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rybrans07's discussions

Sarah has protein in her urine as well as blood-anxiety ridden Mom

rybrans07
  • By rybrans07 · Posted November 17, 2008
  • In The Children's Inn at NIH · 9 replies
  • Today I received the phone call none of us want to hear. Sarah's doctor called to tell me that her urine was positive for proteins and blood. He didn't say much else except that he was going to discuss ...

Periodic Fever Conventions?

rybrans07
  • By rybrans07 · Posted November 17, 2008
  • In The Children's Inn at NIH · 9 replies
  • Hi my name is Kim and my daughter Sarah has FMF. I read on someone else's journal that there are Conventions for families dealing with Periodic Fever Syndromes to get together for the weekend. This journal ...

Sharing our Experiences

rybrans07
  • By rybrans07 · Posted November 17, 2008
  • In The Children's Inn at NIH · 0 replies
  • My daughter Sarah is a patient at NIH as well as Children's Hospital of Philadelphia. After 2 long years of sickness she was finally diagnosed with FMF in April 2006 by the Doctors at CHOP (Children's ...

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