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New to this site, have some questions for you

  • By Liesa-Joan · New reply 2:05 pm
  • In Newly diagnosed · 20 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

Days to go?

  • By jmvirwin · New reply 11:51 am
  • In Caregiver corner · 15 replies
  • My husband has had a downturn. I thought we were finally turning the corner on three weeks of battling severe constipation. Things finally got moving again this weekend, and I thought finally now he can ...

Meningioma right frontal lobe

  • By Barb67 · New reply 11:42 am
  • In Non-malignant tumors · 6 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...

Novocure device

  • By andy44 · New reply 10:57 am
  • In Treatments · 2 replies
  • Hello all, I am wondering if any patients here are using the Novocure device. I understand this treatment is available in the US and in Europe. I am trying to collect some information about it, and I ...

How do you keep your faith when your angry with your Higher Power?

  • By AmyJeanDev · New reply 7:42 am
  • In Living with a brain tumor · 5 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

2x survivor but depressed

  • By j2xsurvivor · New reply yesterday at 10:58 pm
  • In Survivor stories · 8 replies
  • I am a 2x survivor but am depressed every day and can't get passed it because I see everyone around me walking around and wearing heels and short skirts like I "used to do" But I should really be Thanking ...


  • By mrbeck84 · New reply yesterday at 8:02 pm
  • In Newly diagnosed · 3 replies
  • I just got diagnosted with a petroclivical meningioma does anybody had one before ...

GBM Support group

  • By monica523 · New reply yesterday at 11:12 am
  • In Caregiver corner · 19 replies
  • I'm helping my twin brother who has GBM stage 4 cancer. It is so difficult to watch someone you love go through all this. Just wondering if anyone in the Detroit area is going through the same thing ...

Proccluster for glioma treatment

  • By akist · New reply yesterday at 7:55 am
  • In Treatments · 8 replies
  • I was given proccluster tablets to take once a day every day for a long time, I cannot even look them up on the internet, if anyone knows what they are or has used them please let me know. Apparently ...


  • By Krick · New reply April 16, 2014
  • In Caregiver corner · 3 replies
  • My mom has been in hospice for 1 month. It is still a difficult journey. We have an aide that comes 3 days a week for bathing her in the hospital bed. She is really great. We have a nurse that come three ...

How to cope as a caregiver?

  • By Liesa-Joan · New reply April 16, 2014
  • In Caregiver corner · 19 replies
  • I lost my Father last year, he was my God, he died at age 91. I grieved the whole year. On 1/1/14, my husband's right arm stopped working normally. We went to the emergency room and the CT scan showed ...

Vision Changes

  • By suzieta · New reply April 16, 2014
  • In Caregiver corner · 18 replies
  • Just wondering what experiences people are having there with vision changes. My husband is going to be 63 so I know the aging factor is very real. He's having vision changes in left eye - very blurry ...

Tumor treating fields

  • By gloria2344 · New reply April 16, 2014
  • In Treatments · 19 replies
  • Hello, Anyone have thoughts or information on this type of treatment? It is called Novo TTF. Here is the link to the Ted Talk. ncer_with_electric_fields.html My ...

A new journey begins

  • By jmvirwin · New reply April 16, 2014
  • In Grief and loss · 20 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

Top 10 things a caregiver needs to do for newly diagnosed GBM patient

  • By jmvirwin · New reply April 16, 2014
  • In Caregiver corner · 17 replies
  • My husband was diagnosed early Nov 2013, so it hasn't been long. Already I have learned a lot and there are a lot of things I wish I had been prepared for (but wasn't). So, if you are dealing with the ...

Neuoplasm of uncertain behavior of brain and spinal cord (HCC)

  • By ElleMadix · New reply April 16, 2014
  • In Newly diagnosed · 4 replies
  • I'm having open brain surgery on Wednesday, April 16th, due to a Neoplasm of uncertain behavior of brain and spinal cord behavior. Can anyone offer me any advice, recovery stories, wisdom etc. ? Thanks ...

Avastin plus CCNU

  • By Denise555 · New reply April 16, 2014
  • In Treatments · 1 reply
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

Last day of Radiation and Temodar

  • By ekann8 · Posted April 16, 2014
  • In Treatments · 0 replies
  • 4/18 is the last treatment of Radiation and Temodar for the 6 weeks of treatment since my husband was diagnosed with an inoperable GBM IV on 2/5. In addition, during the last 3 weeks he has reduced the ...

Brain Tumor News April 16, 2014

  • By ABTA_Jillann · Posted April 16, 2014
  • In ABTA events · 0 replies
  • *MGH Findings Suggest Novel Treatment Approach for Brain Tumors -findings-suggest-novel-treatment-approa ch-for-brain-tumor-0001 *Adult Cancer Drugs Offer Hope ...

Boosting immune system functioning with Avemar and modified citrus pectin?

  • By Foggle · New reply April 16, 2014
  • In Treatments · 1 reply
  • Hi everyone Great news- my most recent MRI has shown shrinkage in the high-intensity area around the primary tumour site, and improvements in the other three lesions (one operated, two not). I was found ...

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