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lost

welshladync
  • By welshladync · Posted January 28, 2014
  • 6 replies
  • I have recently been told not only do I need a liver transplant but now I'm also having a kidney transplant O thought I could handle this but lately I'm stressing such I'm making myself sicker. Being ...

another day

khaas
  • By khaas · Posted January 27, 2014
  • 5 replies
  • the man I love and am married to has changed so much. he is a skeptic, can't understand or has no desire to understand his condition. always someone else's fault. always out to get what he wants even ...

Drowning

Ketzelkitty
  • By Ketzelkitty · Posted January 27, 2014
  • 5 replies
  • This is my first post, so I hope there are no rules that I break... I'm just going to pop if I don't get this out, because I have bouts of crying now...My Dad is the one that is sick, dying, but it's ...

This WILL affect you (Part 2)

TripleA
  • By TripleA · Posted January 27, 2014
  • 10 replies
  • I previously posted that starting in January 2015, CMS (Centers for Medicare and Medicaide Services) is planning to change its Medicare regulations, removing "protected status" from the immunosuppressant ...

Meld Score

candaceincanada
  • By candaceincanada · Posted January 27, 2014
  • 13 replies
  • My mom has alcoholic cirrhosis. She has ascites and went for her 5th drain today. I have been trying to get her MELD score but nobody seems to know. Hoping the specialist will... Haven't seen him since ...

Touching base

nannygirl
  • By nannygirl · Posted January 27, 2014
  • 3 replies
  • Well, my sweet love went to heaven what seems like a week ago when in reality will be a month on Feb. 3. The world just keeps on spinning around me as if nothing ever happened. I want to say STOP! I need ...

Just Another Day in Paradise Chapter Three

Clint07
  • By Clint07 · Posted January 26, 2014
  • 12 replies
  • A lot has happen since I wrote Chapter two. Since November I have been battling getting lightheaded every time I stand or drive. Added a ton of new people on my medical team. Now I have another Eye Doctor ...

Has anyone had a Living Donor Liver Transplant?

tutie78
  • By tutie78 · Posted January 24, 2014
  • 8 replies
  • I recently was told by my doctors that I could have a Living Donor Transplant. I had been told for years that I couldn't. So I am very excited! But I am nervous! I have done some research but what I really ...

not a good week

Lakota1259
  • By Lakota1259 · Posted January 24, 2014
  • 6 replies
  • I went to the ER because I was coughing and had chest and abdomen pain. I have pneumonia, my spleen is enlarged now and I have a fluid filled cyst in my abdomen. The doctor was telling me I might need ...

Follow Up

Jim_12
  • By Jim_12 · Posted January 23, 2014
  • 3 replies
  • Well had my visit starting this New Year with my UK Liver Doctor, my second MRI showed a normal appearance with no leasons present. I was amazed at this finding, but to keep a level mind here, my Doctor ...

HEPATIC ENCEPHALOPATHY

bgolovan
  • By bgolovan · Posted January 23, 2014
  • 4 replies
  • DOES ANY ONE KNOW THAT ONCE YOU GET A NEW LIVER, YOU CAN STILL HAVE RESIDUAL EFFECTS FROM HE PRIOR TO THE TRANSPLANT. I HAD A VERY SEVERE CASE OF HE WHERE IT PUT ME IN A COMA. I DO NOT HAVE 100% OF MY ...

a little fyi

Austingrl
  • By Austingrl · Posted January 23, 2014
  • 2 replies
  • My nephew was born with type 2 diabetes and they have put a pacemaker in him. I just wanted to give a website that goes into the details http://www.onlymyhealth.com/pacemaker-ta ckle-type-diabetes-1302601763 ...

HE Webinar Tonight

ALF_David
  • By ALF_David · Posted January 23, 2014
  • 3 replies
  • Hi everyone, I just wanted to post one more reminder that our 1st of 4 free webinars on Hepatic Encephalopathy will take place TONIGHT at 7:00 pm ET and again at 9:30 pm ET. It will feature an expert ...

HE and LIFE

Sincerly79
  • By Sincerly79 · Posted January 23, 2014
  • 4 replies
  • I am so overwhelmed, confused, angry and the list goes on. My father was diagnosed with HE ON 12/8/13 and has been hospitalized several times. He has seen many different physicians. He was admitted to ...

Damn cirrhosis

ama55
  • By ama55 · Posted January 23, 2014
  • 10 replies
  • It's 4am. Just got back from the ER...husband with shaking chills, low grade temp, started vomiting in the ER, some of that was blood. They think he may have an infection in the acities...just left by ...

For the ones left behind

Sadieluv
  • By Sadieluv · Posted January 22, 2014
  • 21 replies
  • I like this poem for the ones left behind. I though of Jparr, Nannygirl, Riatd and miss Beasley....but it's for all who have lost a loved one to this awful disease..... As I sit in heaven and watch you ...

New journal entry. January 21, 2024

badboyfun
  • By badboyfun · Posted January 21, 2014
  • 17 replies
  • To January 2014 Happy New Year everyone. Well, I made it through the horrible expience of my ablation and Things have progressed nicely for me since last you heard from me. I went through my Transplant ...

When a month becomes a year (and counting)

SAMARAL
  • By SAMARAL · Posted January 20, 2014
  • 3 replies
  • Hi everybody! Although it’s been quite some time since I share something with you, I’ve been following the posts that everybody shares. I want to thank you all for your testimony. My father was diagnosed ...

liver cancer now with kidney problems

maresha
  • By maresha · Posted January 19, 2014
  • 6 replies
  • Been a rather exhausting week or two here. My husband is failing, and I see it more and more every day. His cough has not improved, probably worsened and as I mentioned at my last post the last CT of ...

My notes from support group. Sovaldi.

Joe_in_RC
  • By Joe_in_RC · Posted January 18, 2014
  • 9 replies
  • Hepatitis C Support Group January 17, 2014 Gilead presentation of Sovaldi Genotype/Regimen/Duration/Cure Rate (%): Genotype 1: Sovaldi, Riba, Peg Interferon for 12 weeks. 90% cure rate. Interferon intolerant ...

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