wikkedlilgrrl's journal
- By wikkedlilgrrl · Posted November 13, 2008
- 1 reply
- It seems like forever since I've posted. Of course I've been busy but so happy with the progress Zephan is making! Yes, he is still at the rehab hospital ... a little longer than expected but the extended ...
- By wikkedlilgrrl · Posted October 18, 2008
- 3 replies
- It's been a week since Zeph had be transferred from the NICU to a children rehabilitation hospital. He is doing wonderful and making some significant progress. While I am both glad and a little misty ...
- By wikkedlilgrrl · Posted September 20, 2008
- 12 replies
- We are currently on day 116 ... {{{ARRGGHH}}} ... I am tired of making the trek up there ... tired of leaving at the end of the day without my son ... tired of seeing other babies go home (though I am ...
- By wikkedlilgrrl · Posted September 4, 2008
- 5 replies
- On this hundredth day of life my LO will undergo laser surgery for ROP. It's kinda unexpected yet expected. He has been monitored closely since birth and has been pretty much ok until the most recent ...
- By wikkedlilgrrl · Posted August 19, 2008
- 4 replies
- I am happy to report that Zephan is doing well ... he is still on a nasal cannula with 30% oxygen. I learned just a few minutes ago that he has regressed back to the high flow cannula due to an apnea ...
- By wikkedlilgrrl · Posted August 9, 2008
- 4 replies
- Zephan is doing really well! I'm still cautiously happy ... He had been taken OFF CPAP and is now on a nasal cannula with a flow of 3 ... tolerating all his feedings ... and gaining weight steadily (about ...
- By wikkedlilgrrl · Posted August 4, 2008
- 2 replies
- All is well at the moment. My little boy is growing and getting stronger ... yet I still hold my breath. We've had no major complications and for that I am extremely grateful. He continues to tolerate ...
- By wikkedlilgrrl · Posted July 27, 2008
- 3 replies
- Zeph has had a beautiful week! He was extubated yesterday and is back on machine CPAP (+5)/oxygen (25%) ... he is no longer receiving TPN (IV nutrition) ... his feedings are completely fortified breast ...
- By wikkedlilgrrl · Posted July 25, 2008
- 2 replies
- Zephan has had an incredible week this week and I can't help but think the prayers an constant warm thoughts work! Thank you all soooo much. I appreciate the concern and care you have shown for me and ...
- By wikkedlilgrrl · Posted July 18, 2008
- 5 replies
- Hello everyone ... I'm sorry it's been so long since my last entry ... I don't even know where I left off!!! Currently, Zephan is BACK on a ventilator (on low settings) after about a week on CPAP. He ...
- By wikkedlilgrrl · Posted July 7, 2008
- 6 replies
- Hello All ... {Big Sigh} I'm cautiously relieved to report that Zephan is "holding his own" according to the nurses. He isn't exactly better, but he isn't any worse. An infectious disease specialist consulted ...
- By wikkedlilgrrl · Posted July 4, 2008
- 12 replies
- A new friend recently sent me an email that said God never gives us more than we can bare. This too shall pass ... I try VERY hard to find comfort and an absolute belief in that statement he never gives ...
- By wikkedlilgrrl · Posted July 2, 2008
- 12 replies
- First of all ... I want to send a truly heart felt THANK YOU to each of you who read my entries and send prayers and words of encouragement. Little do you know ... you guys are really the only support ...
- By wikkedlilgrrl · Posted July 1, 2008
- 8 replies
- Yesterday was again *one of those days* ... I decided to make my visit to the NICU earlier in the day instead of the afternoon so that I would have some time to take care of a few things. Omigosh! I walked ...
- By wikkedlilgrrl · Posted June 28, 2008
- 2 replies
- I just happen to look up and a month has passed! Yes, it's something awesome to celebrate but it seems like each day is a crawl! I'm hoping that the next month and the next month and the following months ...
- By wikkedlilgrrl · Posted June 25, 2008
- 5 replies
- I have this analogy that I would like to use to describe my current state ... everyone knows ATLAS (with the world on his back?) ... then there is this Indian deity (I think) with all the arms ...
- By wikkedlilgrrl · Posted June 20, 2008
- 2 replies
- I first want to thank everyone for the kind words and encouragement. I wasn't aware that I could do KCare everyday ... depending of course on how he is doing. It is such therapy! Today was such a rough ...
- By wikkedlilgrrl · Posted June 18, 2008
- 11 replies
- Today's visit was worth all the crap I endured the last few days ... After not being able to even HOLD him for fear of a destat, I got the rare pleasure of cradling my precious boy against my skin! Talk ...
- By wikkedlilgrrl · Posted June 16, 2008
- 5 replies
- Lots of changes the last day or so ... please forgive me if I repeat myself. Went in to visit my precious boy only to find out that they relocated him to another section of the nursery and had been placed ...
- By wikkedlilgrrl · Posted June 14, 2008
- 2 replies
- I know that I promised to keep up to date by journaling, but it's been harder than I thought. Zephan is doing well after a day or so on the ventilator ... scared the crap outta me when the NICU called ...
