Discussions

Infections

Baz6123
  • By Baz6123 · Posted April 14, 2014
  • In Life after radical cystectomy · 7 replies
  • Can any one tell me what are the chances of infection after radical cysto as I am so fed up with the Macmillian people there advert for money is so wrong they tell you that they are there for you and ...

Life is Good-Travel in Ireland

bmk798
  • By bmk798 · Posted April 14, 2014
  • In Life after radical cystectomy · 6 replies
  • Hello Everyone, Haven't been here in a long time! Busy, wonderful life. I have a question and hope anyone can answer it or give me some suggestions. I'm lucky enough to get to travel to Ireland for two ...

Cancer Returns - Cardinal George requests a successor

Rj02OC12
  • By Rj02OC12 · Posted April 13, 2014
  • In Raising awareness · 2 replies
  • FYI: The story at the link below is mostly about Cardinal George requesting the Vatican to name his successor but the final paragraphs reveal that he survived bladder cancer eight years ago and was diagnosed ...

Thoughts on Dr. Douglas Scherr

LJV
  • By LJV · Posted April 13, 2014
  • In Treatment choices · 5 replies
  • After my dad was told he would have to wait until June to have his bladder removed due to that being the first opening with Dr. Herr he was recommended to call Dr. Scherr. Does anyone have any experience ...

Please help

SASW
  • By SASW · Posted April 13, 2014
  • In Help desk · 11 replies
  • I had a partial cystectomy on Wednesday and was sent home on Friday. I have a Foley catheter. Is it normal for there to be urine in the toilet after a bowel movement? I also was feeling very uncomfortable ...

Maintenance Treatment

alhakam
  • By alhakam · Posted April 13, 2014
  • In Treatment choices · 3 replies
  • Hi What it does mean by maintenance treatment ?? Is it cancer free? Is it usefull to prevent cancer to come back? Thanks for all Hakam ...

Diabetes medicine with bladder cancer risks

edclme0267
  • By edclme0267 · Posted April 13, 2014
  • In Taking charge: How to be a proactive patient · 0 replies
  • Here's an abstract from the Economist magazine dated April 12th, 2014. "A federal jury in Louisiana ordered Takeda, a Japanese drugs company, to pay $6 billion in punitive damages for covering up the ...

Renal Pelvis Cancer : Urgently Need advise

Vidia
  • By Vidia · Posted April 13, 2014
  • In Upper urinary tract tumors · 4 replies
  • Background on the case: this is for my mother in law (age 72) who is currently in China and diagnosed with high grade urotherial cancer of renal pelvis. Initially it was diagnosed as stage T2NxM0 hence ...

After partial cystectomy

SASW
  • By SASW · Posted April 13, 2014
  • In Help desk · 0 replies
  • My surgery was on April 9th. I am wondering how long there will be bloody urine ...

Chart Comparing Diversions (Neobladder vs Indiana Pouch vs Ileal Conduit)

RickB
  • By RickB · Posted April 13, 2014
  • In Newly diagnosed · 8 replies
  • With our new capability to post pictures, I am posting a chart that I prepared to compare the three urinary diversions: Neobladder vs Indiana Pouch vs Ileal Conduit. The rankings are based on my judgment ...

Help understanting Pathology Report

Vidia
  • By Vidia · Posted April 13, 2014
  • In Upper urinary tract tumors · 4 replies
  • Need help understanding the pathology report of my mother in law who has recently undergone nephrectomy. The report is at the end.. Questions/clarifications 1) The doctors/pathology report doesn't mention ...

low paplet count of 13

ppatel
  • By ppatel · Posted April 13, 2014
  • In Caregivers corner · 0 replies
  • .. my dads Paplet count iş also too low .. as 13 al.. we are Really worried.today being a sunday .. no doctors available ...hes also got bleeding in urine . İ hope nothing iş serious .. - ppatel ...

Need input

chiprich
  • By chiprich · Posted April 13, 2014
  • In Life after radical cystectomy · 17 replies
  • I had a RC/Prostate/Lymph node removal on 3/31. 13 hours Robotic. Went home from the hospital on 4/7 I have a Neo-bladder now. Remaining Surgery Pain in minimal The Catheter is uncomfortable and requires ...

BCG 2nd time around

Bunnie1
  • By Bunnie1 · Posted April 13, 2014
  • In Taking charge: How to be a proactive patient · 11 replies
  • I live in S jersey and last biopsy 9/13 3ta had BCG 6 treatments cysto was good but repeat biopsy 2/14 shows focal and abnormal cells on BCG 4/6 treatments . Will have repeat biopsy 6 weeks after. Need ...

neobladder Surgery

Ron1945
  • By Ron1945 · Posted April 12, 2014
  • In Newly diagnosed · 12 replies
  • I am Schduled to have neobladder surgery in May. I would appreciate anyone that has went thru this surgery to please give me there insight on recovery problems challanges etc ...

bladder Cancer

Cherylcash
  • By Cherylcash · Posted April 12, 2014
  • In Caregivers corner · 6 replies
  • My husband has gone through treatment for two years for Bladder cancer. The treatment has been BCG. The cells are always there when he has the three month check. My question is that next Wednesday they ...

immunotherapy

SASHAMORE
  • By SASHAMORE · Posted April 12, 2014
  • In Newly diagnosed · 19 replies
  • i recently had the TURBT procedure, and my doctor wants me to start BCG in a few weeks. he says i am now cancer free, but i was diagnosed as TA, and early stage. i am very worried about side effects in ...

Blood in Urine what could it be..

ppatel
  • By ppatel · Posted April 12, 2014
  • In Caregivers corner · 6 replies
  • Hi All, My dad is 54 and was diagnose with TCC cancer having lump nodes in kidney and lesion in liver and neck and nodules in lungs in Dec 2013. We had a pet scan 25th Feb and we got our results and they ...

ostomy bag vs. Indiana pouch?

cswpink
  • By cswpink · Posted April 12, 2014
  • In Treatment choices · 32 replies
  • I will be having RC on 4/22 and am having difficulty deciding on the 2 options available to me. I would like to hear how some of you made this decision, what questions did you consider? Are you happy ...

Increased acid level

sairam2367
  • By sairam2367 · Posted April 12, 2014
  • In Life after radical cystectomy · 8 replies
  • I am writing this after a while . It's been almost two and a half months and my husband is doing well( almost back to normal life with playing tennis ,appetite back and travel ) Except for last few days ...

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