Coping with the lack of understanding or being believed and how to help others understand



  • By Bexy1234 · New reply March 14, 2012
  • 4 replies
  • I am going in tomorrow to learn my treatment plan. I'm not sure what direction the doctor is going to go, but unfortunately, because I don't have regular insurance and use my VA benefits, I am only offered ...

Tricyclic Antidepressants?

  • By WinWolfz · New reply March 9, 2012
  • 5 replies
  • Hello! After yet another endoscopy and biopsies it was deemed that I do not have any ulceration, or obstruction in my esophagus and stomach, and the eosinophils found on my biopsy a year ago were not ...

gross dysmotility esophagus

  • By denlou · New reply March 9, 2012
  • 5 replies
  • can some tell me about my esophagus ...

Has anyone gotten really angry at having GP

  • By mgh71 · New reply March 3, 2012
  • 34 replies
  • No one seems to understand my having GP. No one seems to understand that NO, I do not want to go out to eat. That I am tired of fixing food for others in my home, and yet have to fix food (limited as ...

Another discusting side effect?

  • By extremelyexhausted · New reply February 19, 2012
  • 8 replies
  • I was diagnosed with Severe colonic inertia and redundant colon. I am suppose to have a laproscopic ileostomy, but I am waiting. My husband recently had neck surgery and is recovering from that. I have ...

Questions about Sub Total colectomy

  • By BaileyElizabeth · New reply February 16, 2012
  • 6 replies
  • I was just wondering if anyone here has had an experience with having a subtotal colectomy. I have very severe colonic inertia and am having this surgery done on Friday. I was just wondering how people ...

Just need to share this news

  • By Smoke11 · New reply February 10, 2012
  • 3 replies
  • For nearly two years, I've had trouble eating solid foods. I've had two endoscopies and a barium swallow. Last endoscopy was a year ago. A pulmonary doctor, checking to see whether I was aspirating, asked ...


  • By stevengarr1676 · New reply February 8, 2012
  • 6 replies
  • It's A stabbing pain on my right side below my rib cage. It also hurt we i sit down or go to the bathroom. I can't sit up without hurting me, it's really got me worried and don't know what to do ...

Does GP always progress?

  • By corrie-bd · New reply February 2, 2012
  • 13 replies
  • This truly is a wonderful site and the people with whom I have communicated have been honest and compassionate which I sicerely appreciate..I have been sick since last year with nausea but have never ...

H Pylori

  • By faxman · New reply January 25, 2012
  • 3 replies
  • I have a burning sensation in my digistive systom. I did a 10 day regiment of Pylera a month ago. My digistive track is burning so much, that I had a colonscope done just a few days ago. Things look normal ...

Blood Sugar Level Drops drasticallyy

  • By CraftyKate · New reply January 21, 2012
  • 28 replies
  • I have several episodes of mu blood sugar being too low. It takes lot of soda with lots of sugar to get it back up. I waked up this way and apparently do a lot of dumb stuff and then start drinking the ...

Pathology reports:granuloma's of the colon, etc

  • By heatherpyle · Posted January 19, 2012
  • 0 replies
  • I just received my pathology report from my Total Colectomy. The report states both submucosal and intramuscular ganglion cells present in the the colon, 12 pericolic lymph nodes-all negative for metastatic ...

Octreotide experiences?

  • By hethCM · New reply January 10, 2012
  • 3 replies
  • Is anyone else out there on octreotide injections? What is your dose, and what has been your experience with it? I have been on it for 3 1/2 years, started at 50mcg at bedtime and have gradually increased ...

Progression of GP

  • By Babygirl123 · New reply January 6, 2012
  • 10 replies
  • Hello All; I am relatively new to the group so I am learning as I go. From what I have read when GP becomes worse often a feeding tube is placed? Is this true? Or is it done to give the stomach a rest ...

wait or weight

  • By Cybilee · New reply January 3, 2012
  • 13 replies
  • I know by what I read, what I know I eat, and what I throw up I should only weigh like 80 pounds. I weigh 195lbs., and show no signs of losing it. I can actually eat what I consider a decent meal and ...

ph balance

  • By kimw37 · New reply January 3, 2012
  • 2 replies
  • I recently have been returning to the gynocologist for recurring bacterial infections(ph balance off), and my dentist said my ph is really off bad too(acidic). I'm wondering how to fix ph balance and ...

Vinegar, salt, and sugar

  • By Cybilee · New reply December 27, 2011
  • 22 replies
  • I'm not sure how these three items figure into GP, but at any given time these are what i crave and can tolerate. I know this sounds totally off the top, but a lot of the time i crave vinegar in such ...

Plausible explanation of Weight gain with Chronic Constipation

  • By heatherpyle · New reply December 24, 2011
  • 4 replies
  • I had my defecography today. It was the last and final test before my total colectomy next Friday. I have been asked many questions and I really didn't have the answer. All I know is that I am miserable ...

Constipation/Dymotility and very rapid weight gain

  • By heatherpyle · New reply December 23, 2011
  • 3 replies
  • I've been constipated since August. This is the second time this has happened to me in the last 5 years. I have gained a whopping 60 pounds since August. I have right leg edema, my fingers are swollen ...

Elevated gastrin level

  • By Lucie123 · New reply December 18, 2011
  • 4 replies
  • My gastrin level was at 500 about 4 weeks ago. The endocrinologist was worried and told me to call my gastrologist and see what the next step was. However the endocrinologist told me over the phone that ...

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