rzrbckgrl's discussions
- By rzrbckgrl · Posted July 11, 2008
- In NORD Rare Disease · 2 replies
- My daughter Abigail passed away in May. She was 2 years old and I found her diagnosis just a week before she passed. She had Syndromic Diarrhea, also known as Tricho-Hepato-Enteric Syndrome or Phenotypic ...