New posts

Low grade Glioma

NickyGoodwin
  • By NickyGoodwin · Posted December 3, 2013
  • Discussion in Newly diagnosed · 44 replies
  • Hi, following a recent diagnosis with a low grade glioma I'm desperately seeking some 'good' news about long term watch and wait techniques. My tumour is small but in the speech part of the brain so my ...

brain stem

jojoekerns
  • By jojoekerns · Posted December 2, 2013
  • Discussion in Recovery · 1 reply
  • My daughter had a astroctoma brain tumer and having a hard time waking up. can you give me any help with this problem thanks jojoekerns@aol.com ...

How to tell mom there is nothing more to do

Jenper12
  • By Jenper12 · Posted December 2, 2013
  • Discussion in Grief and loss · 5 replies
  • My mom has been fighting GBM IV since 2010. Her third occurrence happened in October. She's never really understood that this disease will take her life. She is not eligible for more radiation and her ...

Am I Somatic?

Miches224
  • By Miches224 · Posted December 1, 2013
  • Discussion in Recovery · 4 replies
  • In November of 2012 I had surgery for a Ganglioglioma. Prior to being diagnosed, I was a healthy 24 year old female. Now I find myself constantly questioning my health, therefore I am questioning if I ...

MRI stable again for GBM4

suzieta
  • By suzieta · Posted December 1, 2013
  • Discussion in Survivor stories · 18 replies
  • My husband's MRI on 11/26 showed stability again. We are so grateful that GBM4 tumor is either "gone" or "de-activated". Either way, we are grateful and pray/wish the same for everyone on this website ...

Hospice experiences

cpandrews
  • By cpandrews · Posted November 30, 2013
  • Discussion in Grief and loss · 3 replies
  • My brother was newly diagnosed with a glioblastoma back in July 2013. After unsuccessful surgery hospice was recommended. My sister in law did not want it. I had what I thought was a good experience with ...

Thinking of You

ABTA_Jillann
  • By ABTA_Jillann · Posted November 30, 2013
  • Discussion in Just for fun · 0 replies
  • On this Holiday weekend we extend our appreciation to each of you for being such an invaluable part of our community of support. We are grateful for each of you giving so much of your time, energy and ...

Anxiety, impulse control and suicide attempt

elisesmom
  • By elisesmom · Posted November 30, 2013
  • Discussion in Recovery · 12 replies
  • My 21 year old dtr Elise attempted suicide Tuesday. She had just passed her driving test two weeks earlier after two failed attempts. She is enrolled at college for January, and she was doing so well ...

how much steroids for gbm

ninja1
  • By ninja1 · Posted November 30, 2013
  • Discussion in Treatments · 8 replies
  • My husband has GBM diagnosed a year ago. After a recent seizure he has been on steroids (dexamethasone) for brain swelling. We hoped he could wean off of them but so far that hasn't been the case. I'm ...

How long after incontinence starts?

Gkg
  • By Gkg · Posted November 30, 2013
  • Discussion in Living with a brain tumor · 21 replies
  • Greg is fixing to start his 4th month in hospice care. His decline has been very slow. The past week he has gotten much much weaker and has become incontinent. It is getting difficult to get him up and ...

Update on dad

lovingfather
  • By lovingfather · Posted November 29, 2013
  • Journal · 4 replies
  • It was decided to not do another round of chemo pills for dad since he would need to come off hospice care and since his quality of life has been so much affected already. I struggled with this, wondering ...

Proton Radiation

Markypp
  • By Markypp · Posted November 27, 2013
  • Discussion in Treatments · 11 replies
  • hello all, i am finding out that there is huge controversy within the med community on the benefits of Proton vs photon( standard) radiation. This is when i turn to you good people and ask for expirience ...

Grief support

Slk1950
  • By Slk1950 · Posted November 27, 2013
  • Discussion in Caregiver corner · 0 replies
  • I thought this might bring some solace ..... http://identityrenewed.com/2013/11/21/15 -things-i-wish-id-known-about-grief ...

Thank You, From Inspire

Walter
  • By Walter · Posted November 26, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Registration is open for Tampa Bay

ABTA_Jillann
  • By ABTA_Jillann · Posted November 26, 2013
  • Discussion in ABTA events · 0 replies
  • Breakthrough for Brain Tumors Tampa Bay 5K Run & Walk Saturday, March 29, 2014 Al Lopez Park Tampa, FL 33614 Program starts 8:00 a.m. Run starts 8:30 a.m. Walk immediately follows The Tampa Bay BT5K is ...

Brain Tumor News November 26, 2013

ABTA_Jillann
  • By ABTA_Jillann · Posted November 26, 2013
  • Discussion in In the news · 0 replies
  • *Data Presented at Society for Neuro-Oncology Annual Meeting Demonstrate Tocagen's Toca 511 Gene Therapy with Toca FC was Well Tolerated and Showed Antitumor Activity in Patients with High Grade Glioma ...

Pediatric Brain Tumor News November 26, 2013

ABTA_Jillann
  • By ABTA_Jillann · Posted November 26, 2013
  • Discussion in Tumors in children · 1 reply
  • *Proton Therapy is a Cost Effective Treatment for Pediatric Brain Tumor Patients http://www.thealmagest.com/proton-therap y-cost-effective-treatment-pediatric-bra in-tumor-patients/4164 *This communication ...

Brain Tumor News November 25, 2013

ABTA_Jillann
  • By ABTA_Jillann · Posted November 25, 2013
  • Discussion in In the news · 0 replies
  • *mline Releases Clinical Trial Results of Brain Cancer Vaccine SL-701 http://clinicaltrials.pharmaceutical-bus iness-review.com/news/stemline-releases- clinical-trial-results-of-brain-cancer-v accine-sl-701-251113 ...

Where does your spouse sleep?

gliospouse
  • By gliospouse · Posted November 25, 2013
  • Discussion in Caregiver corner · 10 replies
  • I am sleeping in master bedroom and my husband is sleeping in my sons room next to mine. My son is relocated to basement. I work full time and found the constant waking up a disturbance. He doesn't mind ...

Decadron

Travelug
  • By Travelug · Posted November 24, 2013
  • Discussion in Treatments · 1 reply
  • So I noticed some people here have opted to use ibuprofen vs decadron I'm certainly in favor of anything that gets me off this freaking steroid that has so many negative side effects. My concern is blood ...

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