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tdhssp's discussions
Our 13 year old girl passed away from cardiac event
- By tdhssp · Posted January 1, 2009
- In Sudden Cardiac Arrest Association · 6 replies
- Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...
13 year old girl dies from cardiac arrest
- By tdhssp · Posted January 1, 2009
- In C.A.R.E. Cardiac Arrhythmias · 0 replies
- Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...
Chromosome 18
- By tdhssp · Posted September 3, 2008
- In NORD Rare Disease · 1 reply
- Hello, my name is Velvet and my child was born in 1993 with a rare chromosome duplication known solely as tetrasomy 18p. NORD was imperative in helping me link to other individuals with similar diagnosis ...