Secondary amyloidosis (AA)

Information and support for those with secondary amyloidosis.


Kiacta trial

  • By TrishaPJ · New reply February 10, 2014
  • 3 replies
  • Just wanted to report to the group that I have just completed my second year on the trial. My creatinine is under 2 but still very high amt of protein in my urine. They are continuing trial until they ...

Secondary amyliodosis??

  • By Lala123 · New reply May 22, 2013
  • 7 replies
  • Hi. I was wondering if anyone knows what kind of chronic infections or inflammatory diseases cause aa amyliodosis. They are suspecting I have that since amyliod deposits show on my right lung, stomach ...

revlimid maintenance

  • By Bmencher · New reply May 10, 2013
  • 1 reply
  • My husband has been on a weekly CyBorD regimen since December. His light chains are in the normal range, so his response has been excellent. We are trying to determine what to do for maintenance. One ...

Boston University Test Results Timing

  • By Char-les · New reply April 8, 2013
  • 2 replies
  • I am new to the forum and was recently diagnosed with amyloidosis. I am a 52 year old male in end stage renal disease and my kidney biopsy tested positive for amyloid in Toronto. I have had my sample ...

Is anybody out there?

  • By RobinsonRose · New reply July 4, 2011
  • 14 replies
  • I would love to exchange knowledge, ideas, and support with anyone who has Secondary Amyloidosis. During all my appointments at the clinic in Boston I've never met anybody who had this diagnosis ...

My grandma has been diagnosed with amyliodosis

  • By India6720 · New reply March 26, 2011
  • 6 replies
  • This is really difficult for me. My grandma has been in and out of the hospitals for the past 12 month. 2 weeks ago her kidney doctor saw she has to much protein in her kidneys an she was admitted. they ...

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