TSCclinicliaison's discussions

Free conference at National Institutes of Health for military families

TSCclinicliaison
  • By TSCclinicliaison · Posted April 8, 2014
  • In Tuberous Sclerosis Alliance · 0 replies
  • Subject: Military Connected Children with Special Health Care Needs and Their Families, April 14-15 Military Connected Children with Special Health Care Needs and Their Families When: April 14-15, 2014 ...

A CLINICAL TRIAL FOR CHILDREN WITH SLEEP DIFFICULTIES

TSCclinicliaison
  • By TSCclinicliaison · Posted March 28, 2014
  • In Tuberous Sclerosis Alliance · 0 replies
  • Study Title: A randomized, placebo-controlled study to investigate the efficacy and safety of Circadin® to alleviate sleep disturbances in children with neurodevelopmental disabilities Study Site: Kennedy ...

Donate Newly Lost Teeth for Cell Research

TSCclinicliaison
  • By TSCclinicliaison · Posted March 21, 2014
  • In Tuberous Sclerosis Alliance · 2 replies
  • Dr. Lawrence T. Reiter at the University of Tennessee Health Science Center in Memphis, TN is conducting a research study to determine if neurons can be grown from the dental pulp of individuals with ...

TS Alliance recognizes four new TSC Clinics

TSCclinicliaison
  • By TSCclinicliaison · Posted March 14, 2014
  • In Tuberous Sclerosis Alliance · 1 reply
  • Four centers recently received TSC Clinic designation from the TS Alliance. They are: NEW YORK Bronx Children’s Hospital at Montefiore (CHAM) Tuberous Sclerosis Center Director: Fatema Malbari, MD Coordinator ...

A CLINICAL TRIAL FOR CHILDREN WITH SLEEP ISSUES

TSCclinicliaison
  • By TSCclinicliaison · Posted March 1, 2014
  • In Tuberous Sclerosis Alliance · 0 replies
  • Study Title: A randomized, placebo-controlled study to investigate the efficacy and safety of Circadin® to alleviate sleep disturbances in children with neurodevelopmental disabilities Study Site: Kennedy ...

Early Screening for Autism in the Tuberous Sclerosis Complex (TSC)

TSCclinicliaison
  • By TSCclinicliaison · Posted May 7, 2012
  • In Tuberous Sclerosis Alliance · 5 replies
  • NEW RESEARCH STUDY BEING CONDUCTED AT UCLA and CHILDREN'S HOSPITAL BOSTON, READ MORE BELOW: We are currently conducting a study at University of California, Los Angeles and Children’s Hospital Boston ...

Research survey for parents of child (5-18 yrs) with learning disability

TSCclinicliaison
  • By TSCclinicliaison · Posted April 24, 2012
  • In Tuberous Sclerosis Alliance · 0 replies
  • A Clinical Psychologist trainee from the University of Edinburgh is inviting parents to take part in a brief online questionnaire as part of her thesis, which is about healthy eating in children with ...

TS ALLIANCE RECOGNIZES TWO NEW TSC CLINICS

TSCclinicliaison
  • By TSCclinicliaison · Posted February 28, 2012
  • In Tuberous Sclerosis Alliance · 0 replies
  • The TS Alliance Board of Directors recently approved two new TSC Clinics: ORANGE, CALIFORNIA Children’s Hospital of Orange County Director: Mary L. Zupanc, M.D. Coordinator: Wissy Wallis, RN, PNP Age ...

Looking for an adult kidney specialist in the Greater Seattle WA area

TSCclinicliaison
  • By TSCclinicliaison · Posted February 22, 2012
  • In Tuberous Sclerosis Alliance · 0 replies
  • Please contact Dena Hook, dhook@tsalliance.org or Jo Anne Nakagawa jnakagawa@tsalliance.org if you know a nephrologist or urologist (familiar with TSC) who is in the North Seattle Metro Area. We need ...

Research and Treatments in TSC Update meeting in St. Paul, MN

TSCclinicliaison
  • By TSCclinicliaison · Posted January 12, 2012
  • In Tuberous Sclerosis Alliance · 0 replies
  • Please join the TS Alliance of the Upper Midwest for an educational meeting on Research and Treatments in TSC Update, presented by Dr. Michael Frost, Dr. John Hulbert, and Roya Moltaji of MetLife. The ...

Meet the TSC Experts on Sunday, 12/4/2011 in Baltimore, MD - RSVP by 11/28

TSCclinicliaison
  • By TSCclinicliaison · Posted November 18, 2011
  • In Tuberous Sclerosis Alliance · 7 replies
  • Come meet TSC researchers and clinicians for a two hour question and answer period. The panel includes the following confirmed TSC experts: Harry Chugani, MD, Pediatric Neurology & Epilepsy, Detroit Children's ...

NEW TSC Clinic in Seattle, WA

TSCclinicliaison
  • By TSCclinicliaison · Posted February 3, 2011
  • In Tuberous Sclerosis Alliance · 4 replies
  • The TS Alliance is pleased to recognize the Tuberous Sclerosis Clinic/Genetic Epilepsy Clinic at the Pediatric Neuroscience Center Swedish Neuroscience Institute. Clinic Director: Marcio Sotero de Menezes ...

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