Active posts

Finding the post you posted or responded to and update on my scalp lesions

larrylm53
  • By larrylm53 · New reply 12:44 am
  • Journal · 8 replies
  • You can go to the top right and click on your home page, then click on post. >>>>> you can also toggle between ( new all ) and ( new active ). Sometimes when no one responds the post can move down the ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

Karen1966
  • By Karen1966 · New reply 12:05 am
  • Journal · 13 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

New to this site, have some questions for you

Liesa-Joan
  • By Liesa-Joan · New reply yesterday at 11:23 pm
  • Discussion in Newly diagnosed · 14 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

2x survivor but depressed

j2xsurvivor
  • By j2xsurvivor · New reply yesterday at 10:58 pm
  • Discussion in Survivor stories · 8 replies
  • I am a 2x survivor but am depressed every day and can't get passed it because I see everyone around me walking around and wearing heels and short skirts like I "used to do" But I should really be Thanking ...

Meningioma right frontal lobe

Barb67
  • By Barb67 · New reply yesterday at 10:12 pm
  • Discussion in Non-malignant tumors · 3 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...

meningioma

mrbeck84
  • By mrbeck84 · New reply yesterday at 8:02 pm
  • Discussion in Newly diagnosed · 3 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

My sweet mom and glioblastoma

plowe
  • By plowe · New reply yesterday at 5:17 pm
  • Journal · 5 replies
  • My mom is a 73 year active "young" lady. On September 7 she told me that she had a headache for a few days. On September 8 she was standing in the kitchen and all of a sudden she couldn't talk. When words ...

How do you keep your faith when your angry with your Higher Power?

AmyJeanDev
  • By AmyJeanDev · New reply yesterday at 2:03 pm
  • Discussion in Living with a brain tumor · 4 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

GBM Support group

monica523
  • By monica523 · New reply yesterday at 11:12 am
  • Discussion in Caregiver corner · 19 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...

Proccluster for glioma treatment

akist
  • By akist · New reply yesterday at 7:55 am
  • Discussion in Treatments · 8 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...

Days to go?

jmvirwin
  • By jmvirwin · New reply yesterday at 7:13 am
  • Discussion in Caregiver corner · 14 replies
  • My husband has had a downturn. I thought we were finally turning the corner on three weeks of battling severe constipation. Things finally got moving again this weekend, and I thought finally now he can ...

New to this site..Husband has Oligoastrocytoma Grade 3

soxboysmom
  • By soxboysmom · New reply April 16, 2014
  • Journal · 27 replies
  • Well, glad to have found this site, because I really need to vent and to get support from people who can relate to what we are going through. My husband had a seizure in February of this year and after ...

Hospice

Krick
  • By Krick · New reply April 16, 2014
  • Discussion in Caregiver corner · 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

How to cope as a caregiver?

Liesa-Joan
  • By Liesa-Joan · New reply April 16, 2014
  • Discussion in Caregiver corner · 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Vision Changes

suzieta
  • By suzieta · New reply April 16, 2014
  • Discussion in Caregiver corner · 18 replies
  • Just wondering what experiences people are having there with vision changes. My husband is going to be 63 so I know the aging factor is very real. He's having vision changes in left eye - very blurry ...

Tumor treating fields

gloria2344
  • By gloria2344 · New reply April 16, 2014
  • Discussion in Treatments · 19 replies
  • Hello, Anyone have thoughts or information on this type of treatment? It is called Novo TTF. Here is the link to the Ted Talk. Www.ted.com/talks/bill_doyle_treating_ca ncer_with_electric_fields.html My ...

A new journey begins

jmvirwin
  • By jmvirwin · New reply April 16, 2014
  • Discussion in Grief and loss · 20 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

Top 10 things a caregiver needs to do for newly diagnosed GBM patient

jmvirwin
  • By jmvirwin · New reply April 16, 2014
  • Discussion in Caregiver corner · 17 replies
  • My husband was diagnosed early Nov 2013, so it hasn't been long. Already I have learned a lot and there are a lot of things I wish I had been prepared for (but wasn't). So, if you are dealing with the ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

ElleMadix
  • By ElleMadix · New reply April 16, 2014
  • Discussion in Newly diagnosed · 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Avastin plus CCNU

Denise555
  • By Denise555 · New reply April 16, 2014
  • Discussion in Treatments · 1 reply
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

Things you can do

Support ABTA

Together with your help, the American Brain Tumor Association will fund more research and reach more people, with the shared goal of improving, extending and ultimately saving lives. With your gift, those coping with a brain tumor diagnosis will know -- more than ever -- that they are not alone.

Donate to the American Brain Tumor Association

Discussion topics

More from ABTA

Community leaders