• By Mishon23 · Posted June 6, 2013
  • In Newly diagnosed · 3 replies
  • Need help with treatment for my 11 month old just diagnoses a week ago can anyone help me find a treatment that will help and not destroy her please desperate to find something ...

Impossible decisions!!?

  • By Bmeggy · Posted June 3, 2013
  • In Treatment · 7 replies
  • I have posted here before about my 4 1/2 yr. old nephew Jonah and always get great advice. It has only been over two weeks since Jonah's total resection. Thankfully on Friday we heard the great news that ...


  • By Bmeggy · Posted May 30, 2013
  • In Treatment · 7 replies
  • I have written a few times about my nephew Jonah. He is 4 and diagnosed with Medulloblastoma 2 weeks ago. They live in VI and were hoping to come to Mass General for the proton radiation therapy. MGH ...

Temporary housing

  • By Bmeggy · Posted May 29, 2013
  • In Treatment · 1 reply
  • My nephew who is 4 1/2 has recently been diagnosed with a medullablastoma. His tumor was removed 100%. He is recovering at home. My brother and his family are in VI but traveling to Boston for proton ...

Unexplained stomach pains from meds for ALL

  • By Liams-mom · Posted May 16, 2013
  • In Raising a child with cancer · 7 replies
  • Hi everyone..I haven't been on here for a while and I hope everyone is doing well. I have a question for other parents who have children diagnosed with A.L.L. My 13 year old son was diagnosed in April ...

Separation Anxiety

  • By klgreen · Posted May 8, 2013
  • In Raising a child with cancer · 5 replies
  • Hello, my son was diagnosed wit Medulloblastoma in October 2012. He celebrated his 4th birthday in November. He had surgery to remove tumor which was a success, 6 weeks of proton therapy radiation, and ...

Thymus Extract

  • By USMCMama · Posted May 7, 2013
  • In Treatment · 0 replies
  • I received a report from a friend highlighting Thymus Extract. It is a nutritional supplement to treat autoimmunity issues, allergies, chemo side effects, and cancer in general. Does anyone take this ...

CNS relapse with ALL

  • By puddinlynn · Posted May 2, 2013
  • In Treatment · 4 replies
  • Has anyone experienced a CNS relapse with your child with diagnosis of ALL If so, how was it treated and were you given any stats about reaching remission again and/ or survival rate. Thank you ...

Gross Hematuria 19mos. No Diagnosis? Signs and symptoms of Bladder cancer

  • By Toran_Kids_Gone_Wild · Posted April 23, 2013
  • In Treatment · 1 reply
  • I've joined because I'm trying to research information on behalf of my 15 yr old Son Michael. In July of 2011 he had a sudden onset of painful urination accompanied by cola colored urine. He's been admitted ...

Child with underlying acute lymphoblastic leukaemia with ascites

  • By cheahbooneu · Posted April 22, 2013
  • In Treatment · 3 replies
  • Hi, i have a 10 years old child who is diagnosed with acute lymphoblastic leukaemia. He had recently completed his chemotherapy; scheduled to start his maintainance chemotherapy in May 2013. However ...

Kids with cancer, showing it off in a Fashion Show!

  • By LyrisMom · Posted April 20, 2013
  • In Awareness and fundraising · 3 replies
  • My six year old daughter was diagnosed with osteosarcoma (bone cancer) last year. She completed her last round of chemo this past January. She is doing great! Her hair is growing back and she is so excited ...

Medical Masks for Children

  • By MIT-mask-design-team · Posted April 17, 2013
  • In Raising a child with cancer · 3 replies
  • I am student at MIT working on a project to design a comfortable, effective and fun-looking medical mask for children. We are looking for volunteers to share your experience with masks and help us understand ...


  • By 2kayla · Posted April 12, 2013
  • In Treatment · 4 replies
  • Hi my 3 year old daughter has medullomyblastoma . She judged completed 6 weeks of radiation/chemo in Texas and now we are in California to start chemo treatment . I was wondering if any of you knew if ...

B Vitamins as antidote to neuropathy?

  • By Andie4 · Posted April 11, 2013
  • In Raising a child with cancer · 5 replies
  • My 7 year old son is 18 months into his treatment for leukemia, and gets Vincristine IV once a month as part of that treatment. We have noticed that he definitely has some gait issues - he skips or hops ...

Primary Symptoms of cancer???

  • By mango1990 · Posted April 11, 2013
  • In Awareness and fundraising · 14 replies
  • Hiiii everyone... I want to gain some knowledge from you all. The first question that comes in my mind is, what primary symptoms made you feel that your child has/may have cancer? Please share.. Prayers ...

Could this be cancer?

  • By lilyofthevalley218 · Posted April 2, 2013
  • In Newly diagnosed · 5 replies
  • I'm sorry if this is the wrong group to post this in but my daughter is 25 months 22 corrected she has been the same weight for over a year her doctor ordered a thyroid blood test and other blood work ...

Wilms Tumor

  • By ChristsAmbassador · Posted March 23, 2013
  • In Raising a child with cancer · 5 replies
  • Did anyone who had a child with Wilms tumor use Mentholatum (or similar rub) on their child growing up? If so, where did you apply it ...

allergic reactions to 6-mp with ALL

  • By Cyno · Posted March 21, 2013
  • In Treatment · 1 reply
  • My 6 year old daughter was diagnosed with low risk ALL leukemia last year. We are in maintenance and she had been doing so well (I believe our consulting integrative pediatric oncologist and her recommendations ...

Are the doctors right or are my suspicions right?

  • By lillibugsmama · Posted March 14, 2013
  • In Raising a child with cancer · 19 replies
  • My daughter has been sick for three months. All blood tests are only showing anemia and low sodium. Doctors say it's probably just a virus. I should be happy with this but I still have a feeling deep ...

Dealing with an ex when child has cancer

  • By shannywise · Posted March 10, 2013
  • In Emotional support for my child · 1 reply
  • I'm a divorced parent who's child was just diagnosed with bone cancer. My ex has custody of our son and I get visitations. How can I best support my child during this time to let him know I'm there for ...

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