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Must Read Before Deciding on RC!!!

  • By gmoorefl2 · New reply 10:13 am
  • Journal · 77 replies
  • YOU MUST READ THIS BEFORE DECIDING ON RADICAL CYSTECTOMY (RC)!!! For those of you who have been diagnosed with organ specific bladder cancer and are being told the only option is radical cystectomy, you ...

Process for getting second opinion via mail/fedex?

  • By Dee76 · Posted 10:08 am
  • Discussion in Newly diagnosed · 0 replies
  • Hi everyone, As I posted in an earlier email, I am a 43-year-old woman that has been newly diagnosed with BC. I'm having a second TURBT in a week to get muscle. The Dr. seems to think I am T1 or T2 (High ...

Another Interesting Research Study

  • By jennyssis · New reply 9:55 am
  • Discussion in Newly diagnosed · 1 reply
  • Here is another really interesting study published this year about the types of bladder cancer - 4/01/140130121320.htm Karen ...

1st BCG Treatment

  • By scottmonaghan · Posted 9:55 am
  • Journal · 0 replies
  • Had first treatment yesterday, April 22. Went well, although insertion of catheter without lidocaine wasn't any fun. But it's all over quickly - less than 10 minutes start to finish. Felt a little "blah ...



bladder removal

  • By thsttymom · New reply 9:47 am
  • Journal · 5 replies
  • My dad has bladder cancer and they are removing his bladder next week. Has anyone been thru this? Any experiences good or bad ...

surgery update

  • By dannniel · New reply 9:34 am
  • Journal · 12 replies
  • Hi this Dannniel. Had surgery on 17th, still at IU. Doing good. Hope to be released soon. Update when home. Happy Easter. Dan :D ...

Shocking Report

  • By Lazy-Bones · New reply 9:29 am
  • Journal · 5 replies
  • In February, 2014, I noticed a large quantity of blood in my urine. I went to the family doctor, who thought it was probably a minor UTI, so he prescribed 7 days of an antibiotic. After 3 days, I had ...

What About This

  • By jrt · New reply 9:24 am
  • Discussion in Living with non-invasive bladder cancer · 2 replies
  • I started a year ago with a Ta low grade pap tumor and a spot of CIS. I had TURBT to remove pap tumor and two series of 6 each BCG's for CIS. Last cysto under general anesthesia involved 6 biopsies which ...

Hernia repair

  • By MrsMindiJean · New reply 9:24 am
  • Discussion in Life after radical cystectomy · 2 replies
  • I currently have a hernia the size of a soccer ball, to the left of my belly button stoma (result of bladder cancer and Indiana Pouch). I will be having surgery on May 6 and would like to know what to ...

Night drainage bags

  • By Guidojoe · New reply 9:06 am
  • Discussion in Help desk · 10 replies
  • So, here's a dumb question: I have read on this site that the night drainage bag should last 2-4weeks before replacing with a new one. I have been using the same reliamed bag for probably 2 months. It ...

low white blood cells when having chemo

  • By tahoemama55 · New reply 8:53 am
  • Journal · 3 replies
  • My husband has bladder cancer stage 3 he is having chemo and now he has low white blood count and they are stopping chemo and giving him shots for 3 days.. has anyone had this when they had chemo.. He ...

Bladder removal

  • By thsttymom · New reply 8:35 am
  • Discussion in Life after radical cystectomy · 6 replies
  • My dad is having his bladder removed next week. I can't find anyone in my area that has had this done. Has anyone been thru this? If so what good advice can you offer ...

opting for bladder removal

  • By MzMc · New reply 8:24 am
  • Discussion in Living with invasive bladder cancer · 42 replies
  • Not really sure how to define "invasive" but my aggressive tumor, T1-capillary, is in the lamina propria. I also have T1 insitu covering so much of the bladder that a resection will not leave enough healthy ...

Seal Problems

  • By LarryG1 · New reply 7:33 am
  • Discussion in Life after radical cystectomy · 5 replies
  • I have used the convatec two piece system since my RC, 4 years ago. About 3 months ago the seal was fragmenting when I changed it. This never occurred before, but now happens each time I change. .I am ...

Stage 4 bladder cancer

  • By cutie21410 · New reply 7:30 am
  • Discussion in Newly diagnosed · 34 replies
  • Hi, My husband was diagnosed with bladder cancer about a month ago. Within the last 1-2 weeks, we have found out it is stage 4 TCC. He has a 5.3cm bladder tumor with groin lymph nodes affected and suspected ...

Body image program for cancer survivors

  • By robin5 · Posted 6:05 am
  • Discussion in Taking charge: How to be a proactive patient · 0 replies
  • I saw this and thought it might be interesting for Bcanners- On Wednesday, April 30, an educational program called “Embodied: Coping with Cancer and Body Image Changes” will discuss common concerns about ...

female age 58-new here-need some hope

  • By tweekerbeeker · New reply 5:33 am
  • Discussion in Newly diagnosed · 14 replies
  • well, first appt. with urologist is over. Going for CT scan ASAP, then cystoscopy(sp?) in office. I'm trying to get prepared for all this, as it came out of the blue. So-some background. I know from past ...

Foley Catheter help

  • By chiprich · New reply 4:53 am
  • Discussion in Life after radical cystectomy · 3 replies
  • Hi, I had the RC with a neoBladder 3 weeks ago and for the most part AOK. I have an ongoing problem that the tube that enters the penis from the Foley Catheter (where urine and mucos exits the body) often ...

ostomy bag vs. Indiana pouch?

  • By cswpink · New reply yesterday at 9:57 pm
  • Discussion in Treatment choices · 32 replies
  • I will be having RC on 4/22 and am having difficulty deciding on the 2 options available to me. I would like to hear how some of you made this decision, what questions did you consider? Are you happy ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.