Journals

Neuoplasm of Uncertain Behavior of Brain and Spinal Cord (HCC)

ElleMadix
  • By ElleMadix · Posted April 14, 2014
  • 0 replies
  • Good Afternoon Everyone, This is my first journal entry on the website, and I have to be honest with all of you when I say that my hand is shaking the entire time I'm trying to "swype" the journal entry ...

Finding the post you posted or responded to and update on my scalp lesions

larrylm53
  • By larrylm53 · Posted April 13, 2014
  • 7 replies
  • You can go to the top right and click on your home page, then click on post. >>>>> you can also toggle between ( new all ) and ( new active ). Sometimes when no one responds the post can move down the ...

My journal

Renalroy
  • By Renalroy · Posted April 13, 2014
  • 4 replies
  • I have so much to say, I really don't know where to begin. April 11th- Roddy had an oncology appointment today. The said the the paralysis on his left side is due to the tumor. They scheduled him for ...

Our GBM Journey

jmvirwin
  • By jmvirwin · Posted April 11, 2014
  • 6 replies
  • Below is an accounting of our battle with GBM. My husband was diagnosed and died within 6 months. His NO called it an unusually aggressive course. All i know is that it was heart wrenching and exhausting ...

My sister Karen

ginnyturner
  • By ginnyturner · Posted April 7, 2014
  • 8 replies
  • I signed to this page shortly after my sister's diagnosis..she was diagnosed with GBM last June 2013...it's unexplainable what goes through tour head when you are told that your loved one has a tumor ...

Radiation Treatment Questions

gloria23
  • By gloria23 · Posted April 3, 2014
  • 1 reply
  • Hi, I was diagnosed with a Petroclival Meningioma on March 3, 2012, it measured 4 X 5.7 X 4.4 cm. and I had a resection done on June 26, 2012 at MD Anderson,and removed 40% of my tumor. I was told by ...

New and wish I had never heard of GBM

txaggie86
  • By txaggie86 · Posted April 2, 2014
  • 7 replies
  • Hi: I am glad I found this site and know I will need it more and more. My dad's friend called me on March 3 and told me she thought he was "off." My dad is 72. I went to his house and he was off a bit ...

Two years out

SXMCT
  • By SXMCT · Posted March 25, 2014
  • 6 replies
  • After two full days of doctors, we have results from the latest MRI. What is left of the tumor is stable. They actually can't tell if the tumor is even active anymore, and the neuro onc was pondering ...

Tired!

michelle39
  • By michelle39 · Posted March 22, 2014
  • 6 replies
  • After 3 weeks of doctors, MRI scans and PET scans The doctors are finally all on the same page. After countless meeting with many different doctors the latest scans show my husbands spot they were all ...

New Life

FrenchieMia
  • By FrenchieMia · Posted March 20, 2014
  • 8 replies
  • I have been diagnosed with a brain tumor over 12 years ago now. I was a normal 27 years old with no health issue to speak of when one day heading to friends for the weekend I started feeling weird, not ...

Astrocytoma Grade 2 - Age 70 - From Diagnosis Diary

Karen1966
  • By Karen1966 · Posted March 20, 2014
  • 12 replies
  • I see and hear so many wanting to know what is going to happen next and I have actually kept a "diary" of sorts since my husband's diagnosis. I thought I would post my diary of what has happened with ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

SCLC

Yris
  • By Yris · Posted March 18, 2014
  • 3 replies
  • Hi! I am Yris, the caregiver of my lovely husband Larry. He was diagnosed with SCLC Limited, a large tumor was found in his chest by November 2013 causing so much pain in my husband, no even the strongest ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

My GBM Grade IV ,Left Parietal Tumor Cancar Survival now on 7 th Year .

BURI
  • By BURI · Posted March 11, 2014
  • 0 replies
  • Dear All My GBM Grade IV Tumor Suffering Friends , I want hightlight that I am GBM patient since 5 th February 2008 now just crossed 6 year & entering 7 year with my GBM . When my Dr advised me for one ...

Goodbye to my husband, BFF and lover Errol aka Captain Ahab

Judimax
  • By Judimax · Posted March 6, 2014
  • 45 replies
  • Though Captain Ahab has not been posting for a few months, most of you are aware of him. This is to let you know that my husband, lover and best friend, Errol Hannigan aka Captain Ahab has passed on to ...

First entry, our story

guisantico
  • By guisantico · Posted March 2, 2014
  • 9 replies
  • My husband had in 1999 his first oligoastrocytoma grade 4, in the right front temporal, it was the size of a tennis ball, he started having recurrent strong headaches, dejavu feelings, he went to 5 different ...

"Weeks" to live...

Jenni72
  • By Jenni72 · Posted March 1, 2014
  • 5 replies
  • Yesterday I found out that this GBM devil has given my mom only weeks to live. We use to talk about her life with months to live, when the Hospice nurse said "weeks" I think my mind went blank...My mind ...

Our little dancer/artist girl Brooke

Markypp
  • By Markypp · Posted February 28, 2014
  • 17 replies
  • Sorry all for not posting in the last 6 weeks or so, as you all can imagine what we went through with our 8 1/2 yr old girl Brooke. Brooke passed away jan 22nd in my wifes and my arms. She had been battling ...

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