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Finding the post you posted or responded to and update on my scalp lesions

  • By larrylm53 · New reply 12:44 am
  • Journal · 8 replies
  • You can go to the top right and click on your home page, then click on post. >>>>> you can also toggle between ( new all ) and ( new active ). Sometimes when no one responds the post can move down the ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

  • By Karen1966 · New reply 12:05 am
  • Journal · 13 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

New to this site, have some questions for you

  • By Liesa-Joan · New reply yesterday at 11:23 pm
  • Discussion in Newly diagnosed · 14 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

2x survivor but depressed

  • By j2xsurvivor · New reply yesterday at 10:58 pm
  • Discussion in Survivor stories · 8 replies
  • I am a 2x survivor but am depressed every day and can't get passed it because I see everyone around me walking around and wearing heels and short skirts like I "used to do" But I should really be Thanking ...

Meningioma right frontal lobe

  • By Barb67 · New reply yesterday at 10:12 pm
  • Discussion in Non-malignant tumors · 3 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...


  • By mrbeck84 · New reply yesterday at 8:02 pm
  • Discussion in Newly diagnosed · 3 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

My sweet mom and glioblastoma

  • By plowe · New reply yesterday at 5:17 pm
  • Journal · 5 replies
  • My mom is a 73 year active "young" lady. On September 7 she told me that she had a headache for a few days. On September 8 she was standing in the kitchen and all of a sudden she couldn't talk. When words ...

How do you keep your faith when your angry with your Higher Power?

  • By AmyJeanDev · New reply yesterday at 2:03 pm
  • Discussion in Living with a brain tumor · 4 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

GBM Support group

  • By monica523 · New reply yesterday at 11:12 am
  • Discussion in Caregiver corner · 19 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...

Proccluster for glioma treatment

  • By akist · New reply yesterday at 7:55 am
  • Discussion in Treatments · 8 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...

Days to go?

  • By jmvirwin · New reply yesterday at 7:13 am
  • Discussion in Caregiver corner · 14 replies
  • My husband has had a downturn. I thought we were finally turning the corner on three weeks of battling severe constipation. Things finally got moving again this weekend, and I thought finally now he can ...

New to this site..Husband has Oligoastrocytoma Grade 3

  • By soxboysmom · New reply April 16, 2014
  • Journal · 27 replies
  • Well, glad to have found this site, because I really need to vent and to get support from people who can relate to what we are going through. My husband had a seizure in February of this year and after ...


  • By Krick · New reply April 16, 2014
  • Discussion in Caregiver corner · 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

How to cope as a caregiver?

  • By Liesa-Joan · New reply April 16, 2014
  • Discussion in Caregiver corner · 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Vision Changes

  • By suzieta · New reply April 16, 2014
  • Discussion in Caregiver corner · 18 replies
  • Just wondering what experiences people are having there with vision changes. My husband is going to be 63 so I know the aging factor is very real. He's having vision changes in left eye - very blurry ...

Tumor treating fields

  • By gloria2344 · New reply April 16, 2014
  • Discussion in Treatments · 19 replies
  • Hello, Anyone have thoughts or information on this type of treatment? It is called Novo TTF. Here is the link to the Ted Talk. ncer_with_electric_fields.html My ...

A new journey begins

  • By jmvirwin · New reply April 16, 2014
  • Discussion in Grief and loss · 20 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

Top 10 things a caregiver needs to do for newly diagnosed GBM patient

  • By jmvirwin · New reply April 16, 2014
  • Discussion in Caregiver corner · 17 replies
  • My husband was diagnosed early Nov 2013, so it hasn't been long. Already I have learned a lot and there are a lot of things I wish I had been prepared for (but wasn't). So, if you are dealing with the ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

  • By ElleMadix · New reply April 16, 2014
  • Discussion in Newly diagnosed · 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Avastin plus CCNU

  • By Denise555 · New reply April 16, 2014
  • Discussion in Treatments · 1 reply
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

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