New posts

Chronic diarrhea post transplant

CodysMom
  • By CodysMom · Posted March 23, 2010
  • Discussion in Teens · 5 replies
  • My son received a stem cell transplant in June 09 after being diagnosed with ALL six months before. He has chronic diarrhea and we are so tired of living life this way. Any tips or suggestions? Anyone ...

GVHD of the gut

CodysMom
  • By CodysMom · Posted March 21, 2010
  • Discussion in Treatment · 0 replies
  • My son is having GVHD of the gut which results in bloody stools from the foods he eats. We eat little or nothing for a month and then boom, bleeding and back to square one. Anyone experiencing this ...

Crying out in pain at night

brandyg
  • By brandyg · Posted March 18, 2010
  • Discussion in Newly diagnosed · 1 reply
  • My daughter has slept thru the night since she was 9months old but since being diagnosed and starting her chemo in Jan these last few weeks have been horrible she wakes up screaming in pain several times ...

MY 2yr old and ALL

brandyg
  • By brandyg · Posted March 17, 2010
  • Discussion in Emotional support for parents and caregivers · 3 replies
  • my daughter was just diagnosed with ALL and it seems to be harder on me then her any advice on an easier way to cope for her would be really helpful ...

Cancer support research study

Amir
  • By Amir · Posted March 17, 2010
  • Discussion in Raising a child with cancer · 0 replies
  • Hello, Researchers from Palo Alto University (formerly known as PGSP) and Stanford University School of Medicine are conducting a study to learn about the benefits of cancer support resources on the mental ...

A good article- "With cancer, let's face it: words are inadequate"

dleach
  • By dleach · Posted March 16, 2010
  • Journal · 44 replies
  • This was a good article-make me think a bit about what is said to patients and families every day. http://well.blogs.nytimes.com/2010/03/15 /with-cancer-lets-face-it-words-are-inad equate/ I'd be interested ...

NG Tube Vs. G Tube

CarolinesMom
  • By CarolinesMom · Posted March 15, 2010
  • Discussion in Treatment · 1 reply
  • Hello Friends, My daughter currently has an NG Tube, which has been in since the end of January 2010. She does not take foods or liquids by mouth much and we rely on the tube for nearly 100% of her nutrition ...

Socialization for angel families

erinsdream
  • By erinsdream · Posted March 10, 2010
  • Discussion in Emotional support for parents and caregivers · 0 replies
  • I have started to organize "Erin's Dream". We have a property that we are designing, renovating & restoring to serve as a resource for families, like mine, that have lost a child due to illness or accident ...

Burkitt's Lymphoma

JudesMommy
  • By JudesMommy · Posted March 7, 2010
  • Discussion in Newly diagnosed · 2 replies
  • I was just wanting to know if there is anyone whose child has/had Burkitt's Lymphoma? My son is 4 1/2 and just got diagnosed January 6th, 2010. He is reacting very well to the chemo - just wanted to connect ...

here we go again

mommyof3-1
  • By mommyof3-1 · Posted March 7, 2010
  • Journal · 5 replies
  • he had a wilms tumor april '09, the medical team removed his entire right kidney along with the tumor and found no other signs of cancer anywhere in his body. he had 18 weeks of "preventative' chemo therapy ...

5 year old daughter with ALL

jsmomstef
  • By jsmomstef · Posted March 6, 2010
  • Discussion in Newly diagnosed · 19 replies
  • My daughter was diagnosed with ALL about a month ago. She is on her 2nd week of chemo. I'm looking for other parents who are in the same place I am, I guess. I want to know that the crabbyness and lethargic ...

I'm at a loss..........

TracyR1966
  • By TracyR1966 · Posted March 3, 2010
  • Discussion in Awareness and fundraising · 1 reply
  • We were very blessed to beable to stay at a Ronald McDonald close to my son's treatment centers...But since our arrival a week ago I've been made to feel very uncomfortable by some of the staff here ...

What is the best help?

CAWC
  • By CAWC · Posted March 3, 2010
  • Discussion in Financial and insurance issues · 4 replies
  • Hi I'm with a small county non-profit organization and we help with reimbursment and support for cancer patients. Recently we've noticed the need to design a program just for the children patients and ...

Our brave son Joshua

Donna-B
  • By Donna-B · Posted February 27, 2010
  • Journal · 1 reply
  • Hi there what causes these brain tumors (Medullablastoma). My son was doing fine until my husband started to work around chemicals maybe this caused it or Josh hit his head on a door frame and around ...

Maybe this could help someone

dleach
  • By dleach · Posted February 26, 2010
  • Journal · 28 replies
  • I was speaking with my friend who is coming the end of the cancer road with her mom and she was struggling what can she do for her mom when she feels so powerless. What do you do for your loved one when ...

World Rare Disease Day

Brian
  • By Brian · Posted February 25, 2010
  • Journal · 26 replies
  • In recognition of Rare Disease Day 2010, Inspire and the National Organization for Rare Disorders conducted a survey of Inspire members with rare disorders. The results are enlightening, and I encourage ...

my love

helpu2
  • By helpu2 · Posted February 24, 2010
  • Journal · 0 replies
  • i have a wife ...

My brave son Joshua

Donna-B
  • By Donna-B · Posted February 24, 2010
  • Journal · 3 replies
  • My son was diagnosed with medullablastoma when he was only 7 years old, the worst day of my life. He underwent 6 hours surgery then radiation to his brain and spine, then 1 and a hlaf years of chemo ...

My son has bone cancer

Bricehascancer
  • By Bricehascancer · Posted February 24, 2010
  • Discussion in Newly diagnosed · 9 replies
  • Recently my son feel and we were worried took him in to be and they said he was fine two weeks later he said mom my knee hurts bad his dad took him to urgent care and they sent us to a bone surgeon. They ...

Honored To Be Here

TrishAngelWings
  • By TrishAngelWings · Posted February 17, 2010
  • Journal · 0 replies
  • I have lost several close friends and family members to cancer.I know how very much support and prayers are needed when diagnosed with a life threatening disease and i wanted to do something to help,something ...

Things you can do

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