Active discussions

skull base tumor

Amandabfa
  • By Amandabfa · New reply 8:39 am
  • In Newly diagnosed · 3 replies
  • Hi. My name is Amanda and I have recently been diagnosed with a skull base tumor. I have a 7mm A typical benign mixed density tumor on my clivus. This is very new to me and from what I understand a very ...

Always sick....

ILoveMyCop
  • By ILoveMyCop · New reply 8:16 am
  • In Caregiver corner · 8 replies
  • Hey guys.... just curious....... I know that I've been incredibly stressed out, dealing with biopsies, 2nd opinions, radiation, chemo, etc, etc- for my wife, Danah. But is it possible for the stress to ...

Glioblastoma

pugsy2001
  • By pugsy2001 · New reply 8:01 am
  • In Recovery · 2 replies
  • I am back.. Have another question... My husband seems to be doing good one day and a few days later he is reclining again... Twice since Sept. we were thinking we would need hospice soon. The second round ...

Meningioma right frontal lobe

Barb67
  • By Barb67 · New reply 7:41 am
  • In Non-malignant tumors · 12 replies
  • I was diagnosed approximately 3 years ago. Since my first MRI tumor almost doubled in size. It is now 3.2cmx2.0cmx2.?cm. I am going for another MRI on Tuesday because my headaches are really getting horrible ...

Diagnosis not determined

hinsopa
  • By hinsopa · New reply yesterday at 10:36 pm
  • In Newly diagnosed · 7 replies
  • I would appreciate your advice. I am a 2 time ovarian cancer surviver that is trying to help my dearest friend. She began having numbness and some changes in use of her left side about 9 months ago. Stroke ...

Current treatments for GBM slide show from Dana Farber

RobinMB
  • By RobinMB · Posted yesterday at 8:34 pm
  • In Treatments · 0 replies
  • This is a great slideshow narrated by Dr. Patrick Wen on current and upcoming treatments for Glioblastoma. http://www.slideshare.net/DanaFarber/cli nical-trials-for-brain-tumor-patients-pa trick-y-wen-md ...

Side effect of surgery eye nerve

ingridmks
  • By ingridmks · Posted yesterday at 7:32 pm
  • In Tumors in children · 0 replies
  • Dear all, My daughter 12yo,, after finishing her chemo regimen for optic nerve glioma for 1 and a half years. The result is steble glioma, but the eye go to blind during chemo. Now, we're back to boston ...

Vitamins and supplements

susanjc
  • By susanjc · New reply yesterday at 1:26 pm
  • In Recovery · 15 replies
  • Ok folks who are recovering from brain tumor surgery and/or treatment I am interested to know what vitamins or supplements you have added to your diet that seem to be making a difference in your recovery ...

another primary cancer

meliora
  • By meliora · New reply yesterday at 1:02 pm
  • In Newly diagnosed · 4 replies
  • Hi wonder if anyone out here has developed another primary cancer along with their brain tumor? I think my new thyroid cancer (thyroidectomy and central neck dissection a month ago) was a result of my ...

Other adults with Pilocytic Astrocytoma?

swagus
  • By swagus · New reply yesterday at 12:00 pm
  • In Living with a brain tumor · 2 replies
  • Hi everyone, I am new here, but I am wondering if there are others out there in a situation similar to mine. Here's my journey so far.... I was first diagnosed with a brain tumor in 2006 (Pilocytic Astrocytoma ...

Agitation - Your Experiences

mcort
  • By mcort · New reply yesterday at 11:25 am
  • In Living with a brain tumor · 3 replies
  • My wife was Dx'd in Oct 2012 with GBM. Been down the radiation/drugs/chemo roads. Thursday through Saturday increasing levels of agitation. I have read various things on brainhospice.com and cancer.net ...

Avastin plus CCNU

Denise555
  • By Denise555 · New reply yesterday at 9:43 am
  • In Treatments · 4 replies
  • Dad diagnosed with glioblastoma May 2013. Had surgery, 3 weeks radiation, tried temodar but tumor grew, now on avastin for past 6 weeks and no new growth but increased weakness. Had MRI yesterday and ...

How do you keep your faith when your angry with your Higher Power?

AmyJeanDev
  • By AmyJeanDev · New reply April 22, 2014
  • In Living with a brain tumor · 17 replies
  • Hi, I'm newly diagnosed with an Oligodendroglioma low grade in Jan, 2014. I've always been a positive person and believed "Everything happens for a reason" and I am Catholic and prayed daily. After my ...

Novocure device

andy44
  • By andy44 · New reply April 22, 2014
  • In Treatments · 7 replies
  • Hello all, I am wondering if any patients here are using the Novocure device. I understand this treatment is available in the US and in Europe. I am trying to collect some information about it, and I ...

4000th Member

ABTA_Jillann
  • By ABTA_Jillann · Posted April 22, 2014
  • In Just for fun · 0 replies
  • We are excited to announce that the American Brain Tumor Association's Connections Support Community has reached 4000 members. Thank you all for being a part of our ABTA community and for supporting each ...

New to this site, have some questions for you

Liesa-Joan
  • By Liesa-Joan · New reply April 21, 2014
  • In Newly diagnosed · 32 replies
  • I am fairly new to this site. Husband diagnosed 1/1/14 with GBM tumor. My question to you all is "what did the Doctor say was the cause?". I have done a little research on the net and it says "Men over ...

avastin and carboplatin for reoccurence GBMIV

glioblastoma
  • By glioblastoma · New reply April 21, 2014
  • In Treatments · 5 replies
  • Is anyone currently using this combination ...

The Mental Side

mathmom411
  • By mathmom411 · New reply April 21, 2014
  • In Living with a brain tumor · 20 replies
  • I have a question .... I just don't know exactly how to ask it. Here's the PHYSICAL stuff: My husband of 26+ years had the astroblastoma brain tumor - Rt occipital / temporal lobe area. Dx Jan 2012. Tumor ...

meningioma pressing on cerebellum

viki789
  • By viki789 · Posted April 20, 2014
  • In Recovery · 0 replies
  • I had a meningioma that was pressing on my cerebellum and it was removed on 12/6/2012. The prognosis was not good, however I came out of surgery with no major deficits. 3 months later when I was walking ...

A new journey begins

jmvirwin
  • By jmvirwin · New reply April 20, 2014
  • In Grief and loss · 26 replies
  • My beloved husband, Mike Irwin, died on Friday, April 4, 2014. His NO called his disease an unusually aggressive course. It was less than 6 months from time of diagnosis to death. I am so thankful that ...

Things you can do

Support ABTA

Together with your help, the American Brain Tumor Association will fund more research and reach more people, with the shared goal of improving, extending and ultimately saving lives. With your gift, those coping with a brain tumor diagnosis will know -- more than ever -- that they are not alone.

Donate to the American Brain Tumor Association

Discussion topics

More from ABTA

Community leaders