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Adding Porphyria to site

  • By RNpeggy · Posted January 22, 2012
  • 0 replies
  • Many patients with this disease are evaluated for autoimmune diseases... Labs will show positive for ANA... Etc... But the symptoms for specific diseases are not there... I think that there is a significant ...

Contact your senators if you want to keep your supplements

  • By naturalgirl · New reply December 12, 2011
  • 3 replies
  • Many supplements may be a thing of the past of the FDA has their way. The only way to really stop this is to contact your representatives so that this does not pass. The best way to defeat these new rules ...


  • By laughingnana · Posted November 30, 2011
  • 0 replies
  • American Autoimmune Related Diseases Association (AARDA) Recorded footage of Part II in the Vasculitis in Autoimmunity webinar series. Vasculitis in Autoimmunity II: Embracing the future of research ...


  • By laughingnana · Posted November 21, 2011
  • 0 replies
  • Rochelle Roberts Ray via American Autoimmune Related Diseases Association (AARDA) This is part 2 of a 3 part series. For those that missed the first part, it was recorded and posted on their website ...


Rainpebble (Inactive)
  • By Rainpebble (Inactive) · New reply November 3, 2011
  • 1 reply
  • Please follow the link below and sign my petition for more research and awareness for sarc. ...


  • By ScOoBy-DoO · Posted October 20, 2011
  • 0 replies
  • Has anyone ever been to Cumberland Hospital and if so how was the experience ...

Rare and Neglected Disease Caucus in the United States House of Representav

  • By dcarlo · New reply October 11, 2011
  • 6 replies
  • The United States House of Representatives has a caucus for Rare and Neglected diseases. The caucus is currently accepting new members, so please ask your United States Representatives member to join ...

Dermatomyositis whats your story

speedymkflash (Inactive)
  • By speedymkflash (Inactive) · New reply August 8, 2011
  • 2 replies
  • i have had Dermatomyositis for 6 years now and i am no longer week from this but still show the classic symptoms like shortness of breath and the rash on the knuckles elbows and eyelids but now i am fit ...

Interesting Article on Arthritis and Auto Immune Disease

  • By strindo · New reply August 3, 2011
  • 7 replies
  • I subscribe to Dr. Kim on Facebook and he posted this article recently. I found it to be very informative and thought I'd share it.... ow-about-arthritis ...

Guillain-Barre syndrome

  • By my3boyzmom · New reply July 18, 2011
  • 1 reply
  • I suffered from Guillain-Barre syndrome when I was 9 years old. Since then when I mention it to doctors they act as though it's nothing big. Has anyone experianced this disease and have any long lasting ...

I wanted to share this..

  • By fordfrog · New reply July 6, 2011
  • 6 replies
  • I want to share this article with everyone. n_he_me/us_med_healthbeat_arthritis_myst ery this may be a wake up call for the medical community ...

Social Security Disability

  • By kathi1791 · New reply May 18, 2011
  • 1 reply
  • Tomorrow, 3/16/11, SSA will hold a meeting on Autoimmune Disorders and compassionate allowance. It will be broadcast as a webcast and can be seen at Under useful links click more then click compassionate ...

Rare and Neglected Disease Caucus in the United States Congress.

  • By dcarlo · New reply May 17, 2011
  • 6 replies
  • I wanted to make everyone on this site aware of a caucus in the Federal House of Representatives. It is called The Rare and Neglected Disease Caucus. I ask that everyone on this site to contact their ...

Good Website

Sumner (Inactive)
  • By Sumner (Inactive) · New reply April 14, 2011
  • 2 replies
  • Howdy, I'd just like to pass on to all those who have an autoimmune disorder, joint problems, Fibromyalgis, etc. a website that covers many topics and disorders. I get their newslettewrs and find them ...

Opinion Please on IVIG treatment,for autoimmune disease???

  • By casagrande · New reply February 1, 2011
  • 6 replies
  • Have just heard of this Different kind of treatment?? I have looked it up on Google and read of it on most of the links... Don't know what to think, it's quite a serious procedure,involving like having ...

Vitamin D - The Newest Supernutrient?

  • By thebeaubeau · New reply November 8, 2010
  • 9 replies
  • At one of my last endocrinologist visits, the doctor suggested I have my Vitamin D levels tested, stating that Vitamin D deficiency is nearly universal these days. What!? This is not Seattle and I don't ...

Question on CRP levels?

  • By TiffanyB · New reply September 10, 2010
  • 6 replies
  • I recently got some blood work done and my CRP level is at 10.8. I've been having alot of pain and stiffness lately and unexplained fevers. My question is How high were other peoples CRP levels when they ...

Vitamin D deficiency, DNA and disease

  • By ArtFaerie · New reply September 10, 2010
  • 5 replies
  • Article in Science Daily 8/24/2010. 0/08/100823172327.htm Quote: "The researchers found 2,776 binding sites for the vitamin D receptor along the length of the ...

Message from Tinman

  • By Tinman · Posted December 31, 2009
  • 0 replies
  • Hello everyone who reads this. I am Tinman who had been living in a tin house for awhile. I am a little less homeless. Things have changed for the better now. I no longer live in the tinhouse but was ...

Swine Flu Shot

  • By BeachBumJan · New reply November 9, 2009
  • 6 replies
  • On talk radio there was a doctor that said, "People with autoimmune diseases should NOT get the Swine Flu shot." He said there is somethin in the vaccine that can trigger autoimmune diseases. Does anyone ...

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