New discussions


  • By MargePA · Posted April 8, 2014
  • In Raising awareness · 31 replies
  • Gifts are generally given on days of celebration….birthdays, graduations, weddings, Christmas. In light of this, I am torn and confused by the idea of giving a gift to my late husband on a day that is ...

Pathology Report plus follow up plan

  • By nataliecali · Posted April 7, 2014
  • In Upper urinary tract tumors · 11 replies
  • Thanks to JJ, Karen, Teasewell, Marge, Lynda, Joyous, and at1 for responding to my last post. I highly appreciate your help. Recap: My mother’s doctor told her pathology came back non-muscle invasion ...

Restrictions after RC

  • By Osakajo · Posted April 7, 2014
  • In Life after radical cystectomy · 13 replies
  • I'm getting some conflicting information regarding restrictions post RC. I had my RC on 3/14/14 (with an ileal conduit) and I'm adjusting pretty well. However, I've heard some conflicting advice about ...

Just 10 Minutes Of Your Time Could Improve Bladder Cancer Awareness

  • By RickB · Posted April 7, 2014
  • In Raising awareness · 35 replies
  • You can be an agent of change for bladder cancer awareness with just 10 minutes of your time. But will you? I’m asking because that is all the time it takes to ask your House representative to vote YES ...


  • By Nancylhm · Posted April 7, 2014
  • In Caregivers corner · 13 replies
  • I have been told by different people one says never to use soap around the stoma and one saying to use soap. I want to know what is the consensus of opinion of this delima. My husband takes showers every ...

bcg - bleeding from bcg or catheter - what do you think?

  • By sandra_m · Posted April 7, 2014
  • In Living with non-invasive bladder cancer · 8 replies
  • Hi, I just finished my first maintenance BCG treatment. Not many problems with 6 induction BCGs...but on this 1st maintenance bcg I had on the first day a very small amount of red blood on the toilet ...

Bladder cancer and now bone lesions

  • By Dwkjrk · Posted April 7, 2014
  • In Treatment choices · 2 replies
  • My husband was diagnosed with bladder cancer last June . He had two rounds of chemo, surgery to remove the bladder and prostate, and two more rounds of chemo. His pet scan showed lesions on the bone ...

I want to organize a 5k to raise awareness, but not sure where to start?

  • By MissKariAnne · Posted April 7, 2014
  • In Raising awareness · 4 replies
  • Has anyone organized/directed their own race? My step dad lost his battle with bladder cancer in October of 2005. I have always wanted to do something to honor his memory so last year I started running ...

What's next?

  • By granniesgirls · Posted April 7, 2014
  • In Living with metastatic bladder cancer · 3 replies
  • In 2010, my husband had his bladder removed, (after 8 years of numerous BCG treatments) and had the neo-bladder created out of his intestine. It was a rough road, but he made it through and was doing ...

eight weeks after neo

  • By meemster · Posted April 7, 2014
  • In Life after radical cystectomy · 3 replies
  • Just a positive update on Jerry. He had rc with neo on Feb. 12. two more trips to hospital after that. Today he went back to work!!!! things are really looking up. Fatigue remains a problem, but everything ...

Join me at the Triangle (NC) Support Group

  • By balihigh · Posted April 7, 2014
  • In Raising awareness · 1 reply
  • Tomorrow I will be speaking at the Triangle Support Group in Chapel hill, NC. My message will be about the importance of meeting others when diagnosed with cancer and my personal experience with bladder ...

Exam today


Stage IV and Post Surgery Chemo Question

  • By elizannm · Posted April 6, 2014
  • In Taking charge: How to be a proactive patient · 13 replies
  • I'd like to hear from people that are Stage IV and had chemo after surgery? I went through 4 rounds of MVAC, RC with IP and pathology revealed 4 positive nodes. Certainly not the news I wanted to hear ...

infection after indiana pouch surgery

  • By 1557 · Posted April 6, 2014
  • In Caregivers corner · 9 replies
  • My husband had bladder surgery and had to go back to hospitol for dehydration and infection.I was concerned if this is something that happens often ...

Mouth blisters

  • By ander12 · Posted April 6, 2014
  • In Life after radical cystectomy · 16 replies
  • The other day food started to taste bad to me. My mouth was dry and when I swallowed something to eat it was like sandpaper when I swollwed. Well this morning we can see little small blisters inside my ...

Trip to Cancun

  • By sparkle1954 · Posted April 6, 2014
  • In Life after radical cystectomy · 14 replies
  • I won a trip to Cancun from work and it is April 23rd. I figured I would be well enough to go since that would be 8 weeks after surgery. Still will have to take it easy I know. My question is what do ...

Hernia Risk?

  • By crustycodger · Posted April 6, 2014
  • In Life after radical cystectomy · 3 replies
  • Had RC W/IC 14 Mar. After a bout with an ileus, finally reintroduced to my recliner on 28 Mar. As with other surgeries in the past 15 years (prostate removal, colon resection, and 3 bladder tumor removals ...

Bladder cancer stage III

  • By vanepati · Posted April 6, 2014
  • In Help desk · 8 replies
  • Hello I am so glad and very thankful of this website, in a week I'll start my BCG treatment and would like to know what can I do before to minimize the effects of the vaccine,and what are the side effects ...

As any one been for years with out B C G

  • By Baz6123 · Posted April 6, 2014
  • In Living with invasive bladder cancer · 6 replies
  • After treatment with BCG that was causing me problems according to the doctor the BCG had got into my prostrate and caused prostritatis which is a crippling disease so after 3 years of no top ups and ...


  • By ConLee · Posted April 5, 2014
  • In Living with invasive bladder cancer · 2 replies
  • Has anyone heard anything from Mateo's Mom on how he and his brother are doing. If I missed something, I am sorry. Connie ...

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