Bladder Gone, Cancer Gone - Day 6

  • By ander12 · Posted April 1, 2014
  • 19 replies
  • Biopsy came back today. NO cancer outside the bladder!!! Woooo Hooooo! Lymph nodes and prostate were all cancer free. The bladder cancer was contained to the bladder lining. There was mention of 2 visible ...

1yr Anniversary

  • By CarolC54 · Posted April 1, 2014
  • 4 replies
  • Well tomorrow on April 2, 2014 will be 1 yr I had my first TURBT. I had my second TURBT on Nov. 13, 2013. and on Feb. 19, 2014 I had my first all clear for no tumors in my bladder. My next visit will ...


  • By fxe1978 · Posted April 1, 2014
  • 5 replies
  • I so far have tolerated chemo well. My biggest problem is hearing. It feels like I have cotton balls in both ears with occasional ringing. Appetite has remained very good with no nausea. Have remained ...

BCG & Body Odor

  • By bfred · Posted April 1, 2014
  • 10 replies
  • I am wondering if anyone has noticed a particular body odor during BCG treatments. My husband is having his 2nd round of treatments. He does the treatments on Fridays. He had his 2nd one last Friday and ...

Triangle (North Carolina Bladder Cancer Support Group - April 8

  • By davidl · Posted March 31, 2014
  • 4 replies
  • Please join us on Tuesday, April 8 for a visit from Nancy Parrish. Nancy is a bladder cancer survivor and is very active in recovery and support. She is coming down from Waynesville NC to share with us ...

Bladder gone, cancer Gone - Day 5

  • By ander12 · Posted March 31, 2014
  • 6 replies
  • This is my post!! I just want to tell EVERYONE. How much I Adore this woman! Without her this would not be so easy, she has been a rock and right in everything. She discusses everything with the docs ...

Open Incision

  • By JohnRO · Posted March 31, 2014
  • 4 replies
  • Three weeks after surgery I developed a pimple type bubble on my incision 1 week after staples removed. I followed up with primary doctor and was put on an antibiotic. The following week it enlarged and ...

Almost one month after RC

  • By Marine1942 · Posted March 31, 2014
  • 4 replies
  • Lately Ray seems to be a little down. He has a good day and then those slower days. We are going to talk to doctor today about some medicine. He was on pantoprazole when he came home from hospital due ...

where does energy to go on come from?

  • By NoNameNecessary · Posted March 31, 2014
  • 19 replies
  • some days I don't know how to go on. where am I supposed to get the energy that seems to have left me ...

Bladder Gone, Cancer Gone - Day 4

  • By ander12 · Posted March 30, 2014
  • 7 replies
  • Andy was up sitting in the chair when I woke this morning. He would do good for a while, then start vomiting again. He could not keep any food down. We got with the nurse and came up with giving him Zofran ...

Our latest ostomy adventure

  • By CaptainJan · Posted March 30, 2014
  • 9 replies
  • All is progressing smoothly for the most part. I've posted to the site several times, but I'm not on every day, because I'm staying busy packing things and putting them in storage in preparation for our ...

New Stage: Adjustment

  • By JimK50 · Posted March 30, 2014
  • 6 replies
  • As a survivor of bladder cancer, 2.5 years removed from the worst, my life is no longer in Crisis. But it's not Normal either. I'm learning there's a new stage of life called Adjustment. So I wrote about ...

Almost a year of being alone

  • By billbocat · Posted March 30, 2014
  • 13 replies
  • Well I do not cry as much, I am figuring out how to live on next to nothing, but I feel I am just going through the motions. I do not feel this is really living. I do what I have to do not always everyday ...

Help me

  • By Angelmate63 · Posted March 30, 2014
  • 59 replies
  • It's been almost two years since I had my neobladder and now I'm wondering if was worth it? I had my left kidney removed in August 1981 and was told go on with your life you can live with one kidney,almost ...

Bladder Gone, Cancer Gone - Day 3

  • By ander12 · Posted March 30, 2014
  • 7 replies
  • Today Andy's bowels woke up pissed. It has been a pretty miserable day of sipping tea, broth, water, and a couple bites of jello. For most of the day, every time he sat on the pot he also threw up. The ...

Dr. K., Katuha, Mrs. Katuha, and Dakota have left the building.

  • By Katuha · Posted March 29, 2014
  • 60 replies
  • Just so nobody thinks I'm ignoring emails or questions etc., I'm taking the wife on a little vacation. It's time to air her and me and our dog out a bit before terminal cabin fever sets in. Leaving tomorrow ...

RC and neo-bladder - 6 weeks on

  • By AnnaGrant · Posted March 29, 2014
  • 10 replies
  • Sorry that I haven't posted for a while Wally had his JP drain and catheter removed on 10 March - 24 long days after his operation. He had to take 2 courses of antibiotics after catching both C-Diff and ...

Bladder Gone, Cancer Gone - day 2

  • By ander12 · Posted March 28, 2014
  • 15 replies
  • Andy took a couple walks today. No nausea. There is rumbling going on in his tummy, a good sign his bowels are starting to wake up a little bit. He has slept a lot today. Not the foggy drug induced cat ...

The way doctors think about death is very different from their patients.

  • By Katuha · Posted March 28, 2014
  • 16 replies
  • This is a radio program discussion. A very important human discussion we should and eventually all will participate in to one extent or another. It involves end of life issues and facts and choices that ...


  • By fxe1978 · Posted March 28, 2014
  • 6 replies
  • Well I made it through the first round of Cisplatin/Gemzar yesterday, 6+ hrs. Was not prepared for that long. Feel pretty good today, and actually came to work. I am dreading day 3 Sunday. Have a good ...

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