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If you are having a bad day take a look at this it well make you laugh :)

  • By ButterFlyGirl86 · New reply December 25, 2009
  • In Recovery · 1 reply
  • I know how it feels to have a brain tumor i had my first one when i was 16 i have NF i have been lucky not to have anymore on my brain... I have made alot of videos and put them on youtube and i have ...


  • By Analiyah · New reply November 29, 2009
  • In Tumors in children · 4 replies
  • MY little girl a survivor of brain cancer ,but her mental capacity is diminishing do to raditaion,what to do now ...

42 year old brother with NF1 has a brainstem tumor

  • By Mountain · New reply November 17, 2009
  • In Newly diagnosed · 4 replies
  • My brother has NF1 and MRI on 9-29-09 showed low grade tumor (probably - no one can know for sure) in brainstem. They say he needs a biopsy. What Neurosurgeon has the expertise to do a brainstem biopsy ...


  • By LizardmyOli · Posted November 15, 2009
  • In In the news · 0 replies
  • I recieved an email from the braintrust group and they said that I should share this widely for those interested. I do not watch this show myself, but it is good that the topic is being addressed. ...

Continuing headaches

  • By LizardmyOli · Posted October 29, 2009
  • In Living with a brain tumor · 0 replies
  • I am still having headaches every evening or ones that wake me up at night, I thought these would go away once I had the craniotomy, once the swelling went down and I still have them? I still have an ...

B12 deficit? Anyone familiar with this?

  • By LizardmyOli · New reply October 27, 2009
  • In Living with a brain tumor · 2 replies
  • I never realized that I had this tested back in January, had a nurologist appt yesterday, switched some meds around and the nurologist gave me a lab slip for B12 testing and Iron levels ...

Siezure activity VS, Convulsions?

  • By LizardmyOli · Posted September 23, 2009
  • In Living with a brain tumor · 0 replies
  • Can anyone explain to me the difference between convulsions and siezures? I had to go to the ER last night with preauro signs messing with me, then I also was found to have a UTI!! The ER doctor asked ...

Short term memory deficit following craniotomy

  • By Dourasje · New reply September 21, 2009
  • In Treatments · 3 replies
  • My mother had a craniotomy July 20th, and one of her brain tumors was successfully removed. When she was feeling better about 2 days later she was still fully functional. Two days she was moved to an ...

How am I supposed to "watch and '"wait"??

KDelphi (Inactive)
  • By KDelphi (Inactive) · New reply September 11, 2009
  • In Living with a brain tumor · 1 reply
  • what can I expect? I am disabled and live on limited funds. No one seems to see or answer amything I post m, so m\please, ker me know that it posted If people see his, please repond, because I am not ...


  • By kcneongirl · New reply August 26, 2009
  • In Caregiver corner · 3 replies
  • wow like living a nightmare, my only sister is dying of brain cancer, and my brother in law wont let me see her. he wanted me to take care of her so he could work i could not i am a disabled person who ...

Conception while boyfriend is on Temador

  • By KY_girl · New reply July 21, 2009
  • In Caregiver corner · 1 reply
  • Hi, I googled support groups because I have no idea where to turn. My boyfriend has a brain tumor and has been on the drug Temador for 11 months. I was told since I was 15 years old (I'm now 33) that ...

Always get a 2nd opinion!

  • By TheRealMe · Posted January 6, 2009
  • In Treatments · 0 replies
  • My mom was diagnosed with a Glioblastoma Multiforme in early September and the surgeon who did the biopsy basically closed it up and suggested we should all gather for the holidays. Hint, hint - she's ...

How long for Chemo Recovery?

  • By Lung-BrainCancer1 · Posted March 27, 2008
  • In Living with a brain tumor · 0 replies
  • My wife started chemo last Friday after completing whole brain radiation. The two chemo drugs are carboplatin and gemzar. Adverse reactions so far are sores in mouth, nausea and fatigue. Does anyone else ...

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