCAN on Facebook

Like the Bladder Cancer Advocacy Network on Facebook

Community leaders