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3.5 cm meningioma just discovered

Shavaun
  • By Shavaun · Posted December 8, 2013
  • Discussion in Non-malignant tumors · 8 replies
  • I live in a rural area and am trying to find information on treatment options. I have severe headaches and have been treated for "migraines" by a neurologist (not board certified) who says the meningioma ...

Dealing day to day

Nanth
  • By Nanth · Posted December 7, 2013
  • Discussion in Treatments · 5 replies
  • My husband and I have been dealing with illness since sept. He is almost finished his treatments. He wondering how to get through the day without being consumed about having brain cancer and how long ...

Vertigo

MarjiF
  • By MarjiF · Posted December 7, 2013
  • Discussion in Recovery · 2 replies
  • Husband tapering off decadron after round 2 of chemo. Got to 1 mg for 2 days and he has developed vertigo. Is this common? Needless to say it happened on the weekend so the case nurse is off and I spoke ...

How Can I Help You! I am hear to help!

KimberleyLB
  • By KimberleyLB · Posted December 7, 2013
  • Journal · 29 replies
  • I also have this information written under the "About Me" section but wanted to get a journal started so I cheated and put the same information here. I will continue to update the journal as I continue ...

Clinical Trial

glendarh
  • By glendarh · Posted December 6, 2013
  • Discussion in Treatments · 15 replies
  • My husband has had 3 resections for GBM since 2012. The most recent ones were in May and Nov 2013. He is losing more use of his left arm and leg. He can no longer walk and is becoming more incontinent ...

Multifocal GBM

dreshany
  • By dreshany · Posted December 6, 2013
  • Discussion in Living with a brain tumor · 4 replies
  • My husband was diagnosed in October with GBM. He has 3 tumor sites two of which were debulked (frontal and temporal) he still has a midbrain lesion. Which they radiated along with whole brain radiation ...

day 4 of radiation

saturdaygirly
  • By saturdaygirly · Posted December 6, 2013
  • Discussion in Newly diagnosed · 5 replies
  • I have a meningioma that is not able to be operated on. So radiation it is. All the MRI I have done and ct scans were all done with no problem. the day I went to get my radiation treatment I lost my cool ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · Posted December 6, 2013
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

worried :(

michelle39
  • By michelle39 · Posted December 6, 2013
  • Journal · 13 replies
  • I am so so worried about my husband. He was diagnosed with a Glioblastoma in Sept of 2011. He had the whole tumor removed in Feb 2012. He was on Temodar for 18 months and Avastin up until 2 weeks ago ...

FoundationOne

feelinphree
  • By feelinphree · Posted December 5, 2013
  • Discussion in In the news · 8 replies
  • Does anyone know anything about foundation one? It's using a piece of the tumor to analyze and learn about your specific genomic characteristics to help individual treatment? Anyone have experience or ...

Husband has started hospice

KevinFay
  • By KevinFay · Posted December 5, 2013
  • Discussion in Living with a brain tumor · 27 replies
  • My 46 year old husband is now on hospice. He has become bedridden, has a G J feeding tube, cannot speak except once in a while yes and no, body is paralyzed except for his left hand/arm. His last MRI ...

Peaches!

patnode
  • By patnode · Posted December 4, 2013
  • Discussion in Newly diagnosed · 13 replies
  • For the past three years of my life, I was convinced I had multiple sclerosis. My gait was out of control and I'd walk as if I were drunk. My equilibrium was pretty non-existent and I'd get long lasting ...

Tumour progression

tracyne15
  • By tracyne15 · Posted December 4, 2013
  • Discussion in Treatments · 5 replies
  • My friend had his 1st MRI since finishing chemo/radio 2.5 weeks ago he has a tumour in the thalamus area today's scan seemed to show rapid growth with various hotspots over the brain lining - could this ...

End stage Symptoms

TracyMont
  • By TracyMont · Posted December 4, 2013
  • Discussion in Metastatic tumors · 24 replies
  • Hi my sister who has been battling GBM for 3 years and 1 day has sort of went I to a trance. Like state xx She has not really wakened for 3 days xx a few sips of water ( but has 2 syringe drivers in with ...

Dementia Risk?

DrSlick
  • By DrSlick · Posted December 4, 2013
  • Discussion in Non-malignant tumors · 1 reply
  • I had a large benign central neurocytoma resected in May 2013. I had a small post-op bleed in the basal ganglia area. Am I at increased risk of Alzheimer's or Parkinson's? Has anyone studied the long-term ...

Time to tell our story

adamsdad
  • By adamsdad · Posted December 3, 2013
  • Discussion in Recovery · 3 replies
  • From the top. My son Adam was diagnosed with a Grade 2 astrocytoma of the spinal cord in October of 2012. The treatment was radiation and after having 60 treatments and weaning off the steroids he did ...

Low grade Glioma

NickyGoodwin
  • By NickyGoodwin · Posted December 3, 2013
  • Discussion in Newly diagnosed · 44 replies
  • Hi, following a recent diagnosis with a low grade glioma I'm desperately seeking some 'good' news about long term watch and wait techniques. My tumour is small but in the speech part of the brain so my ...

brain stem

jojoekerns
  • By jojoekerns · Posted December 2, 2013
  • Discussion in Recovery · 1 reply
  • My daughter had a astroctoma brain tumer and having a hard time waking up. can you give me any help with this problem thanks jojoekerns@aol.com ...

How to tell mom there is nothing more to do

Jenper12
  • By Jenper12 · Posted December 2, 2013
  • Discussion in Grief and loss · 5 replies
  • My mom has been fighting GBM IV since 2010. Her third occurrence happened in October. She's never really understood that this disease will take her life. She is not eligible for more radiation and her ...

Am I Somatic?

Miches224
  • By Miches224 · Posted December 1, 2013
  • Discussion in Recovery · 4 replies
  • In November of 2012 I had surgery for a Ganglioglioma. Prior to being diagnosed, I was a healthy 24 year old female. Now I find myself constantly questioning my health, therefore I am questioning if I ...

Things you can do

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