Caregiver corner

Always sick....

  • By ILoveMyCop · New reply April 21, 2014
  • 6 replies
  • Hey guys.... just curious....... I know that I've been incredibly stressed out, dealing with biopsies, 2nd opinions, radiation, chemo, etc, etc- for my wife, Danah. But is it possible for the stress to ...

Days to go?

  • By jmvirwin · New reply April 18, 2014
  • 15 replies
  • My husband has had a downturn. I thought we were finally turning the corner on three weeks of battling severe constipation. Things finally got moving again this weekend, and I thought finally now he can ...

GBM Support group

  • By monica523 · New reply April 17, 2014
  • 19 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...


  • By Krick · New reply April 16, 2014
  • 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

How to cope as a caregiver?

  • By Liesa-Joan · New reply April 16, 2014
  • 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Vision Changes

  • By suzieta · New reply April 16, 2014
  • 18 replies
  • Just wondering what experiences people are having there with vision changes. My husband is going to be 63 so I know the aging factor is very real. He's having vision changes in left eye - very blurry ...

Top 10 things a caregiver needs to do for newly diagnosed GBM patient

  • By jmvirwin · New reply April 16, 2014
  • 17 replies
  • My husband was diagnosed early Nov 2013, so it hasn't been long. Already I have learned a lot and there are a lot of things I wish I had been prepared for (but wasn't). So, if you are dealing with the ...

What do I do now!

  • By bpos · New reply April 8, 2014
  • 10 replies
  • My husband started down this road by having a seizure in May 2012. He had to wait until his tumor was large enough to biopsy. In September 2012 he was diagnosed with an inoperable grade 3 astrocytoma ...

update on What do I do now

  • By bpos · New reply April 7, 2014
  • 7 replies
  • My husband with glioblastoma had his MRI yesterday. His tumor has grown 25% since February 6. Now they are waiting to find out if he was getting the study drug or the placebo on his clinical trial that ...

Baby steps, Urination, Purpura....??

  • By Thess3_13 · New reply April 6, 2014
  • 6 replies
  • Hi all - I have been lurking for quite some time since my Dad's dx of Gliomatosis Cerebri (acts similar to GBM) in Dec 2012. What a tremendously strong group you are and I have gleaned much needed advice ...

Not sure just what to do...

  • By Here4u · New reply April 6, 2014
  • 6 replies
  • I'm still here caring for my friend who had a reoccurrence of brain cancer in December. She has gbm lV and is on chemo five days a month, taking Keppra and antidepressants. Last month her MRI showed the ...

Brain Cancer and Depression

  • By Here4u · New reply March 26, 2014
  • 8 replies
  • I've been caring for my friend for over a month now while her husband is at work...about fifty hours a week. My friend of thirty years has a recent recurrence of brain cancer . She was dx with gbm stage ...

Challenges continue

  • By Mach1vt · New reply March 24, 2014
  • 2 replies
  • Hi All-- Thanks for taking the time to post and keep me up to date. Often I have to take few days off when things get tough, but I am reading and thinking of you all. My husband is probably somewhere ...

New Symptoms of a Psychosis- Help!

  • By girlonfire · New reply March 19, 2014
  • 14 replies
  • My husband had his tumor diagnosed last July and surgery in August. It was an oligo stage 2/3. He was doing fine with recovery (besides the meningitis after the surgery). This month he's been incredibly ...

How do you know what to do?

  • By Krick · New reply March 13, 2014
  • 18 replies
  • My mom has gbm, recently we stopped chemo since it wasn't working. Although her MRI was ok per the dr, her condition worsened. Her dr recommended going to Duke, but now I don't know if she can make the ...

When is it time to call hospice?

  • By jmvirwin · New reply March 12, 2014
  • 25 replies
  • My husband began having neurological symptoms in October, and was diagnosed with GBM in early November. His tumors were determined inoperable. He started radiation on 11/18 and will have his last treatment ...

What do I do ?

  • By fire_911medic · New reply March 9, 2014
  • 9 replies
  • Recently my mother in law was diagnosed with a grade 4 GBM. Estimate of 18 months with treatment. She looks so good now, it is hard to process. She went to the hospital with stroke like symptoms and all ...

What's Next? - Progression after 2nd Brain Surgery

  • By LoveMyKen · New reply March 7, 2014
  • 4 replies
  • I don't post much, but I do read lots on this site. It's a great place to come for information. It's time to tell my story and to get advice. My boyfriend, Kenny was diagnosed with GBM4 two weeks after ...

Oligoastrocytoma and temodar

  • By guisantico · Posted March 2, 2014
  • 0 replies
  • My husband had in 1999 his first oligoastrocytoma grade 4, in the right front temporal, it was the size of a tennis ball, he started having recurrent strong headaches, dejavu feelings, he went to 5 different ...


  • By grammydorcas · New reply February 28, 2014
  • 5 replies
  • Hi, I'm writing this about my Mom. She was a very young acting 84 year old and this past October she had stroke symptoms. We took her to the ER and the CT Scan showed all was fine. The next day at hospital ...

Things you can do

Support ABTA

Together with your help, the American Brain Tumor Association will fund more research and reach more people, with the shared goal of improving, extending and ultimately saving lives. With your gift, those coping with a brain tumor diagnosis will know -- more than ever -- that they are not alone.

Donate to the American Brain Tumor Association

Discussion topics

More from ABTA

Community leaders