tallcrowe's discussions

vestibular therapy

tallcrowe
  • By tallcrowe · Posted May 21, 2008
  • In United Leukodystrophy Foundation · 7 replies
  • has anyone tried or even heard of vestibular therapy? with recommendations from both of my son's therapists we are approaching this therapy as a possibility. just wondering if anyone has had any experience ...

any one else undiagnosed?

tallcrowe
  • By tallcrowe · Posted May 15, 2008
  • In United Leukodystrophy Foundation · 9 replies
  • hi! my 6 year old son is undiagnosed with a possibility of 4h syndrome which is not even an officially named leukodystrophy yet. we have worked with cincinnati children's hospital medical center for about ...

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