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Optimistic Support

  • By LovelyLaura1313 · New reply March 12, 2014
  • In Newly diagnosed · 2 replies
  • I wanted to share these articles I found that provided me with some optimism for the future. One is from the University of California the other from Ohio State University. Much love to you all! -Laura ...

EEG showed seizures.....Surgery recommended

  • By BillsMrs · New reply March 12, 2014
  • In Treatments · 6 replies
  • So I finally got the results of my EEG after waiting a month..... (long story about why it took so long to get the results)...... when I went to see my doctor in Nashville he informed me that in fact ...

What is your experience with Avastin for GBM?

  • By jmvirwin · New reply March 12, 2014
  • In Treatments · 35 replies
  • Our NO keeps talking about Avastin as a treatment option. Pending the next MRI, he may recommend it. What was your experience with Avastin? Did it help? What were the side effects? Did it buy more time ...

Brain Tumor News March 11, 2014

  • By ABTA_Jillann · Posted March 11, 2014
  • In In the news · 0 replies
  • *Tocagen Doses First Patient Intravenously in Clinical Trial of Selective Cancer Therapy, Toca 511 & Toca FC *NW Bio Received Recommendation to Continue with Phase ...

Left Frontal Lobe meningioma surgery recovery

sarahcpsy (Inactive)
  • By sarahcpsy (Inactive) · New reply March 11, 2014
  • In Recovery · 5 replies
  • Hi My partner had a meningioma tumour on his left frontal lobe 5cm by 8cm by 2 cm flat. He had the tumour removed nearly 8 weeks ago. He recovered incredibly well. He was out of the hospital in 3 days ...

Valcyte with Avastin and CCNU

  • By cdcannon · New reply March 11, 2014
  • In Treatments · 1 reply
  • Does any one use this combination? I am considering as my latest trial did not go through for me. I am already doing Avastin with BCNU (will move to CCNU as soon as it's availabile). I have some Valcyte ...

Scared about tumor coming back

  • By girlonfire · New reply March 10, 2014
  • In Living with a brain tumor · 10 replies
  • I just wanted to ask how everyone deals with knowing the brain tumor can come back any time. My husband had surgery in August for a oligodendrocytoma, grade 3. They said they got all the tumor. Now we ...


  • By miggylynn · New reply March 10, 2014
  • In Treatments · 20 replies
  • Has anyone read the information about cannabis oil and brain cancer? supposed to stop development of blood vessels that feed tumors? just curious ...

Ketogenic Diet

  • By JeniW · New reply March 10, 2014
  • In Treatments · 50 replies
  • I'd love to hear from anyone who is using a ketogenic diet to help stop/restrict growth of a brain tumour. My 51 year old husband was diagnosed with GBM in July 2013. He has responded well to surgery ...

Looking to hear from others with CPAngle Meningiomas...

  • By Bellabeans · Posted March 10, 2014
  • In Non-malignant tumors · 0 replies
  • Hello Everyone, I am now 7 months post op and was wondering how others are handling their CPAngle recoveries or journeys... I have truly come a long way! My double vision returned to normal at 4 months ...

Complimentary options to ease Radiation?

  • By Caityclare · New reply March 9, 2014
  • In Treatments · 5 replies
  • Hello, Our nearly 4 year old daughter begins radiation treatment for Pineoblastoma tumors ( head and spine) next week, which recently returned after originally successful chemo/surgery last year. We are ...

What do I do ?

  • By fire_911medic · New reply March 9, 2014
  • In Caregiver corner · 9 replies
  • Recently my mother in law was diagnosed with a grade 4 GBM. Estimate of 18 months with treatment. She looks so good now, it is hard to process. She went to the hospital with stroke like symptoms and all ...

Oligoastrocytoma II radiation begins tomorrow

  • By tonimann77 · New reply March 7, 2014
  • In Treatments · 2 replies
  • I need any info or advice anyone has for me. Was diagnosed in August 2010 and had surgery to resect that Sept. With watch and wait approach. In 2013 reoccurrence proved to need a second surgery and then ...

Post-Op Emotions

  • By naytin · New reply March 7, 2014
  • In Recovery · 9 replies
  • My emotions well up sometimes. I'll be talking with a friend or reading a book or getting on a plane and tears will suddenly blur my vision. I had my craniotomy around 4 years ago, but am realizing that ...

first post - 13 year old son - germinoma & teratoma

  • By Purlmom · New reply March 7, 2014
  • In Adolescents and young adults · 3 replies
  • I just recently found this forum. Perhaps I wasn't ready to earlier. My 13 year old son, Matt, is currently in recovery from his ordeal with a germinoma & teratoma. He was diagnosed (at Lucille Packard ...

Question about fertility treatment and expenses

  • By GreenWright · Posted March 7, 2014
  • In Newly diagnosed · 0 replies
  • Hi all, My husband was diagnosed this fall. We were thinking of trying to start a family this year, and are now in the "wait and watch" zone with the possability of treatment at any point. Besides this ...

Stable is good... MRI

  • By Shaz007 · New reply March 7, 2014
  • In Treatments · 10 replies
  • Today we got my husbands 2 month routine MRI results and they are STABLE again. This was a bit scary as he has had mobility and coordination issues over the last month and half which after having his ...

What's Next? - Progression after 2nd Brain Surgery

  • By LoveMyKen · New reply March 7, 2014
  • In Caregiver corner · 4 replies
  • I don't post much, but I do read lots on this site. It's a great place to come for information. It's time to tell my story and to get advice. My boyfriend, Kenny was diagnosed with GBM4 two weeks after ...

My Beautiful Sister

  • By kksister · New reply March 7, 2014
  • In Grief and loss · 9 replies
  • My sister Kristine joined my parents in Heaven, 2 years after being diagnosed with a GBM 4. 54yo with 3 children, she was brave, strong, positive and a fighter. I was blessed to be with her at the end ...

How do I request more information from ABTA?

  • By ABTA_Jillann · Posted March 6, 2014
  • In Newly diagnosed · 0 replies
  • For printed information on your tumor type and treatment options sent to you at no charge visit: geServer?pagename=PublicationsRequest ...

Things you can do

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