Active discussions

Behavior Issues

Cags24
  • By Cags24 · New reply December 29, 2013
  • In Raising a child with cancer · 5 replies
  • The embarrassing moment is to have to face a parent who is complaining about your child's behavior at school. The tears start to flow as I feel like I am not sure what to do, I've tried everything as ...

A Pop Pops Front Porch Merry Christmas

SammyandRhonda
  • By SammyandRhonda · Posted December 23, 2013
  • In Emotional support for parents and caregivers · 0 replies
  • Rhonda and I would like to wish you all “A Pop Pops Front Porch Merry Christmas” singing Christmas Card I created for my friends, my kids and my 17 grandkids. I recorded a Singing Christmas card of 11 ...

Hospital Group Purchasing Organizations (GPOs) and the Drug Shortages

nycphil
  • By nycphil · Posted November 24, 2013
  • In Advocacy · 0 replies
  • PhysiciansAgainstDrugShortages (PADS) is a grassroots coalition working pro bono to expose the role of anticompetitive hospital group purchasing (GPO) contracting practices, self-dealing, and kickbacks ...

Do these groups help?

dtaylor3105 (Inactive)
  • By dtaylor3105 (Inactive) · New reply November 23, 2013
  • In Emotional support for parents and caregivers · 4 replies
  • Hi! I am a senior nursing student studying the benefit of support groups for patients and their families. I would like to express my profound respect for you as caregivers for taking on this challenge ...

Genetic Testing-Medulloblastoma

Cade2010
  • By Cade2010 · New reply November 22, 2013
  • In Treatment · 5 replies
  • Our 2 1/2 year old son passed away of a medulloblastoma in April 2013. His pathology was a large cell medulloblastoma. He also had leptomenigeal spread. We are having a difficult time trying to find a ...

Physical therapy

Aviens-mom
  • By Aviens-mom · New reply November 17, 2013
  • In Newly diagnosed · 1 reply
  • We are on hold in starting consolidation. Counts have been to low, 610 down to 320. Hopefully we can start on Monday. My son has trouble walking but his doctor said his legs should get better now that ...

Sensitive skin

Aviens-mom
  • By Aviens-mom · New reply November 7, 2013
  • In Newly diagnosed · 1 reply
  • Just recently my son will take a bath and play. No problem now that he has a port. The thing is he will not let me try him off. He says it hurts his skin. He has no rash, no dry patches. I am wondering ...

new

ToriandJosh
  • By ToriandJosh · New reply November 1, 2013
  • In Raising a child with cancer · 5 replies
  • Just introducing myself. Looking for others who have a child dx with leukemia. Mour third child was dx almost exactly 1 year ago. October 29th to be exact. I engender the very morning he first started ...

Father of a 9 year old girl.

barnhillmi
  • By barnhillmi · New reply October 25, 2013
  • In Treatment · 15 replies
  • My 9 nine year old little princess has had a low grade fever and tried for about a month now. After complete blood work and a CT of her abdomens he doctors said it was lymes. Now the doctors says it isn't ...

In need of ostomy surgeries numbers

SammyandRhonda
  • By SammyandRhonda · Posted October 22, 2013
  • In Advocacy · 0 replies
  • I am wondering if anybody can help me. I am ostomy patient and now have my very own stoma along with the un-scheduled output to prove it. I have been trying to trace down numbers of ostomy patents in ...

1 year remission anniversary party

ToriandJosh
  • By ToriandJosh · Posted October 13, 2013
  • In Raising a child with cancer · 0 replies
  • Our son was dx with pre b all on October 29, 2012. He was in remission within 28 days. As the anniversary of dx and remission approaches I'm feeling a desire to do something special to honor him. I want ...

Avascular Necrosis Mitigation

RyansDad
  • By RyansDad · New reply September 23, 2013
  • In Treatment · 6 replies
  • My son Ryan is 14 and was diagnosed with ALL 2 years ago. Due to severe pancreatitis during treatment he was unable to finish his asperiginase treatment and now, with 2 more years of treatment to go ...

Conquer Cancer

juanruiz104
  • By juanruiz104 · Posted September 22, 2013
  • In Emotional support for parents and caregivers · 0 replies
  • Waving my hand all the way frm the peachstate an prayin our lords peace be with all my bros in christ lm am new to this experience but l will forever follow my leader l would add that our lord promises,all ...

Second Round of Surgery or Not?

OhioStateDad
  • By OhioStateDad · New reply September 17, 2013
  • In Treatment · 3 replies
  • Hello everyone my name is Will, In March of 2011 I was dx with a pilocytic astrocytoma at the age of 24. I went for many diabetic testing before my dx. Many of my symptoms were what I could describe as ...

Parent of patient with Frontal Lobe Glioma seeks support

CatherineML
  • By CatherineML · Posted September 12, 2013
  • In Emotional support for parents and caregivers · 0 replies
  • We know of a parent that would like to connect with other parents in a similar situation for mutual support. Her daughter had a benign right frontal lobe glioma 7 years ago, but is now having some emotional ...

HOPE

Michele7077
  • By Michele7077 · New reply September 5, 2013
  • In Emotional support for parents and caregivers · 17 replies
  • Hi everyone. :) This morning I woke up and felt compelled to post. This time of year is always an emotional time for me as this is the time of year (3 years ago) our youngest son became sick and was diagnosed ...

Childhood cancer receives a fraction of $ than breast cancer

Manja59
  • By Manja59 · New reply August 20, 2013
  • In Awareness and fundraising · 5 replies
  • I am looking for direction... I am not saying breast cancer awareness is not important... My mother passed from complications of that disease.... But I was horrified as to the information I came across ...

Unexplained stomach pains from meds for ALL

Liams-mom
  • By Liams-mom · New reply August 19, 2013
  • In Raising a child with cancer · 7 replies
  • Hi everyone..I haven't been on here for a while and I hope everyone is doing well. I have a question for other parents who have children diagnosed with A.L.L. My 13 year old son was diagnosed in April ...

Are the doctors right or are my suspicions right?

lillibugsmama
  • By lillibugsmama · New reply August 18, 2013
  • In Raising a child with cancer · 19 replies
  • My daughter has been sick for three months. All blood tests are only showing anemia and low sodium. Doctors say it's probably just a virus. I should be happy with this but I still have a feeling deep ...

advice around treatment

MarionsDad
  • By MarionsDad · New reply July 28, 2013
  • In Treatment · 7 replies
  • I have been following posts on this site for awhile, but this will be my first post. My daughter Marion, was diagnosed with Pilomyxoid Astrocytoma in October, lost her sight (mostly) shortly afterwards ...

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