Issues pertaining to young adults

Any area of concern to the young adult patient such as, school; social issues; dating; being believed; making decisions; trying to explain to others; living with an invisible illness; hospitalizations; self-image; working

Discussions

severe colonic dysmotility

KateCarr
  • By KateCarr · New reply March 25, 2014
  • 6 replies
  • My 17 yo daughter got "the flu" when starting HS and it left her with severe colonic dysmotility (docs think the virus attacked the nerves to her colon and disabled them). After being hospitalized many ...

17 yo Systemic Scleroderma what next

scubagirl06
  • By scubagirl06 · New reply February 5, 2014
  • 3 replies
  • Mom of 17yo with the terrible hidden disease. For 2 years she sought treatment for GI only and she had no motility and the doctors couldnt determine why. hey still shake their heads because she has pain ...

Cecostomy surgery questions

kbeanmurph
  • By kbeanmurph · New reply January 22, 2014
  • 5 replies
  • Hi I am 17 years old and I am having a cecostomy tube put in next month. Does anyone have any experience with this surgery that they would be willing to share? Like how is the recovery and the surgery ...

Linzess

Destinysmom92
  • By Destinysmom92 · New reply January 11, 2014
  • 7 replies
  • I know it says not to open the Linzess Capsules but has anyone tried to open them and only take half the capsule? My daughter is going to try this drug tomorrow I just didn't want to give her the entire ...

Colonic Inertia Natural Treatments

akande1
  • By akande1 · New reply September 16, 2013
  • 109 replies
  • My 17 year old daughter was just diagnosed with colonic inertia. She had the marker test done recently, resulting in the diagnosis. We have a follow up visit with the GI doctor next week to figure out ...

Gastroparesis and Weight Gain? Help?

mgeary9112
  • By mgeary9112 · New reply March 18, 2013
  • 15 replies
  • I am 21 years old and I was diagnosed with Gastroparesis about 9 months ago after being sick for about a year. I was so sick that I considered leaving my university because I was in a lot of pain, continually ...

So scared

gpwife922
  • By gpwife922 · New reply February 22, 2013
  • 7 replies
  • Just called 911 for my husband. He was in so much pain from GP! Waiting at the hospital to go back and see him! Please pray for him ...

Gastroparesis Pain

gpwife922
  • By gpwife922 · New reply February 15, 2013
  • 13 replies
  • Hello all, I am a new member and really need some help! My husband has GP and out of the blue his condition became much more severe. We have been in and out of the ER to no avail. He is finally on Percacet ...

recommendation of motility dr. in Milwaukee area

SHarold
  • By SHarold · New reply January 3, 2013
  • 3 replies
  • Can anyone recommend an excellent motility specialist in the Milwaukee, Wisconsin area for a young adult? The problems are related to poor colonic motility (and not gastric emptying). Thank you ...

SPHINCTER OF ODDI

Pox1
  • By Pox1 · New reply November 4, 2012
  • 4 replies
  • I HAVE A VARIETY OF HEALTH ISSUES, BUT MY QUESTION PERTAINS TO SPHINCTER OF ODDI. IS IT GENETIC? THEY ONLY FOUND MINE AFTER MY GALLBLADDER WAS TAKEN OUT........MY TWO YOUNGEST DAUGHTERS ARE SHOWING SIMILAR ...

Chronic Intestinal Pseudo Obstruction .... Any one else experience this -

giambrunos
  • By giambrunos · New reply May 31, 2012
  • 6 replies
  • My daughter is 16 years old and been dealing with GP/CIP for her entire life. She is a vibrant, smart, funny and has a contagious smile. She went into a bad episode about 2 1/2 years ago and during that ...

Gastric Emptying Study

Jalee85
  • By Jalee85 · New reply December 6, 2011
  • 28 replies
  • Hello, I am 26yrs old and I just had a Gastric Emptying Study.. I had an esophageal manometry before.. 24hr PH study for GERD Upper Endoscopy and for the most part it's all been normal aside from showing ...

Will it show food??

lovepink774
  • By lovepink774 · New reply October 8, 2011
  • 8 replies
  • I know I post way too many too many times. I just have a quick question. Today I am getting an x ray to see if I have a blockage if I still have food in my stomach will this show to or not ...

What should I do?

lovepink774
  • By lovepink774 · New reply October 6, 2011
  • 11 replies
  • I have a GI appt Wednesday. I have printed out papers on motility disorders to give to my doc. The problem is my dad is going with me. Today I brought up motility disorders and he told me I'm overexagerating ...

GERD ~ I'm hoping I'm at the right group!

Jalee85
  • By Jalee85 · New reply October 4, 2011
  • 4 replies
  • Hi I am 26yrs old I have Undiffentiated Connective Tissue Disease. I have a lot of symptoms similar to Scleroderma one including GERD. I had a 24 hour PH done and it showed that my medicine was not helping ...

Should I go back to the hospital??

lovepink774
  • By lovepink774 · New reply October 2, 2011
  • 7 replies
  • So last Wednesday at the ER was my last BM. I've had the leaking ever since Friday. I've tried two enemas with no success. I'm as bloated as I was when I went to the ER. Should I make another trip ...

What should I say

lovepink774
  • By lovepink774 · New reply September 28, 2011
  • 5 replies
  • I'm very sorry I post so much. I am just at a loss. I go to the GI doc today, but I'm only seeing the PA. I want to bring up the possibility of GP and having a GES. I'm not sure what to really say especially ...

Webinar-making the transition to college

redtailhawk
  • By redtailhawk · Posted August 5, 2011
  • 0 replies
  • G-PACT is sponsoring an online webinar aimed at high school aged patients with DTP, their parents, school administrators and anyone else interested in making the transition to college as smooth as possible ...

stimulotor

bloomingdale
  • By bloomingdale · New reply July 21, 2011
  • 22 replies
  • my daughter is waiting on an op to fit a stimulotor to her bowel. she is geting obstructions every few weeks.she has ehler danlos.has any one had this op and how did it work ...

Work

lcox3251
  • By lcox3251 · New reply June 15, 2011
  • 12 replies
  • I wanted to ask... my daughter is 16 & wanted to get a job... she has worked two weeks, one week wasn't many hours & she did ok this past last week she worked 30 hours, she is barely functioning, is asleep ...

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