Louise45's discussions

Lost off PAIN need help

  • By Louise45 · Posted January 27, 2012
  • In VHL Alliance · 6 replies
  • I would just like to no .About gums could VHL have anything to the gums? I have a lot off pain in my gums some time i fell like crying that how bad it is.But the Dentist told me that all my teeth are ...

Need help

  • By Louise45 · Posted November 18, 2011
  • In VHL Alliance · 2 replies
  • Need to find a doctor for Von-Hippel-Lindau in Ontario.My family doctor ask me to try to find a place that's in Ontario for him?Cant anyone help me please Thanks Louise ...

My son is gone for ever what should i do

  • By Louise45 · Posted October 17, 2011
  • In VHL Alliance · 4 replies
  • My son Jason was born on Oct 2,1981 .And now he whent for his frist brain surgury on Sept 24,2011. And then i got a call to let me no he was on life support so i had to make the hard dissition to unplug ...

About some new pills

  • By Louise45 · Posted June 17, 2010
  • In VHL Alliance · 0 replies
  • Drug Treatment Options for Brain Tumors & Kidneys & Spin ext....Did anyone one get some news about this pills?I sure would love to no about theme if there is some.Please let me no. Thanks and have a great ...

Things you can do