Hepatitis C

Information and support for hepatitis C.

Discussions

Sovaldi, ledipasvir and Ribavirin trial completed

Strider100
  • By Strider100 · New reply 2:37 am
  • 10 replies
  • I wanted to share my husband's experience with the drugs so far. He completed the trial of the above Gilead drugs two weeks ago and is feeling much better, although he is still dealing with cirrhosis ...

New Medications

TheLordIsMyShepherd
  • By TheLordIsMyShepherd · New reply 2:33 am
  • 6 replies
  • I have Hep C...geno type1a. Tried the interferion and ribiviron 7 years ago and was a non-responder. I found a new Dr. he prescribed a combo of Sovaldi and Olysio. Said it had a 90% sucess rate. I'm just ...

Liver transplant and having a glass of wine for special occasions

LynnSB
  • By LynnSB · New reply yesterday at 11:49 pm
  • 13 replies
  • I received a double transplant liver/ kidney on December 3, 2013. Doing great. Went back to work march 18th. I was wondering if anyone that has had liver transplant has had a very occasional glass of ...

miracles?

fretwobeme
  • By fretwobeme · New reply yesterday at 9:39 pm
  • 9 replies
  • My doctor says my hep c is gone. I've had it for 12 yrs & have never treated it. Has anyone ever heard of this ...

I've had it!

TheLordIsMyShepherd
  • By TheLordIsMyShepherd · New reply yesterday at 6:15 pm
  • 4 replies
  • The more I reserch, the more confused I become!!! Off label, wait... I'd just like a good sucess rate! Iv'e been told by my new Dr. that these new meds, once tried, can not be used again!!!!! So...HELP ...

Genotype 3A

chosenn
  • By chosenn · New reply yesterday at 5:44 pm
  • 1 reply
  • I am taking Sovaldi and Ribavirin for Hep C, genotype 3A. The virus cleared in two weeks. I have completed 10 weeks and will have to take the meds for 24 weeks due to my genotype. Are there any other ...

Bloating of Stomach

Iamhealed
  • By Iamhealed · New reply yesterday at 5:34 pm
  • 3 replies
  • My husband is on the Savaldi and Ribovirin. He is doing wonderful but my question is, is it normal for his stomach to bloat or is this just an effect of the medication ...

Your input needed today on Hep C Medication Costs

ALF_David
  • By ALF_David · New reply yesterday at 5:53 am
  • 3 replies
  • Hi everybody, we've been asked to work on an article with a major news outlet about the costs of Sovaldi and other Hep C treatments, and would like to hear from you. Have you or anyone you know had financial ...

platelets and white blood cells

april78
  • By april78 · New reply yesterday at 4:52 am
  • 15 replies
  • My husband went to Dr. On Monday they called Tues said he has incredibly low platelets and white blood cell counts of course I know this isn't good his inr should be 2 it is 23! I don't really understand ...

Red Palms......What next???

bajamama
  • By bajamama · New reply April 21, 2014
  • 10 replies
  • Hi All..... I finally went to a Hepatologist after learning about them on this site. He's a wonderful man who spends the time making sure I understand and all of my questions are answered. I like that ...

New Hep C Meds

Bondrika
  • By Bondrika · New reply April 21, 2014
  • 54 replies
  • Hi all! I'm new here, just found site this morning. I have been on tx twice before but haven't reached SVR. I have a new doctor at Emory, in Atlanta, that started me on the new Sovaldi and Olysio Saturday ...

Olysio one time a day and Sovaldi

Guessgirlshell
  • By Guessgirlshell · New reply April 21, 2014
  • 2 replies
  • I was excited I was going to start this medication that was approved! I have 1A, have failed Interferon?Riba...what a nightmare. I now have cirrhosis. I ALSO have Autoimmune hepatitis . I went to the ...

Drowning in self pity!

TiredOfBeingSickandT (Inactive)
  • By TiredOfBeingSickandT (Inactive) · New reply April 19, 2014
  • 4 replies
  • As I look at all the posts and people so much sicker than I, I need to get over it!!! I need to find my gratitude. Yesterday I was dissapointed that I could not morally get a manicure and pedicure ...

Liver Biopsy

focus4freedom
  • By focus4freedom · New reply April 18, 2014
  • 13 replies
  • Can anyone tell me if a liver biopsy is painful ? I heard they don't put you to sleep ! I was diagnosed March 14th, a month and one day ago. I feel like there is before March 14th and after March 14th.....This ...

Is anyone awake?

TiredOfBeingSickandT (Inactive)
  • By TiredOfBeingSickandT (Inactive) · New reply April 18, 2014
  • 8 replies
  • I have been approved for the, I guess newest treatments. Sovoldi and Oslyio??? Spell check. I have been through the interferion and ribivirion treaments several years ago. Yuk!!! I am a non responder ...

I guess I get up too early

TiredOfBeingSickandT (Inactive)
  • By TiredOfBeingSickandT (Inactive) · New reply April 18, 2014
  • 8 replies
  • I sleep 5 out of 7 days...I usually get up around 3am est. Anyone like me ...

The name free

focus4freedom
  • By focus4freedom · New reply April 17, 2014
  • 2 replies
  • I've been reading discussions and I just noticed someone else goes by Free as well. I'm focus4freedom so maybe it won't be confusing......two totally different cases and people.... I'm the " Free " who ...

platelets and white blood cells

april78
  • By april78 · New reply April 16, 2014
  • 2 replies
  • My husband had went to the Dr. On Monday they did blood work and called on Tuesday to tell him that he has very very low counts on white blood cells and platelets and that his inr is 23 when it should ...

HELP - EU buying Sovaldi in USA

AmeliaG
  • By AmeliaG · New reply April 16, 2014
  • 4 replies
  • Hi, My Mother-in-law has Hepatitis C, in cirrosis stage. She is genotype 1. She lives in Portugal . In Europe SOVALDI is theoretically available just in hospitals, throught national healthcare system ...

platelets and white blood cells

april78
  • By april78 · Posted April 16, 2014
  • 0 replies
  • My husband had went to the Dr. On Monday they did blood work and called on Tuesday to tell him that he has very very low counts on white blood cells and platelets and that his inr is 23 when it should ...

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The American Liver Foundation would like to remind visitors and group members that the views and opinions expressed on this site are not necessarily those of ALF. Please consult your personal physician regarding any medical information that is shared on this site.