At first, since I'm brazilian and english is not my native language, I would like to apologize for any mistakes and for the fact that I can't really be very specific about the medical names and expressions since I don't know them in english. My dad, who's 59, was diagnosed with bladder cancer 2 years ago after getting sick, an urine infection, when he was in vacation in miami with my mom. When he came back he started de exams. We were afraid because there's a history of prostate cancer in his side of the family but it was not it. It was stage 3 bladder cancer but hadn't reach the bladder wall or any other organs. He was treated with the BCG until last december when the doctors said that it wasn't working since the cancer was still coming back every time.
So on january 3th this year he had the neobladder surgery. He was really scared because a friend of his that had the same surgery had to stay for 40 days in the hospital, not the 20 that the doctors told him he would probably stay.
We ended up staying for almost 100 days. Since the surgery it's been a struggle. He was having infection after infection, came home on the end february and stayed for only a week until he started having trouble peeing and his kidneys stopped working. The doctors were having trouble getting the double J stent out because of the way the bladder positioned itself after the surgery and he ended up staying with it 2 months and a have with it, which it's not common at all. They were sure that it was one of the factors of this infections. They took it out 2 weeks ago through the kidneys.
Soon after it he came home and was doing great, even started working again until this morning, when he passed out twice, started shivering and we took him to the hospital. Another infection, very strong one this time, so he'll have to stay in the ICU and get a blood transfusion.
I found this website a couple of weeks a go, and though of writing, specially for him. I wanted to find people that went or are going through the same things he is and show him that there's a life after all this. He was so scared of going back to the hospital today, he stayed there so long that he didn't want to go back.
Thank you for reading,