Hot one minute, Cold the next, TPN the culprit?

My body temperature is way off. I live in the Phoenix, AZ area where temperatures this time of year are about 110 degrees. So my air conditioner runs practically all day & night long. When it's not running I feel warm and hope for the air to kick on. When it does, I'm cold and need a blanket. Sometimes at night I'll wake up shivering, and other times wake up sweating. No one else in my family experiences this, I don't remember having this problem before TPN. Not sure if it's due to the TPN, or is it my low weight (104 lbs), or can it be prememopausal symptoms?

Anyone else have this issue?

Report post

16 replies. Join the discussion

Hey there, i live in scotland where u know its pretty much cold all year round lol. I have days where am sweating and then all of a sudden am shivering. I dont really know myself why this happens, i do think though that loosing weight and not eating has alot to do with it. I dont have a tube, so i couldnt tell u if thats the problem. I do know when my periods are due, i have major sweats and feel like am having flushes,. i hope u get some answers xx

Report post

I am not on tpn, but I do have the same problem. It seems the body is confuse. I live in the south so I am in the same temperature range as you with humidity thrown in to . I am on hrt so I do not think it has to do with being premenopausal but check with your dr.s to make sure. I just keep adjusting the thermostat ; )

Report post

I know exactly how you feel. I experience this all the time. I'm shivering one minute then sweating the next. However this could be an indication of a serious problem if this is happening when you are infusing your TPN. Do you run a fever with these episodes? To be sure you don't have an infection I would have the doctors check your white blood cells and draw blood cultures.

Report post

I am on TPN and do get hot then cold all the time when I am infusing. No one can explain the phenomenon and I am post-menopausal. I guess my body isn't used to getting this great nutrition even though I have been on TPN since November 2009. I get blood work done every 2 weeks and thank goodness it has been normal. Go figure.

Report post

Our temps are in the 110 to 115 degree range also and the air conditioner runs 24/7. Not on TPN at present but expecting to start again this week. I run hot and cold constantly but I think it is due to low body weight and no fat to keep me warm. One more thing to deal with!

Report post

Prior to going on TPN 7 days per week I was always cold, and my blood sugars were fairly stable. I am a diabetic, but my diabetes is fairly mild. Since going on TPN my blood sugars are wonky and all over the place from very low to higher than normal. I still only take oral diabetes meds which is what I took before. Since I have been On the TPN my body temps have been all over the map and seem to be tied to my blood sugars. Low sugars make me sweat. Also, since being on TPN my blood pressure is low and this seems to be part of it too (none of the Dr.s can explain why my blood pressure has tanked since the TPN (it might be part of what made it neccessary for me to go on TPN rather than an effect of the TPN (think autonomic failure).
Our bodies are a true mystery!
Barb

Report post

Hi

I get hot and cold a lot. But, you should make
Sure it's not an infection. I've had this on TPN
But also when Ive been sick. I'm on estrogen
So I don't think it is that. My temperature usually
Runs lower, so when I get a fever, I'm pretty sick
By that point. So, I think u should let your Dr know,
And get blood tests. Hope this helps! Linda

Report post

Mostly, I get very hot from TPN. I know it's from the TPN and not, say, menopause, because I only infuse three nights a week. I have to run my fan as well as the AC. During the first hour, when it's going in at a low rate, I'm fine. But then I get hot. I get cooler toward the end of the infusion, when it's ramping down.

On cool nights, like last night, I start out wearing a warmer nightgown, then change to a sleeveless, lightweight one during the night. I toss the covers off, then toward morning I pull them back on.

Davi

Report post

No, tube yet but I feel this way all the time. I've killed 3 thermoters watching it go up and down. Sometimes it's 101 and sometimes it's 97 but never inbetween. I blame Raynaud's though I lack a true diagnosis. Dr T said it's more common with dysmotility patients but alas we cannot take the medicine so why test? No point. I can't even test for neuropathy in my leg because I always drop in temp. when I get stressed and how am I supposed to relax with volts running through me? not gunna happen-lol! Pay attention to your mind set when you feel cold. Are you worrying about something extra? plate too full? list of to-do toooo long? I noticed I warm up at the end of the evening when I get the kids to bed and am about to colapse on the couch for some well earned TV :) I can usually take a long warm-not hot shower and balance out for a few hours :) It's always cold and foggy here on the coast, today it even feels like old man winter came a knocking...

Report post

My experience is similar to Davi's .... the heat really kicks in about an hour into my TPN infusion. The opposite happens when I'm just doing hydration (normal saline)... then you'll find me with a heating pad. I live in the San Francisco Bay area so the weather has very little to do whether I'm feeling hot or cold.

Report post

I experience this also where one minute I'm freezing and the next I am sweating. When I was infusing my TPN (usually over 15 hours) was when it would happen the most. I am no longer on TPN and am on a feeding tube and I have the same thing happen. I asked my nurse about it one day and she said it is my metabolisim because your body thinks of this stuff as food and when a normal person eats their metabolisim rises. Normally they eat during the day several times a day and are able to be active (probably a lot more active than most on this site) so they might not notice the changes as much at least that's my perscpective on this. LOL

Report post

The elevation in metabolism theory makes a lot of sense. I know that TPN must be raising My metabolism because my energy level hasn't improved all that much on TPN compared to when I was starving to death on 300 to 600 Kcals per day. Now that I am on 1500 Kcals I have only put on 10 lbs over 8 months and my weight seems to have stabilized at my current weight at this point. It seems to me that I should have gained a lot more weight with this calorie shift. The only thing that would explain why I haven't is an increased metabolic rate, because my activity level is better, but not by much!

Report post

hah! I wrote this to a friend a few days ago in an email before seeing this discussion: " I am so shivvering cold!! But told myself i must
eat something more before going to bed for good tonight. Perhaps a warm shower to warm me up. Temp set back at 80 degrees. Strange."

I've had lots of these spells. I'm not on TPN or tube yet. Just go hot-cold-hot-cold-hot-cold randomly. Unfortunately, at night, it seems I'm hot and I have a fan on ad the covers off and all that jazz...but no relief. Then it could be 100 degrees and I'm cold! How does this make sense? LOL! Wonky body-thermostat!

Report post

not back and forth, but mostly cold for the last year or so. electric blanket is my answer at night anyway.

Report post

As the day progresses, I get colder and colder. Winter nightwear, bathrobe and a warm afghan is what I wear watching tv. In the mean time, my husband is always warm and we argue constantly over the air conditioning and the fan. This happens before I start my TPN at 9.00

Report post

Hi I live in Flagstaff and get the hot flashes quite a bit. I don't have a TPN but I have a separate J and PEG tube. It drives my husband nuts at times because He will be freezing and I need to open up all the windows to try and cool down at night, or have the A/C in the car up high but nothing really helps. I also have autonomic and peripheral neuropathy. I believe my autonomic neuropathy plays a big key in temperatures for me. It affects things that you don't have to think about like your heart rate, BP, breathing and so forth. I will be talking to my doctor at the end of this month about mine because it has gotten considerably worse. I do get very cold at times but not very often. I wouldn't think I would be facing hot flashes at my age because I am only 25.
Judy

Report post

This journal entry is closed to replies. We close all journal entries after 90 days.

If there's something you'd like to say, here are some things you can do:

Things you can do