Discussions

Nu-Hope Non-Adhesive bags

wisdomstruggle
  • By wisdomstruggle · Posted April 11, 2014
  • In Life after radical cystectomy · 9 replies
  • It has been one year since my radical cystectomy. I chose to have an ileal conduit and struggled for months with the various adhesive bags. I had constant issues with severely irritated skin. Finally ...

Contemplating Which Procedure to Have

Inforequested
  • By Inforequested · Posted April 11, 2014
  • In Treatment choices · 7 replies
  • I would really appreciate hearing about the procedure and recovery period and living with the IP procedure. I have had radiation and surgery and although I am cancer free the scarring has left me with ...

Family History

f068467
  • By f068467 · Posted April 11, 2014
  • In Raising awareness · 9 replies
  • 2 of my brothers and I have been diagnosed with bladder cancer. I understand this is unusual. Might we have been exposed to something when we were growing up ...

Please give me some advice

TigerMui
  • By TigerMui · Posted April 10, 2014
  • In Caregivers corner · 5 replies
  • My 90 year old mother who lives in an elderly home in Toronto is advised to have 2 weeks of radiation treatment for her invasive bladder cancer. She was diagnosed last September. CAT scan did not show ...

Gov. Scott says Fla. should be nation's top state for cancer treatment

emax
  • By emax · Posted April 10, 2014
  • In Treatment choices · 6 replies
  • Gov. Scott says Fla. should be nation's top state for cancer treatment By JACOB CARPENTER Originally published 12:31 p.m., April 10, 2014 Updated 04:03 p.m., April 10, 2014 In his fourth stop promoting ...

Thu Apr 17 Meeting of Detroit Bladder Cancer Network

RickB
  • By RickB · Posted April 10, 2014
  • In Newly diagnosed · 1 reply
  • The Detroit Bladder Cancer Network (DBCN), a partnership between The Henry Ford Health System and Karmanos Cancer Center in Detroit Michigan, will meet on Thursday Apr 17th at 4:30 pm at Karmanos (details ...

New York State Free Ostomey Supplise

jrryg8
  • By jrryg8 · Posted April 10, 2014
  • In Help desk · 0 replies
  • Has anyone heard anything about New York State paying for Ostomey supplies ? I read an article in some news paper that said that NYS was going to pay for Ostomey supplies, but I can not remember were ...

New Treatments for Bladder Cancer? Bladder Cancer Clinical Trials Dashboard

RickB
  • By RickB · Posted April 10, 2014
  • In Taking charge: How to be a proactive patient · 1 reply
  • Where can you go to determine if there are new treatments being tested for your bladder cancer diagnosis? Those of you who have asked that question (and I encourage EVERYONE to ask no matter what your ...

More tumors

ancona9409
  • By ancona9409 · Posted April 10, 2014
  • In Newly diagnosed · 18 replies
  • My hubby was diagnosed in January of this year and had TURBT surgery on January 30th. He had one tumor removed and the pathology results were that it was non-invasive yet high grade. We spoke to the doctor ...

BCG HYGENE

B-----
  • By B----- · Posted April 9, 2014
  • In Living with non-invasive bladder cancer · 17 replies
  • I’ve just had my 1st BCG treatment Monday and I’m worried about giving TB to my wife…. I have been as careful as I can be with everything but there seems to be a drop here and there that goes into my ...

Early Detection

JanHA
  • By JanHA · Posted April 9, 2014
  • In Raising awareness · 11 replies
  • I think there are simple inexpensive policies that could save bladders and lives. My diagnosis was delayed at least 6 months, and a simple urinalysis early on would have saved me. I had several urine ...

UTI Questions

JamesF
  • By JamesF · Posted April 9, 2014
  • In Help desk · 5 replies
  • I have my second UTI since having RC/IC a little over six weeks ago. Symptoms are a fever and feeling very weak. My doctor has prescribed antibiotics. The urine in the bag is very "dirty" with brown particles ...

Non invasive bladder cancer

Ivaan
  • By Ivaan · Posted April 9, 2014
  • In Newly diagnosed · 4 replies
  • I was diagnosed with non invasive bladder cancer just over a month ago. But at the moment I suffer badly with pains in both groins and both legs. I am taking anti-inflamatories which don't really help ...

adjuvant chemo or not?

lifetime123
  • By lifetime123 · Posted April 9, 2014
  • In Treatment choices · 22 replies
  • Trying to make up my mind ? Had bladder removed 9 weeks ago at Moffit Dr Sexton Follow up yesterday Stage T3 But all clear margings Have a choice . Meeting with Dr Fishman in two weeks oncologist. I can ...

Three Month Cysto

ancona9409
  • By ancona9409 · Posted April 9, 2014
  • In Caregivers corner · 11 replies
  • Hi Everyone, My hubby is going for his first follow-up appointment (3 months) with the urologist since he has turbt surgery in late January. He is extremely nervous for the test itself... Is it ok for ...

artificial sphincter

Geneura
  • By Geneura · Posted April 9, 2014
  • In Life after radical cystectomy · 15 replies
  • Has anyone out there had an artificial sphincter inserted? My husband has had an RC and is suffering from incontinence and this is one of the suggestions but it seems rather invasive ...

Flying with an urostomy pouch

SheFishes
  • By SheFishes · Posted April 8, 2014
  • In Life after radical cystectomy · 19 replies
  • I am preparing to fly cross country from CA to DC. I've heard about the card you can get to show security when going through the pat down and security. Thank you ED for such a well written account of ...

OncoPLEX

Bangs111
  • By Bangs111 · Posted April 8, 2014
  • In Upper urinary tract tumors · 5 replies
  • Is anyone taking OncoPLEX to help keep their cancer controlled? It is made from broccoli seed exract. Thanks in advance ...

diagnosed last wednesday April 2nd 2014

fwstocks
  • By fwstocks · Posted April 8, 2014
  • In Newly diagnosed · 17 replies
  • I had surgery to remove what turned out to be two baseball sizes tumors from my bladder this past Wednesday. The Dr. has recommended resection of my bladder with the reconstruction of a neo bladder. I ...

Quick Survey - Muscle Invasive Bladder Cancer

BCAN_Staff
  • By BCAN_Staff · Posted April 8, 2014
  • In Raising awareness · 0 replies
  • We posted this survey back in August, but the working group chairs asked if we could post it again. If you haven't taken the survey, please take a minute to do so. The Standardization of Care Working ...

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