Discussions

travelling and in pain

KPDD
  • By KPDD · Posted yesterday at 4:51 pm
  • In Life after radical cystectomy · 2 replies
  • I had my rc/ic six months ago. I was feeling really good four months after the surgery and had bought tickets to SP tour. I really needed to get out of the house. Week and a half before I left for the ...

A Success Story

Super1gator
  • By Super1gator · Posted yesterday at 3:50 pm
  • In Taking charge: How to be a proactive patient · 5 replies
  • A Success Story Narrative The following is a narrative of my experience with T1 high-grade bladder cancer first discovered in December, 2013. This narrative is a success story on many levels. Through ...

Agent orange hearing Monday

kristenrogers84
  • By kristenrogers84 · Posted yesterday at 3:10 pm
  • In Sharing loss and connecting · 1 reply
  • My mother in law is going in front of the VA judge on Monday. She filed a claim for my father in law who has since passed from bladder cancer. He was in Vietnam in 1965 and like most in the war, was exposed ...

Agent orange hearing Monday

kristenrogers84
  • By kristenrogers84 · Posted yesterday at 3:08 pm
  • In Caregivers corner · 0 replies
  • My mother in law is going in front of the VA judge on Monday. She filed a claim for my father in law who has since passed from bladder cancer. He was in Vietnam in 1965 and like most in the war, was exposed ...

kidney stone

Cnetter
  • By Cnetter · Posted yesterday at 12:07 pm
  • In Help desk · 3 replies
  • I think I might be trying to pass a kidney stone. I have an urostomy and it is bleeding quite a lot. My back and left side hurt and I am very nauseated. Any suggestions ...

help!!!

carolinegauld
  • By carolinegauld · Posted yesterday at 5:13 am
  • In Newly diagnosed · 20 replies
  • I am now nearly four months post urostomy surgery and had my ups and downs but have had so much good advice and support from you guys, for which I am so grateful. Unfortunately on monday I went to the ...

UTI

Joedan
  • By Joedan · Posted yesterday at 4:44 am
  • In Life after radical cystectomy · 6 replies
  • My husband had RC one year ago,followed by chemo regime. He had no symptoms,but was just diagnosed with UTI. Is that common after RC this far out ...

night bags

ohhhcrap
  • By ohhhcrap · Posted April 17, 2014
  • In Life after radical cystectomy · 8 replies
  • Where can you purchase tubing to extend the night drainage bag. On some of the urostomy sites I've looked the tubing seems very expensive. Just wondering how everyone else extends the night bag tubing ...

when to move into fiber

ander12
  • By ander12 · Posted April 17, 2014
  • In Life after radical cystectomy · 5 replies
  • This morning I had an awful bowel movement. Very hard stoole and the. Watery afterwards. I did take 2 stools softners last night as I felt something was not right. Nothing has changed in my low residue ...

Newly diagnosed and TURBTed

Trbleshter
  • By Trbleshter · Posted April 17, 2014
  • In Newly diagnosed · 11 replies
  • Thank you all so much for being here. I'm in Atlanta and had a Turbt last week to remove five papillary growths. I'm still home enduring this blasted folley. I will see my doc on Monday for the pathology ...

you

irishpappy
  • By irishpappy · Posted April 17, 2014
  • In Life after radical cystectomy · 6 replies
  • hi, was just thinking of all of you on here, ...... word's sometimes just don't flow ...... BLESSED BE EVERYONE'S DAY ...

OAB from BCG

ChuckT
  • By ChuckT · Posted April 17, 2014
  • In Living with non-invasive bladder cancer · 4 replies
  • After my first TUR (Dec 2012) and initial 6 BCG treatments I developed an Overactive Bladder (OAB) getting up 5 times per night and averaging 20 times per day. Through bladder control techniques I was ...

A man's point of view on a neo bladder.

Aud53
  • By Aud53 · Posted April 17, 2014
  • In Life after radical cystectomy · 11 replies
  • A friend of mine has T3 and will be having surgery next week. The plan is for a neo. He asked me about leaking and I can only tell him from a woman's experience. Easy enough for me to wear a very light ...

Informative flow chart

fmsincolumbus
  • By fmsincolumbus · Posted April 17, 2014
  • In Treatment choices · 6 replies
  • I am 49 year old male with T2 bc - progressed from T1 after 2 years of Turbts and BCG treatments. I am under the care of a great group of physicians at the OSU James Cancer center in Columbus Ohio. I ...

Holy hand grenade, batman- it's in my kidney!

BetsyLou42
  • By BetsyLou42 · Posted April 17, 2014
  • In Newly diagnosed · 25 replies
  • Welp, here we are almost two years after originally receiving my bladder cancer diagnosis and going though hell and back, and something's afoot in left kidney land. I'm not screwing around- they're yanking ...

What to expect and how to cope

debdon
  • By debdon · Posted April 17, 2014
  • In Newly diagnosed · 13 replies
  • Hello A very close family member is in his 70's and has just been told that he has bladder cancer and he will have the operation in 2 weeks to remove his bladder and he will have a bag. Can anyone give ...

Recurrance after BCG. What's next?

tangled_knot
  • By tangled_knot · Posted April 16, 2014
  • In Caregivers corner · 5 replies
  • Hi everyone, This is my first post to this forum, and am so thankful for finding it. My dad (83) was diagnosed with T1Hg cancer just under a year ago. At the time, it hadn't penetrated the muscle, so ...

Help

jill1225
  • By jill1225 · Posted April 16, 2014
  • In Life after radical cystectomy · 4 replies
  • Hi there all. I am not doing great..so many thing have happend in my life but why I am here is I am going to a water park in May this will be my first time back in water like swimming since my surgery ...

chances of not being cancer?

computer
  • By computer · Posted April 16, 2014
  • In Newly diagnosed · 21 replies
  • Microscopic hematuria and urgency turns out to be a bladder "polyp." I am a 48 yr. old female who has had an ultrasound and cystoscopy and now needs to meet with a urology surgeon for removal. I just ...

penile clamp

Geneura
  • By Geneura · Posted April 16, 2014
  • In Life after radical cystectomy · 7 replies
  • Has anyone tried a penile clamp? My husband is looking into them but are they safe and comfortable ...

Things you can do

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