Active posts


  • By Esophagus · New reply April 19, 2014
  • Discussion in Open discussion · 1 reply
  • I have systemic sclerosis,and I have developed calcium deposits in various places on my body. I'm wondering if anyone has successfully had them removed, and if so where they had this done. Thanks ...

Boxes of Isosource in Vanilla - passing it forward

  • By martiz · Posted April 19, 2014
  • Discussion in Nutrition · 0 replies
  • Marti Z here: Hi there everyone. A friend of mine gave me some Isosource made by Nestle Nutrition and has l.5 just below the name. It has 375 calories, 18% from protein and calorically-dense, fiber containing ...


  • By dkuz · New reply April 19, 2014
  • Discussion in Pain issues · 4 replies
  • some of you may remember me talking about my son victor who has gatrolparesis and the trouble we have been having getting the insurance to approve the botox shot well we finally got and approve letter ...

tramsenteric nuclear scan

  • By amintune1 · New reply April 19, 2014
  • Discussion in Open discussion · 2 replies
  • I have severe motility disorders of the large intestine. I have never been officially diagnosed with IBS or severe idiopathic constipation. The fact is that the quality of my life has been seriously compromised ...

Stomach pain

  • By Jensam30 · New reply April 19, 2014
  • Discussion in Pediatric · 29 replies
  • Hi I am new on here and not too sure how this works. But I am desperate. My 14 year old has been suffering with stomach pain in her upper abdomen for the past year. Every time she eats she has pain. Sometime ...

Busy day Friday

  • By candacepoet · New reply April 18, 2014
  • Journal · 18 replies
  • Dear friends and family, Tomorrow you won't see me much on the boards, because I have a busy day. I have to be ready for physical therapy at 6:45, and once I get home I have about fifteen minutes to get ...


  • By FernM · New reply April 18, 2014
  • Journal · 8 replies
  • Hi; What is the best and safest way to balance your hormones. I dropped the Dr I was going to not long after he diagnosed that my estrogen was low and the testosterone was high. My old Dr when I mentioned ...

SED rate

  • By kaysus1973 · Posted April 18, 2014
  • Journal · 0 replies
  • I may not be posting this on the right forum...but throwing it out to you all anyway. Last week, my neuro checked a SED rate. It was 27. I know that 20 is normal. She wants to recheck it to see if there ...

Awareness walk

  • By sarahsays · New reply April 18, 2014
  • Discussion in Living with an invisible illness · 2 replies
  • Me and a friend were looking into holding an awareness walk for gastroparesis and was wondering if anyone has held one before or knew what goes into having one? I know like promoting but do you have to ...

New symptoms

  • By opie1 · New reply April 18, 2014
  • Discussion in Understanding · 11 replies
  • So in the past I've mentioned my nerve issues that the drs can't figure out. And when I try to bring up to my dr that i think it could be connected to my gastroparesis, he just says no way. With my recent ...

Cymbalta and colon inertia

  • By photonana · New reply April 18, 2014
  • Discussion in Open discussion · 4 replies
  • The previous discussion on this topic has been closed, but it must be carried on so I am reopening it. I have been to 3 doctors and am in the process of getting an opinion from a medical school regarding ...

chronic pancreatitis

  • By Dianesings · New reply April 18, 2014
  • Discussion in Pain issues · 34 replies
  • Just got diagnosed with chronic pancreatitis and have found my doctor not much help except to give me enzymes which seem to cause acid reflux and joint pain. the pain can be excruciating, clear across ...

Cause of Colonic Inertia

  • By kaysus1973 · New reply April 18, 2014
  • Journal · 6 replies
  • Hello! I have been diagnosed with colonic inertia based on the results of a sitz marker study. I have been having some severe neurological symptoms....numbness and tingling in face, arm and hand. Dizziness ...

Mast Cell Disorder

  • By NancySiegal · New reply April 18, 2014
  • Discussion in Open discussion · 29 replies
  • I am curious to know if anyone has had their mast cell counts tested during an endoscopy? Does anyone have any information on this condition? I just had an endoscopy and sigmoidoscopy again and this time ...


  • By Ister · New reply April 18, 2014
  • Journal · 5 replies
  • Hi! I'm new to this site. I have had my second pacemaker for seven years. I am worried that the battery will die soon and my Dr. Has never changed the battery before. Has anyone out there ever had their ...



Large colon removal advice

  • By Jlf1979 · New reply April 17, 2014
  • Discussion in Open discussion · 42 replies
  • I'm having my large colon removed due to severe constipation. Anyone have this done? What should I expect after and anything you'd recommend before? Nervous ...

Sorry It Has Been So Long time since my last post 4/16/2014

  • By littlewhitedove35 · New reply April 17, 2014
  • Journal · 2 replies
  • since my last post I have had 6 feeding tube changes, I got my AFO's , today I got the news that my walking issues my be repairable with back surgery. They are telling me that my back is messing up due ...

Extreme bloating, constipation

  • By ksljr · New reply April 17, 2014
  • Discussion in Living with an invisible illness · 12 replies
  • For 3 years ever since a series of surgeries (my gut was likely decimated by antibiotics perhaps, steroids, deadly bacteria, loss of weight or all of the above), I have been unable to eat even the smallest ...

Colonic Inertia while taking Cymbalta

  • By DLeeC · New reply April 16, 2014
  • Journal · 14 replies
  • After nearly two years of an unexplained paralyzed colon - doctors at Cleveland Clinic & Temple University, every possible test & study, I was diagnosed with colonic inertia. It was as if someone just ...

Things you can do

Support AGMD

Help the Association of Gastrointestinal Motility Disorders reach its goals and support people like yourself by making a donation today.

Donate to the Association of Gastrointestinal Motility Disorders



Discussion topics

Helpful links from AGMD

Community leaders