Aussie_SusieQ's discussions

Atlas of Respiratory Disease - Sarcoidosis in the USA

Aussie_SusieQ
  • By Aussie_SusieQ · Posted August 29, 2011
  • In Stop Sarcoidosis · 4 replies
  • This is a very interesting link for those in the USA with Maps of areas where Sarc patients have been registered. www.cdc.gov/niosh/pdfs/98-157.pdf Atlas of Respiratory Disease Mortality 10 2. Sarcoidosis ...

Supercalifragilistic-sarcoidiosus.

Aussie_SusieQ
  • By Aussie_SusieQ · Posted August 27, 2011
  • In Stop Sarcoidosis · 3 replies
  • Supercalifragilistic-sarcoidiosus. Even though the sound of it is something quite atrosious. If you say it loud enough you'll always sounds sardoshus. Supercalifragilistic-sarcoidiosus. um-diddle-diddle-um-diddle-eye ...

Australian Support Web site for Sarcoidosis and Lyme Disease

Aussie_SusieQ
  • By Aussie_SusieQ · Posted August 11, 2011
  • In Stop Sarcoidosis · 7 replies
  • Dear All, After a meeting with Priscurl and Tawney I have now created a web site. The web site is www.sarcoidosisaustralia.com. We are hoping through this to create a support network. It seems most of ...

Calling all Aussies Sarcoid Interest meeting - Sydney

Aussie_SusieQ
  • By Aussie_SusieQ · Posted July 26, 2011
  • In Stop Sarcoidosis · 5 replies
  • Hey possibly good news I have contacted this lady and she is willing to facilitate a meeting and invite guest speakers for all interested parties the office in Albion Street, Sydney. We need as many to ...

Vitamin D test info

Aussie_SusieQ
  • By Aussie_SusieQ · Posted July 16, 2011
  • In Stop Sarcoidosis · 10 replies
  • http://www.labtestsonline.org.au/underst anding/analytes/vitamin_d/test.html States that High levels of 1,25 dihydroxy-vitamin D may occur when there is excess parathryoid hormone or when there are diseases ...

CD8+ T cell exhaustion in sarcoidosis disease

Aussie_SusieQ
  • By Aussie_SusieQ · Posted July 9, 2011
  • In Stop Sarcoidosis · 3 replies
  • Hi found this link on Sarcoidosis Network http://www.wasogbal2011.nl/PDFs/posters/ G2.pdf ...

BREAKING NEWS FOR THE UK! - RECOGNITION AT LAST

Aussie_SusieQ
  • By Aussie_SusieQ · Posted July 8, 2011
  • In Stop Sarcoidosis · 6 replies
  • http://sarcoidosis.ning.com/forum/topics /breaking-news-for-uk?xg_source=msg_mes_ network How fantastic for them. We need to watch this space closely and emulate all across the world ...

Is Dragonfire in this registry? World Trade Centre

Aussie_SusieQ
  • By Aussie_SusieQ · Posted July 5, 2011
  • In Stop Sarcoidosis · 1 reply
  • http://www.nycpba.org/wtc/registry.html We are in the process of gathering as much as possible of this type of information. Please call us at (212) 298-9162 to report illnesses to the PBA Registry or ...

Vitamin D and the immune system: new perspectives on an old theme

Aussie_SusieQ
  • By Aussie_SusieQ · Posted June 30, 2011
  • In Stop Sarcoidosis · 15 replies
  • Here's a link to a interseting article http://www.ncbi.nlm.nih.gov/pmc/articles /PMC2879394 ...

Hey all Aussies look at this

Aussie_SusieQ
  • By Aussie_SusieQ · Posted June 26, 2011
  • In Stop Sarcoidosis · 0 replies
  • http://www.raredisease.com.au/ It's been on already but I'd love to know the outcome and am trying to find out. This symposium will bring international experts on rare diseases together with stakeholders ...

Next scheduled conference: July 9th, 2011, 2pm PST

Aussie_SusieQ

Welcome to the Sarcoidosis Registry

Aussie_SusieQ
  • By Aussie_SusieQ · Posted June 26, 2011
  • In Stop Sarcoidosis · 5 replies
  • Never seen this before. I think I'll fill in it may help us Sarkies. It says it's a international registry for sarcoid patients. http://www.snaregistry.org/registryquest ionssubmit.html ...

A medline tutorial

Aussie_SusieQ
  • By Aussie_SusieQ · Posted June 25, 2011
  • In Stop Sarcoidosis · 1 reply
  • http://www.nlm.nih.gov/medlineplus/tutor ials/sacroidosis/htm/_no_50_no_0.htm or http://www.nlm.nih.gov/medlineplus/tutor ials/sacroidosis/id329104.pdf ...

Things you can do