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End stage bowel disease/facing intestinal transplant

jbird1972
  • By jbird1972 · New reply yesterday at 6:04 pm
  • Discussion in Open discussion · 6 replies
  • Hi everyone, hopefully you guys have some info because there's not much info out there. After being diagnosed with GP and then having a complete gastrectomy at Cleveland Clinic in July 2012, I came back ...

medical marijuana

donnanae
  • By donnanae · New reply yesterday at 5:20 pm
  • Discussion in Pain issues · 6 replies
  • Hello, I am not looking to start a big debate here....I am not looking for a discussion on morality..that said-- I want to know if anyone here has tried medical MJ. I have severe gastroparesis and severe ...

Can someone describe pain you experience?

Margot64
  • By Margot64 · New reply yesterday at 5:04 pm
  • Discussion in Living with an invisible illness · 6 replies
  • Have been reading the boards on motility disorders. I am still not sure what I have. Diagnosed with IBS but also was told I had delayed motility. Have a Defecography (?) on Wednesday at Stanford. I have ...

Meeting for GP in Washington,D.C. area

teach23750
  • By teach23750 · New reply yesterday at 2:56 pm
  • Discussion in Open discussion · 13 replies
  • Does anyone know of any meetings in No. Va.(live in Fredericksburg, Va.) for people with gastroparesis or want to get together and start an informal meeting/gathering ...

Cymbalta and colon inertia

photonana
  • By photonana · New reply yesterday at 1:03 pm
  • Discussion in Open discussion · 5 replies
  • The previous discussion on this topic has been closed, but it must be carried on so I am reopening it. I have been to 3 doctors and am in the process of getting an opinion from a medical school regarding ...

Can pelvic floor dysfunction affect sigmoid function?

ih8u
  • By ih8u · New reply yesterday at 11:40 am
  • Discussion in Open discussion · 1 reply
  • I was just wondering can paradoxical pelvic floor contractions affect how waste moves down from sigmoid colon to rectum ...

AGMD Chronic Intestinal Pseudo-Obstruction Telephone/Internet Support Group

mary-angela
  • By mary-angela · New reply yesterday at 8:17 am
  • Discussion in Open discussion · 2 replies
  • Just a reminder that the Association of Gastrointestinal Motility Disorders, Inc. (AGMD) will be sponsoring its next monthly Chronic Intestinal Pseudo-Obstruction Telephone/Internet Support Group Meeting ...

Long Time Feeling Bad

Tomh1313
  • By Tomh1313 · New reply yesterday at 8:08 am
  • Journal · 2 replies
  • I have been sick so long I can't remember who wears the handcuffs during sex. ROFLMAO ...

AGMD Patient Telephone/Internet Support Group Meeting

mary-angela
  • By mary-angela · Posted yesterday at 7:26 am
  • Discussion in Open discussion · 0 replies
  • Would you like to talk with others who truly understand what you are going through? Do you need support and encouragement? If you answered yes to these questions, then I would like to encourage you to ...

AGMD Gastroparesis Telephone/Internet Community Support Group

mary-angela
  • By mary-angela · Posted yesterday at 7:22 am
  • Discussion in Open discussion · 0 replies
  • The Association of Gastrointestinal Motility Disorders (AGMD) is sponsoring its first monthly Gastroparesis Telephone/Internet Community Support Group meeting on Thursday, April 24th from 12-1 pm (EST ...

AGMD Support Group Meeting in Lexington, MA

mary-angela
  • By mary-angela · Posted yesterday at 7:04 am
  • Discussion in Open discussion · 0 replies
  • The Association of Gastrointestinal Motility Disorders, (AGMD) invites you to attend our next Monthly, Lexington, Massachusetts Digestive Motility Educational/Support Group Meeting taking place on Saturday ...

New Diagnosis

ksludwig
  • By ksludwig · New reply yesterday at 6:02 am
  • Journal · 31 replies
  • Well after traveling to Mayo Clinic now and going through some testing, I was diagnosed with Pelvic Floor Dysfuncion after I already had the abdominal colectomy and ileorectal anastamosis. This is very ...

defography

snowbaby
  • By snowbaby · New reply April 22, 2014
  • Discussion in Open discussion · 6 replies
  • Can anyone tell me what the prep is for a demography,. HAVE colonic inertia and being worked up at Mass General - Dr is doing a battery of tests. Already had sitz marker, virtual colonoscopy, anal manometry ...

LOW ESTROGEN AND HIGH TESTOSTERONE IN A FEMALE

FernM
  • By FernM · New reply April 22, 2014
  • Journal · 12 replies
  • Hi; What is the best and safest way to balance your hormones. I dropped the Dr I was going to not long after he diagnosed that my estrogen was low and the testosterone was high. My old Dr when I mentioned ...

Gastroperisis & colonic inertia. Meds or Botox b4 surgery?

Orzel
  • By Orzel · New reply April 22, 2014
  • Discussion in Open discussion · 9 replies
  • I was told my doctors only seen a handful with a case like mine. I'm afraid of meds due to side effects. They seem to mainly target nausea. I hear on this site of Botox. Does it work? I really want to ...

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 22, 2014
  • Journal · 72 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

Happy Re-Birthday to me!

ng1031
  • By ng1031 · New reply April 22, 2014
  • Journal · 11 replies
  • As of 10 am this morning I hit my official 1 year mark! This time last year I was having my 2nd surgery to fix my anastamosis that was healing shut from my total colectomy surgery (that took place with ...

Sorry It Has Been So Long time since my last post 4/16/2014

littlewhitedove35
  • By littlewhitedove35 · New reply April 22, 2014
  • Journal · 3 replies
  • since my last post I have had 6 feeding tube changes, I got my AFO's , today I got the news that my walking issues my be repairable with back surgery. They are telling me that my back is messing up due ...

Motility Disorders and Carcinoid Tumor

CrystalRainbow
  • By CrystalRainbow · New reply April 22, 2014
  • Discussion in Open discussion · 2 replies
  • Hello every one. I am a newbie here. I am 60 and a widow. I have had severe GERD for years, which led to Barrett's Esophagus which had to be monitored every 6 months to a year as it is a pre-cancerous ...

Organizing Paperwork for Mayo

Layla99
  • By Layla99 · New reply April 22, 2014
  • Discussion in Coping with chronic illness · 2 replies
  • I know so many of you have made trips to Mayo so how do you organize your records to make it easy on the doctor? I would like to be able to hand him a binder maybe with tabs. How much of a medical history ...

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