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Must Read Before Deciding on RC!!!

  • By gmoorefl2 · New reply 12:00 pm
  • Journal · 37 replies
  • YOU MUST READ THIS BEFORE DECIDING ON RADICAL CYSTECTOMY (RC)!!! For those of you who have been diagnosed with organ specific bladder cancer and are being told the only option is radical cystectomy, you ...

Happy Easter BCan Buddies

  • By snettie · New reply 11:42 am
  • Journal · 8 replies
  • Wishing all of you a Happy Easter - may all your problems be wee ones and may you have a cheerful and sunny easter - hugs and XX from this side of the pond. Where the sun has got his Easter Bonnet on ...

She's still ill but hanging in there

  • By Angelmate63 · New reply 11:42 am
  • Journal · 3 replies
  • Maria is now awake but still in a lot of pain she's very upset that the neobladder has been removed and we have to wait for the surgeons to decide what their doing next, We spoke to her nephrologist who ...

Newly diagnosed and TURBTed

  • By Trbleshter · New reply 11:16 am
  • Discussion in Newly diagnosed · 7 replies
  • Thank you all so much for being here. I'm in Atlanta and had a Turbt last week to remove five papillary growths. I'm still home enduring this blasted folley. I will see my doc on Monday for the pathology ...

Day 3 of chemo

  • By sweet28546 · New reply 11:01 am
  • Journal · 9 replies
  • I am almost complete with this first round of chemo. The only side effect I had was an anxiety attack. That was quickly taken care of. Tonight after my last bad finishes I will be given 2 units of blood ...

Cancer info most people do not know

  • By RosieQ22 · New reply 10:34 am
  • Journal · 13 replies
  • I have learned, over these many years of my own and others’ cancer journeys, not all cancers are life threatening, nor require body part removal, nor need chemo or radiation nor any other type of treatment ...


  • By carolinegauld · New reply 10:23 am
  • Discussion in Newly diagnosed · 13 replies
  • I am now nearly four months post urostomy surgery and had my ups and downs but have had so much good advice and support from you guys, for which I am so grateful. Unfortunately on monday I went to the ...

Holy hand grenade, batman- it's in my kidney!

  • By BetsyLou42 · New reply 9:35 am
  • Discussion in Newly diagnosed · 19 replies
  • Welp, here we are almost two years after originally receiving my bladder cancer diagnosis and going though hell and back, and something's afoot in left kidney land. I'm not screwing around- they're yanking ...

Should I request more frequent cystoscopy?

  • By ks0012 · New reply 9:33 am
  • Discussion in Newly diagnosed · 6 replies
  • Im from Australia but have found this network very reassuring, Its my first time talking about this but I have a lot of questions too. I was diagnosed with noninvasive bladder cancer last November after ...

night bags

  • By ohhhcrap · New reply 9:31 am
  • Discussion in Life after radical cystectomy · 8 replies
  • Where can you purchase tubing to extend the night drainage bag. On some of the urostomy sites I've looked the tubing seems very expensive. Just wondering how everyone else extends the night bag tubing ...

A man's point of view on a neo bladder.

  • By Aud53 · New reply 9:12 am
  • Discussion in Life after radical cystectomy · 11 replies
  • A friend of mine has T3 and will be having surgery next week. The plan is for a neo. He asked me about leaking and I can only tell him from a woman's experience. Easy enough for me to wear a very light ...

Bacterial infections....

  • By Ben_Gaye · New reply 9:09 am
  • Journal · 6 replies
  • I had bladder and prostate removed 10/03/2013. Since then I have had 2 bacterial infections in the urinary tract. I am on antibiotics now..Ciprofloxacn..I have done everything that I was told to do.We ...


  • By irishpappy · New reply 9:01 am
  • Discussion in Life after radical cystectomy · 10 replies
  • peep's, sorry for the delay in getting back on here last week... the new's is in my peep's..... all 6 month test are done..... Im very, very happy to say... IM CANCER FREE PEOPLE, we've been doing the ...

artificial sphincter

  • By Geneura · New reply 8:48 am
  • Discussion in Life after radical cystectomy · 9 replies
  • Has anyone out there had an artificial sphincter inserted? My husband has had an RC and is suffering from incontinence and this is one of the suggestions but it seems rather invasive ...

when to move into fiber

  • By ander12 · New reply 8:30 am
  • Discussion in Life after radical cystectomy · 4 replies
  • This morning I had an awful bowel movement. Very hard stoole and the. Watery afterwards. I did take 2 stools softners last night as I felt something was not right. Nothing has changed in my low residue ...


  • By Joedan · New reply 7:51 am
  • Discussion in Life after radical cystectomy · 3 replies
  • My husband had RC one year ago,followed by chemo regime. He had no symptoms,but was just diagnosed with UTI. Is that common after RC this far out ...

What does Dr Lamm mean??

  • By mis2kids · New reply 7:30 am
  • Discussion in Treatment choices · 6 replies
  • Just wondering exactly what Dr Lamm meant. I asked him about a low grade occurrence after high grade original diagnosis and 6 BCG treatments. He said "May need to have Rx for the low grade disease, such ...

Which surgery would be best

  • By ciom2023 · New reply 7:08 am
  • Journal · 5 replies
  • I had my biopsies on Tuesday, where the urologist took from 4 locations in the bladder. Now while I wait for the results, I'm beginning to think about the type of surgery I'll be having. I'm wondering ...

papillary bladder cancer

  • By RosieQ22 · New reply 6:36 am
  • Discussion in Living with non-invasive bladder cancer · 49 replies
  • I am still learning more since my original bladder cancer diagnosis in 2000 - 14 years ago and 6 TURBT to date. My most recent surgery was New Years Eve 2013. PUNLMP is a new term I now understand as ...

Please help

  • By SASW · New reply 1:23 am
  • Discussion in Help desk · 11 replies
  • I had a partial cystectomy on Wednesday and was sent home on Friday. I have a Foley catheter. Is it normal for there to be urine in the toilet after a bowel movement? I also was feeling very uncomfortable ...

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.